ANNUAL REPORT 2018 - Aventri
ANNUALREPORT2018
2 RIMS Annual Report 2018RIMS Annual Report 2018 3Table of ContentsRIMS (the “Organisation”) has madeevery effort to ensure the accuracy ofthe information contained in this annual report and on the Organisation’swebsite referred to therein. However,the Organisation does not guaranteethe appropriateness, accuracy, usefulness or any other matter whatsoeverregarding this information. Furthermore, please be aware that the contents or URLs that are on this websitereferred to in the annual report maybe changed, suspended or removedwithout prior notice. Regardless of thereason, the Organisation assumes noresponsibility, whatsoever, for any lossMessage from the Presidentp. 5About RIMSp. 6RIMS Membersp. 8The Executive Board 2017-2020p. 10Special Interest Groups (SIG)p. 11SIG Meeting Schedule 2018p. 12SIG Reports 2018p. 1323rd Annual RIMS Conferencep. 251st RIMS Workshopp. 27RIMS Grant Programmep. 28Projectsp. 29Fellowship Exchange Programmep. 35Our Partnersp. 36Partnership workp. 38Our Sponsorsp. 40Financial Reportp. 42Why become a member of RIMS?p. 44Membership Types & Feesp. 45Contact Informationp. 46or damages resulting from changes,suspension or deletion of information contained in this annual reportor information on the Organisation’sWebsite referred to therein, or fromthe unauthorized alteration of saidinformation by a third party, or fordamage resulting from the downloading of the data. This annual reportcontains forward-looking statementsabout the Organisation’s future plans,strategies, beliefs and performancethat are not historical facts. Theyare based on current expectations,estimates, forecasts and projectionsabout the industries in which theOrganisation operates and believes andassumptions made by management.As these expectations, estimates,forecasts and projections are subjectto a number of risks, uncertaintiesand assumptions, actual results maydiffer materially from those projected.The Organisation, therefore, wishesto caution readers not to place unduereliance on forward-looking statements. Furthermore, the Organisationundertakes no obligation to updateany forward-looking statements asa result of new information, futureevents or other developments.
4 RIMS Annual Report 2018RIMS Annual Report 2018 5Message from the presidentDear readers,Looking back at the past yearis really joyful, since we havebeen able to successfully rollout the activities that werepart of our strategic plan.A plan that we devised in 2017to support our mission toenhance activity, participationand autonomy of peoplewith MS by developing andadvocating evidence-basedrehabilitation.In 2018 we continued ourcore activities, as you canread in this annual report,such as the annual conference,the Special Interest Groups(SIGs), the RIMS grant andthe fellowships. New was ourlocally organised educationalactivity that we developed toreach more clinicians who areinvolved in the rehabilitationof persons with MS.The foremost aim of thisactivity is to enable thoseclinicians who are not able toattend our other RIMS activitiesto benefit from the knowledgethat is available within RIMS. Alltogether, these activities havea clear purpose: to supportthe accomplishment of ourvision that all people withMS throughout Europe haveaccess to evidence-basedrehabilitation when theyneed it.Whether it was because ofthe city, the atmosphere ofa university building, thequality of the content, or allof these factors combined,I don’t know, but our annualconference in Amsterdam withthe theme ‘MS rehabilitationacross the lifespan’ was a greatsuccess. We can proudly lookback at the contributions ofthe excellent invited keynotespeakers, and an extraordinaryand touching honorarylecture of one of our formerpresidents, Eija Luoto. Withslightly over 400 attendees wehave set an all-time record! In2018 all of the Special InterestGroups (SIGs) organized theirin-between meetings and haddeveloped very attractive andinteractive programmes, whichattracted 132 enthusiasticparticipants (7 - 62 participantsper SIG) from 16 countries (3- 13 countries represented perSIG). Also, we look back on awell-attended (58 delegatesfrom 12 countries) firstWorkshop ‘Rehabilitation inprogressive MS’ in Copenhagenthat received very goodfeedback, which clearly showsthat this newly developed RIMSactivity has merit.None of this would havehappened if I were to do thisalone. Thanks to the committedboard members GiampaoloBrichetto, Christian Dettmers,Piet Eelen, Jenny Freeman,Daphne Kos, Jaume SastreGarriga, Anders Skjerbaek;the active leadership of theSIGS, Paul van Asch, CarmeSantoyo, Lousin Moumdjian,Inger Grethe Loyning, SofieFerdinand, Doreen McClurg,Sara Rinaldi, Jana Pöttgen,Anita Rose, Leonie Ruhaak,Anne Christin Rahn, AndreaGiordano, and the highlyappreciated support ofSeauton, RIMS was able tosuccessfully accomplish all ofthe activities presented in thisannual report. As expectedit has been inspiring and apleasure to work together!It is my pleasure to invite you tolook through our annual report,because it contains a lot ofdetailed and useful informationon our activities of 2018. I amconfident that you will findparts of your liking that you willwant to read more closely.Best wishes,Prof Vincent de GrootRIMS President
6 RIMS Annual Report 2018RIMS Annual Report 2018 7About RIMSRIMS is an international, non-profit organisationto develop, train and advocate evidence-basedrehabilitation in the field of Multiple Sclerosis.RIMS is a multidisciplinary network of MSRehabilitation Centres and individual healthcare practictioners and has become the pointof reference with regards to MS rehabilitation inEurope and beyond.OUR MISSIONRIMS was created in 1991, in Milan, Italy. Today, we closelycooperate with internationally renowned key players inthe MS field such as ECTRIMS (European Committeefor Treatment and Research in Multiple Sclerosis), EMSP(European Multiple Sclerosis Platform), MSIF (MultipleSclerosis International Federation), MSJ (the MultipleSclerosis Journal) and IJMSC (International Journal of MSCare).OUR VISIONMembership gives you access to the resources of thenetwork, encourages study visits, enables exchangeof best practice and other skill improving activities.Therefore, we encourage all MS Centres, MS patientorganisations and individual healthcare professionalsand researchers to join the network.We aim to enhance activity,participation and autonomy ofpeople with MS by developingand advocating evidencebased rehabilitation.All people with MS throughout Europe have access toevidence-based rehabilitationwhen they need it.OUR AIMS Raise the profile ofrehabilitation in MS and attractthe best researchers andpractitioners. Improve the understandingof rehabilitation and its relevance at every stage of MS. Manage the generation ofnew evidence on rehabilitationin MS by facilitating interactionbetween researchers andpractitioners. Stimulate the implementation of new and existingevidence-based rehabilitation. Educate and trainpractitioners to integrateevidence into clinical practice.
8 RIMS Annual Report 2018Our Membersin 2018RIMS Annual Report 2018 9EUROPEANBelgiumCzech enSwitzerlandUnited KingdomRIMS Members are member centres/organisations, individual membersand student members. RIMS Memberscome from across Europe and beyond.The RIMS Secretariat, in closecollaboration with the RIMSMembership Officer, keeps updatedcontact details of all members.In 2018, RIMS counted 33 CentreMemberships, 33 Individual Membersand 8 Student Memberships.GLOBALAustraliaCanadaTurkeyUSA
10 RIMS Annual Report 2018RIMS Annual Report 2018 11The Executive Board2017-2020Special Interest Groups(SIG)RIMS is managed by anExecutive Board, which –according to the by-laws– is composed of eightelected officers, includingthe President, Secretaryand the Treasurer.Special Interest Groups(SIG's) aim to promoteresearch, stimulateevidence-based rehabilitation and improve themanagement of personswith MS and their caregivers.Traditionally, an intensive‘in-between’ meeting of1,5 to 2 days takes placebetween conferences.During ‘in-between’ SIGmeetings at one of themember centres acrossEurope, there are scientificand clinical presentationson a chosen topic as well asfree presentations. A clinicalor practical session (e.g.patient cases, demonstrationof technology; visit to acentre) is commonly alsoorganised.THE EXECUTIVE BOARD OF RIMS, FROM LEFT TO RIGHT:Piet Eelen (BE), Anders Skjerbaek (DK), Jenny Freeman (UK),Christian Dettmers (DE), Vincent de Groot (NL), Daphne Kos (BE),Giampaolo Brichetto (IT), Jaume Sastre Garriga (ES)NameBackgroundCountryVincent de GrootPresidentRehabilitation PhysicianAmsterdamThe NetherlandsDaphne KosVice-PresidentOccupational TherapistLeuven & AntwerpBelgiumJaume Sastre GarrigaTreasurerNeurologistBarcelonaSpainGiampaolo BrichettoRiGra OfficerRehabilitation PhysicianGenovaItalyChristian DettmersMembership OfficerNeurologistKonstanzGermanyPiet EelenSIG OfficerNurse SpecialistMelsbroekBelgiumJenny FreemanSecretary & Fellowship OfficerPhysiotherapistPlymouthUnited KingdomAnders SkjerbaekEducation OfficerPhysiotherapistRy & HaslevDenmarkMobilityChairPaul Van Asch, Belgiumpaulvanasch@yahoo.comCo-chairsCarme Santoyo, Spaincsantoyo@cem-cat.org&Lousin Moumddjian, Belgiumlousin.moumdjian@uhasselt.beBladder, Bowel& SexualityChairDoreen McClurg, United KingdomDoreen.McClurg@gcu.ac.ukCo-chairSara Rinaldi, Italysara.rinaldi@aism.itPsychology &NeuropsychologyChairJana Pöttgen, Germanyj.poettgen@uke.uni-hamburg.deCo-chairAnita Rose, United Kingdomdraerose@btinternet.comCommunication& SwallowingChairLeonie Ruhaak, Netherlandslruhaak@nieuwunicum.nlCo-chairFrancesca DeBiagi, ationChairInger Grethe Loyning, ie Ferdinand, Belgiumsofie.ferdinand@mscenter.bePatient AutonomyChairAnne Christin Rahn, Germanya.rahn@uke.deCo-chairAndrea Giordano, Italyandrea.giordano@istituto-besta.it
12 RIMS Annual Report 2018RIMS Annual Report 2018 13Special Interest GroupsMeeting Schedule 2018SIG ReportPsychology & NeuropsychologyIn-between meeting forSIG Psychology & NeuropsychologyJune 22, 2018Hamburg, GermanySIG Psychology& NeuropsychologyJune 22, 2018HamburgGermanySIG OccupationNovember 23-24, 2018HaslevDenmarkSIG MobilitySeptember 28-29, 2018GlasgowScotlandSIG Patient AutonomyNovember 23-24, 2018BergGermanySIG Bladder, Bowel& SexualityOctober 26, 2018LondonUKSIG Communication& SwallowingDecember 7, 2018HaslevDenmark About us In-Between MeetingThe SIG Psychology and Neuropsychology started as a ClinicalCare Committee of Psychology and Neuropsychology in 1997during the RIMS meeting in Bad Winzheim. The first chairman ofthe group was Rudi Vermote and co-chair Dawn Langdon. Since2001 the group was lead by Päivi Hämäläinen and Agnete Jonsson(chair and co-chair, respectively). Liina Vahter has been chair since2010 helped out by co-chair Anita Rose since 2011. Liina wasleading the group until 2015 and Anita was her Co-Chair. From2015 the Chair is Jana Pöttgen with again Anita as Co-Chair.Where?Hamburg, GermanyThe idea of the group is to gain and maintain contemporaryscientific knowledge about psychological and neuropsychological issues in MS and to share practical experience about everydayclinical work in different European countries within the RIMSnetwork. The main role of our SIG is to provide evidence-basedinformation regarding psychological and neuropsychologicalimpairment in MS and its rehabilitation opportunities for RIMSmembers and other persons who are interested in this field. Ourinternational collaboration is the best platform for team work.ParticipantsJana Pöttgen (SIG Chair) (DE),Anita Rose (SIG Co-chair) (UK),Steffi Lau (DE), Gesa Pust (DE),Hans Bock (DE), Anja Behrens(DE), Thorsten Schütze (DE),Gabi Weineck (DE), AmbraGiovannetti (IT), LaurentiuLazar (RO), Jannie Engelbrecht(DK), Mette Harpsoe Engel(DK), Wim van de Vis (NL),Cristina Bungardean (RO),Mieke d‘Hooge (BE), MichellePirard (BE)The meetings have both lectures and case presentations withopen discussion. To integrate current scientific knowledge intodaily work is one of the main issues. Own international scientificprojects are increasingly coming into focus.The action plan for the coming years is to finish the CompACTvalidation project, to publish the results in a scientific journal andto generate new projects we are interested in and we can workon in an international context. New interested psychologists andneuropsychologists are welcome and everybody who is interestedin being involved in our research projects is invited to take part.Please send an e-mail to: j.poettgen@uked.deWhen?June 22, 2018Topic?Acceptance and CommitmentTherapy
14 RIMS Annual Report 2018RIMS Annual Report 2018 15SIG ReportPsychology & Neuropsychology Summary of the meeting Future Plans & MeetingsThe workshop was mainly held by professor Pakenham. He startedwith an overview: ‘Third Wave Cognitive Behavioral Therapy –Acceptance & Commitment Therapy’ and gave an introduction inACT (History, Psychological Flexibility Framework and Associated Research). 3-hour workshop within theRIMS Annual Conference inLjubljana on June 20, 2019.Ambra Giovannetti presented the READY It MS project thatshe is running in Italy (the study follows a phased approach, assuggested by the Medical Research Council (MRC) frameworkfor developing and evaluating complex interventions), to informRIMS colleagues (all involved in the psychological/neuropsychological rehabilitation in MS) about European research on ACTand MS. First results are available and show positive effects onresilience parameters.SIG ReportMobilityIn-between meeting forSIG MobilitySeptember 28-29, 2018Glasgow, Scotland SIG Psychology andneuropsychology in-betweenmeeting (date and time to bedefined) Currently working on ainternational validation(Italy, Spain, Germany) of theCompACT Questionnairefunded by a RIMS grant.READY (Resilience for Every Day) for MS ACT based resiliencytraining targets key protective resilience factors:– Positive emotions / acceptance– Cognitive flexibility– Coping strategies– Meaning– Social supportShe also presented the CompACT for MS project, which is supported by the RIMS Grant. The aim ofthis multinational (Italy, Germany, Spain) project is the translation and validation of the CompACT. TheCompACT is a questionnaire to assess ACT-related processes. Both projects created quite an interestwithin the group. Colleagues from other countries and centers, expressed their interest in joining theprojects and possibilities of collaboration were discussed.After the introduction Prof. Pakenham presented the ACT core components:– Defusion– Acceptance– Contact with the present moment– The Observing Self– Values– Committed actionHe introduced many practical examples for a better and more comprehensive understanding of how touse ACT components for psychological rehabilitation, followed by a role play with Jannie Engelbrechtpretending to be one of her MS patients.Discussion:Ready for MS project and the CompACT for MS project (RIMS-Grant-project with Spain, Italy, Germany)All participants (from Belgium, UK, Denmark, Netherlands, Romania) showed serious interest to participate in the validation of the CompACT. All RIMS-members are interested in the READY for MS project.More structured moments for sharing knowledge on ACT and exchanging experiences on its application with people with MS are needed, particularly to let other MS or rehabilitation centres in Europe toacquire the necessary expertise and apply ACT evidence based intervention, such as “READY for MS”,into the rehabilitation centers.All participants reported high level of satisfaction with the workshop and asked for more exchange,knowledge and practical networking related to psychological topics and especially related to AC. About us In-Between MeetingThe SIG Mobility consists predominantly of physiotherapistscomplemented by medical/rehabilitation doctors, researchersand adapted exercise specialists. It focuses its activities notsolely on mobility issues in MS, but also on – for example –physical rehabilitation methodologic approaches, exercisetraining or technological rehabilitation innovations. The grouphas established its role as an active RIMS actor e.g. in terms ofa number of successfully implemented European multi-centerstudies/projects.Where?Glasgow, ScotlandUnited KingdomWhen?September 28-29, 2018Topic?Rehabilitation in MS:Innovation in Researchand PracticeParticipants62 delegates from 13 countries
16 RIMS Annual Report 2018RIMS Annual Report 2018 17SIG ReportMobilitySIG ReportBladder, Bowel & Sexuality Summary of the meeting Future Plans & MeetingsThe theme of the 21st SIG Mobility Meeting, held at GlasgowCaledonian University, was “Rehabilitation in MS: innovationin research and practice”. This meeting was attended by 62delegates from 13 countries. The 2-day programme included 6keynote and 16 free-paper presentations covering work relatedto: the evaluation of physical activity and exercise interventionson physical and cognitive function; investigating the influence offactors such as ageing, balance, and physical activity on mobilityin MS; and the development and evaluation of clinical services toimprove mobility in people with MS. 3-hour workshop within theRIMS Annual Conference inLjubljana on June 20, 2019.In addition, 4 practical workshops offered delegates the chanceto learn more about orthotics assessment and Pilates for MS atRevive MS Support, the measurement of energy expenditure,and physical activity monitoring with an emphasis on developingspecific metrics for MS populations.Delegates were also introduced to the city of Glasgow through afull social programme that included a civic reception in GlasgowCity Chambers – an iconic landmark dating back to the early1880’s – and traditional ceilidh dancing at Sloans, Glasgow’soldest pub.In-between meeting forSIG Bladder, Bowel & SexualityOctober 26, 2018, London, UK SIG Mobility in-betweenmeeting in Tel-Aviv (Israel)with Alon Kalron servingas the host.Date: October 28-29, 2019Place: Tel-Aviv University &Sheba Medical CenterTopic: TBC About us In-Between MeetingThe SIG Bladder, Bowel and Sexuality is an interdisciplinarygroup of health care professionals that includes nurses, rehabilitation doctors, physiotherapists, neurologists with a specialinterest in this topic. In the last years also gastroenterologists,psychologists and urologists were involved.Where?London, UKWhen?October 26, 2018Topic?Innovations in the treatmentof the neurogenic bladder andbowelParticipantsDoreen McClurg (UK) (SIGChair), Sara Rinaldi (IT) (SIGCo-chair), Nikki Cotterill (UK),Collette Haslam (UK), JaleshPanicker (UK), Piet Eelen (BE),Tamsyn Street (UK), KarenOksnevad (NO), Agnete Gade(NO), Marco Dellcava (IT)In-between meeting for SIG MobilitySeptember 28-29th, 2018, Glasgow, Scotland
18 RIMS Annual Report 2018RIMS Annual Report 2018 19SIG ReportBladder, Bowel & SexualitySIG ReportOccupation Summary of the meeting Future Plans & MeetingsWe held a SIG meeting at the last RIMS conference in Amsterdam where we had presentations by Laura Lopes and Piet Eelen.During this meeting Doreen McClurg agreed to become the SIGChair and Sara Rinaldi the vice-Chair. 3-hour workshop within theRIMS Annual Conference inLjubljana on June 20, 2019.A SIG in-between meeting was held in London in Octoberwith approximately 20 attendees. The programme includedpresentations from Dr Nikki Cotterill, Tamsyn Street, Piet Eelen,Doreen McClurg, Jalesh Panicker and Collette Haslam. We alsohad a short presentation on transanal irrigation by representatives from Coloplast who sponsored the lunch. The discussionswere vibrant and we were able to learn a lot from each other.In-between meeting forSIG OccupationNovember 22-
RIMS Annual Report 2018 RIMS Annual Report 2018 3. Message from the President. About RIMS RIMS Members. The Executive Board 2017-2020 Special Interest Groups (SIG) SIG Meeting Schedule 2018 SIG Reports 2018. 23. rd. Annual RIMS Conference 1. st. RIMS Workshop RIMS Grant Programme
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Annual Report 2020 compared to our 2019 Annual Report. The total carbon footprint for printing CIMB Annual Report 2020 was 11,588kgCO2e, compared to 14,987kgCO2e for our 2019 annual report. The carbon footprint for the 3 books of CIMB Annual Report 2020 is 14.485kgCO2e. We are committed to reducing the environmental impact of our annual report .
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