I 990

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Return of Organization Exempt From Income Tax990FormIIOpen to PublicDo not enter Social Security numbers on this form as it may be made public.Information about Form 990 and its instructions is at www.irs.gov/form990.A For the 2019 calendar year, or tax year beginningInspection, 2019, and ending, 20D Employer identification numberC Name of organizationCheck if applicable:À¾µ½Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)Department of the TreasuryInternal Revenue ServiceBOMB No. 1545-0047CROHN'S & COLITIS FOUNDATION, INC.AddresschangeDoing Business AsName changeNumber and street (or P.O. box if mail is not delivered to street address)13-6193105Initial return733 THIRD AVENUETerminatedCity or town, state or province, country, and ZIP or foreign postal codeRoom/suite510E Telephone number(800 ) 932-2423G Gross receipts 91,603,043.H(a) Is this a group return forYes X NoMICHAEL OSSO, PRESIDENTsubordinates?733 THIRD AVENUE, NEW YORK, NY 10017YesNoH(b) Are all subordinates included?If "No," attach a list. (see instructions)X 501(c)(3)Tax-exempt status:I501(c) ()(insert no.)4947(a)(1) or527WWW.CROHNSCOLITISFOUNDATION.ORGJ Website:H(c) Group exemption numberNYK Form of organization: X CorporationTrustAssociationOtherL Year of formation: 1967 M State of legal domicile:SummaryPart I1 Briefly describe the organization's mission or most significant activities: TO CURE CROHN'S DISEASE AND ULCERATIVECOLITIS, AND TO IMPROVE THE QUALITY OF LIFE OF CHILDREN AND ADULTSAFFECTED BY THESE DISEASES.AmendedreturnApplicationpendingNEW YORK, NY 10017F Name and address of principal officer:JNet Assets orFund BalancesExpensesRevenueActivities & GovernanceI234567abCheck this boxIIIif the organization discontinued its operations or disposed of more than 25% of its net mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mmNumber of voting members of the governing body (Part VI, line 1a)Number of independent voting members of the governing body (Part VI, line 1b)Total number of individuals employed in calendar year 2019 (Part V, line 2a)Total number of volunteers (estimate if necessary)Total unrelated business revenue from Part VIII, column (C), line 12Net unrelated business taxable income from Form 990-T, line 348910111213141516 ab171819Contributions and grants (Part VIII, line 1h)202122Total assets (Part X, line 16)Program service revenue (Part VIII, line 2g)mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmInvestment income (Part VIII, column (A), lines 3, 4, and 7d)Prior YearCOPY FORPUBLIC INSPECTIONm m m m m mm mm mm mm mm mm mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm m m m4,850,525.mmmmmmmmmmmmmI mmmmmmmmmmmmmmmmm m m m m m m m m m mm mm mm mm mm mm mm mm mm mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm m m m m m m m m m m m m mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mm mmOther revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)Total revenue - add lines 8 through 11 (must equal Part VIII, column (A), line 12)Grants and similar amounts paid (Part IX, column (A), lines 1-3)Benefits paid to or for members (Part IX, column (A), line 4)Salaries, other compensation, employee benefits (Part IX, column (A), lines 5-10)Professional fundraising fees (Part IX, column (A), line 11e)Current ,201,536.75,723,530.-1,798,280.Total fundraising expenses (Part IX, column (D), line 25)Other expenses (Part IX, column (A), lines 11a-11d, 11f-24e)Total expenses. Add lines 13-17 (must equal Part IX, column (A), line 25)Revenue less expenses. Subtract line 18 from line 12Total liabilities (Part X, line 26)Net assets or fund balances. Subtract line 21 from line 20Part II27.27.430.5,425.0.0.34567a7bBeginning of Current YearEnd of 455,900.8,818,349.Signature BlockUnder penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it istrue, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.SignHereMMSignature of officerDateType or print name and titlePrint/Type preparer's namePaidSCOTT THOMPSETTPreparerGRANTFirm's nameUse OnlyFirm's addressIIPreparer's signatureDate11/12/2020THORNTON 0100X YesNoForm 990 (2019)ImmmmmmmmmmmmmmmmmmmmmmmmmFirm's EIN757 THIRD AVENUE, 3RD FLOOR NEW YORK, NY 10017-2013May the IRS discuss this return with the preparer shown above? (see instructions)PTINPhone no.For Paperwork Reduction Act Notice, see the separate instructions.JSA9E1065 1.00003632M 700J 11/12/2020 3:45:48 PMV 19-7.5F0171965-00005PAGE 1

Form8868Application for Automatic Extension of Time To File anExempt Organization Return(Rev. January 2020)IDepartment of the TreasuryInternal Revenue ServiceIOMB No. 1545-0047File a separate application for each return.Go to www.irs.gov/Form8868 for the latest information.Electronic filing (e-file). You can electronically file Form 8868 to request a 6-month automatic extension of time to file any of theforms listed below with the exception of Form 8870, Information Return for Transfers Associated W ith Certain Personal BenefitContracts, for which an extension request must be sent to the IRS in paper format (see instructions). For more details on the electronicfiling of this form, visit and-non-profits.Automatic 6-Month Extension of Time. Only submit original (no copies needed).All corporations required to file an income tax return other than Form 990-T (including 1120-C filers), partnerships, REMICs, and trustsmust use Form 7004 to request an extension of time to file income tax returns.Name of exempt organization or other filer, see instructions.Type orprintFile by thedue date forfiling yourreturn. Seeinstructions.Taxpayer identification number (TIN)CROHN'S & COLITIS FOUNDATION, INC.13-6193105Number, street, and room or suite no. If a P.O. box, see instructions.733 THIRD AVENUE 510City, town or post office, state, and ZIP code. For a foreign address, see instructions.NEW YORK, NY 10017Enter the Return Code for the return that this application is for (file a separate application for each return)ApplicationIs ForReturnCodeForm 990 or Form 990-EZForm 990-BLForm 4720 (individual)Form 990-PFForm 990-T (sec. 401(a) or 408(a) trust)Form 990-T (trust other than above)%The books are in the care ofI010203040506mmmmmmmmmmmmApplicationIs For0 1ReturnCodeForm 990-T (corporation)Form 1041-AForm 4720 (other than individual)Form 5227Form 6069Form 8870070809101112RONALD GOLDSMAN, VP FINANCE733 THIRD AVENUE NEW YORK NY 10017-8804II212 685 3440Telephone No.Fax No.If the organization does not have an office or place of business in the United States, check this boxIf this is for a Group Return, enter the organization's four digit Group Exemption Number (GEN). If this isfor the whole group, check this box. If it is for part of the group, check this boxand attacha list with the names and TINs of all members the extension is for.11/16 , 20 20 , to file the exempt organization return1I request an automatic 6-month extension of time untilfor the organization named above. The extension is for the organization's return for:%%mmmmmmIIXIcalendar year 20 19tax year beginningmmmmmmmmmmmmmmmImmmmmmmIor, 20, and ending, 20.If the tax year entered in line 1 is for less than 12 months, check reason:Initial returnFinal returnChange in accounting period3 a If this application is for Forms 990-BL, 990-PF, 990-T, 4720, or 6069, enter the tentative tax, less anynonrefundable credits. See instructions.3a b If this application is for Forms 990-PF, 990-T, 4720, or 6069, enter any refundable credits andestimated tax payments made. Include any prior year overpayment allowed as a credit.3b c Balance due. Subtract line 3b from line 3a. Include your payment with this form, if required, by using EFTPS(Electronic Federal Tax Payment System). See instructions.3c 20.0.0.Caution: If you are going to make an electronic funds withdrawal (direct debit) with this Form 8868, see Form 8453-EO and Form 8879-EO for paymentinstructions.For Privacy Act and Paperwork Reduction Act Notice, see instructions.JSAForm8868(Rev. 1-2020)COPY9F8054 2.0004/8/202010:38:53 AM V 19-4.2F0171965-00005PAGE 1

CROHN'S & COLITIS FOUNDATION, INC.13-6193105Form 990 (2019)PagePart III1Statement of Program Service AccomplishmentsCheck if Schedule O contains a response or note to any line in this Part IIIBriefly describe the organization's mission:mmmmmmmmmmmmmmmmmmmmmmmm2XATTACHMENT 1234Did the organization undertake any significant program services during the year which were not listed on theX Noprior Form 990 or 990-EZ?YesIf "Yes," describe these new services on Schedule O.Did the organization cease conducting, or make significant changes in how it conducts, any programX Noservices?YesIf "Yes," describe these changes on Schedule O.Describe the organization's program service accomplishments for each of its three largest program services, as measured byexpenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others,the total expenses, and revenue, if any, for each program service mmmmmmmmmmmmm4a (Code:) (Expenses 31,492,679.including grants of 0.) (Revenue 780,015.)29,234,702.including grants of 25,099,238.) (Revenue 4,765,830.)ATTACHMENT 24b (Code:) (Expenses ATTACHMENT 34c (Code:) (Expenses including grants of 4d Other program services (Describe on Schedule O.)(Expenses including grants of 60,727,381.4e Total program service expensesJSA9E1020 2.000I03632M 700J 11/12/2020 3:45:48 PM) (Revenue ) (Revenue ))FormV 19-7.5F0171965-00005990 (2019)PAGE 2

CROHN'S & COLITIS FOUNDATION, INC.13-6193105Form 990 (2019)Part IVPageYes1Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)? If "Yes,"complete Schedule AIs the organization required to complete Schedule B, Schedule of Contributors (see instructions)?Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition tocandidates for public office? If "Yes," complete Schedule C, Part ISection 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h)election in effect during the tax year? If "Yes," complete Schedule C, Part IIIs the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues,assessments, or similar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part IIIDid the organization maintain any donor advised funds or any similar funds or accounts for which donorshave the right to provide advice on the distribution or investment of amounts in such funds or accounts? If"Yes," complete Schedule D, Part IDid the organization receive or hold a conservation easement, including easements to preserve open space,the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part IIDid the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes,"complete Schedule D, Part IIIDid the organization report an amount in Part X, line 21, for escrow or custodial account liability, serve as acustodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, ordebt negotiation services? If "Yes," complete Schedule D, Part IVDid the organization, directly or through a related organization, hold assets in donor-restricted endowmentsor in quasi endowments? If "Yes," complete Schedule D, Part VIf the organization's answer to any of the following questions is "Yes," then complete Schedule D, Parts VI,VII, VIII, IX, or X as applicable.Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes,"complete Schedule D, Part VIDid the organization report an amount for investments-other securities in Part X, line 12 that is 5% or moreof its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIDid the organization report an amount for investments-program related in Part X, line 13 that is 5% or moreof its total assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIIIDid the organization report an amount for other assets in Part X, line 15, that is 5% or more of its total assetsreported in Part X, line 16? If "Yes," complete Schedule D, Part mmmmmmmmmmmmmmm1011abcd3Checklist of Required mmmmmmmmmmmmmmmmmmmmme Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part Xf Did the organization's separate or consolidated financial statements for the tax year include a footnote that addressesthe organization's liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part aX12 a Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," completeSchedule D, Parts XI and XIIb Was the organization included in consolidated, independent audited financial statements for the tax year? If"Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional13 Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E14 a Did the organization maintain an office, employees, or agents outside of the United States?b Did the organization have aggregate revenues or expenses of more than 10,000 from grantmaking,fundraising, business, investment, and program service activities outside the United States, or aggregateforeign investments valued at 100,000 or more? If "Yes," complete Schedule F, Parts I and IV15 Did the organization report on Part IX, column (A), line 3, more than 5,000 of grants or other assistance to orfor any foreign organization? If "Yes," complete Schedule F, Parts II and IV16 Did the organization report on Part IX, column (A), line 3, more than 5,000 of aggregate grants or otherassistance to or for foreign individuals? If "Yes," complete Schedule F, Parts III and IV17 Did the organization report a total of more than 15,000 of expenses for professional fundraising services onPart IX, column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I (see instructions)18 Did the organization report more than 15,000 total of fundraising event gross income and contributions onPart VIII, lines 1c and 8a? If "Yes," complete Schedule G, Part II19 Did the organization report more than 15,000 of gross income from gaming activities on Part VIII, line 9a?If "Yes," complete Schedule G, Part III20 a Did the organization operate one or more hospital facilities? If "Yes," complete Schedule Hb If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?21 Did the organization report more than 5,000 of grants or other assistance to any domestic organization ordomestic government on Part IX, column (A), line 1? If "Yes," complete Schedule I, Parts I and IImmmmmmmmmmmmmmmmmmmmmmJSA9E1021 mmmmmmm14bX15XV M 700J 11/12/2020 3:45:48 PMXXX12b1314aX990 (2019)PAGE 3

CROHN'S & COLITIS FOUNDATION, INC.13-6193105Form 990 (2019)Part IVPageYes222324 abcd25 abDid the organization report more than 5,000 of grants or other assistance to or for domestic individuals onPart IX, column (A), line 2? If "Yes," complete Schedule I, Parts I and IIIDid the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of theorganization's current and former officers, directors, trustees, key employees, and highest compensatedemployees? If "Yes," complete Schedule JDid the organization have a tax-exempt bond issue with an outstanding principal amount of more than 100,000 as of the last day of the year, that was issued after December 31, 2002? If "Yes," answer lines 24bthrough 24d and complete Schedule K. If "No," go to line 25aDid the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?Did the organization maintain an escrow account other than a refunding escrow at any time during the yearto defease any tax-exempt bonds?Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefittransaction with a disqualified person during the year? If "Yes," complete Schedule L, Part IIs the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prioryear, and that the transaction has not been reported on any of the organization's prior Forms 990 or 990-EZ?If "Yes," complete Schedule L, Part IDid the organization report any amount on Part X, line 5 or 22, for receivables from or payables to any currentor former officer, director, trustee, key employee, creator or founder, substantial contributor, or 35%controlled entity or family member of any of these persons? If "Yes," complete Schedule L, Part IIDid the organization provide a grant or other assistance to any current or former officer, director, trustee, keyemployee, creator or founder, substantial contributor or employee thereof, a grant selection committeemember, or to a 35% controlled entity (including an employee thereof) or family member of any of thesepersons? If "Yes," complete Schedule L, Part IIIWas the organization a party to a business transaction with one of the following parties (see Schedule L,Part IV instructions, for applicable filing thresholds, conditions, and exceptions):A current or former officer, director, trustee, key employee, creator or founder, or substantial contributor? If"Yes," complete Schedule L, Part IVA family member of any individual described in line 28a? If "Yes," complete Schedule L, Part IVA 35% controlled entity of one or more individuals and/or organizations described in lines 28a or 28b? If"Yes," complete Schedule L, Part IVDid the organization receive more than 25,000 in non-cash contributions? If "Yes," complete Schedule MDid the organization receive contributions of art, historical treasures, or other similar assets, or qualifiedconservation contributions? If "Yes," complete Schedule MDid the organization liquidate, terminate, or dissolve and cease operations? If "Yes," complete Schedule N, Part IDid the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes,"complete Schedule N, Part IIDid the organization own 100% of an entity disregarded as separate from the organization under Regulationssections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part IWas the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III,or IV, and Part V, line 1Did the

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3a If this application is for Form 990-BL, 990-PF, 990-T, 4720, or 6069, enter the tentative tax, less any nonrefundable credits. See instructions. b If this application is for Form 990-PF or 990-T, enter any refundable credits and estimated tax payments made. Include any p