Your Guide To Spinal Cord Injury And The NDIS

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National DisabilityInsurance SchemeYour guide tospinal cord injuryand the NDIS

This guidehas beendesigned to helpyou understandhow to access theNDIS, whetheryou are still inhospital oralready at home.SHPN: (GR) 190248ISBN: 978-1-76081-132-7Version 1.0

ContentsHow to use this resource1Step 1:2Step 2:3Step 3:4Step 4:5Step 5:What is the NDIS?Can I access the NDIS?Creating my planStarting my plan4781020Reviewing my plan23Support for carers24Useful contacts25NDIS glossary (adapted from NDIS website)27

How to use this resourceWho is this workbook for?How will this book help?This workbook is for people with anewly acquired spinal cord injury (SCI)requiring support from the NationalDisability Insurance Scheme (NDIS),and their carers and families.From the guidance in this workbook,we hope you will benefit from: What is it for?More confidenceAn NDIS plan suited to your needsHow do I use this book?This book brings together theinformation available to people withnewly acquired SCI about: More understandingIf you are new to the NDIS, there is alot of new information to take in. Werecommend you work through onestep at a time.What is the NDIS?Can I access the NDIS?Pre-planning and creating my planStarting my planReviewing my plan12345What is thenew NDIS?Can I accessthe NDIS?Creatingmy planStartingmy planReviewingmy planPage 4

KeyPeople learn in different ways so we haveprovided information in different formats.These icons will help you identify thetype of resource:Written informationAvailable in hard copy, please ask staffWebsiteVideo or webcast on a websiteSomething to listen toTools: resources for you to useFor example, a workbook to help youprepare for your planning meetingPage 5

CLICK HERETick the boxThis book uses a ‘tick box’ system tohelp you stay on track with the NDISprocess. Once you have completed astep, simply tick the box provided.Key wordsThe NDIS uses words you may not haveseen before. You can find out what theymean in the NDIS Glossary at the endof the book. There is a longer versionavailable on the NDIS age 6Link to websitesThis workbook has links to moreinformation on the internet. If youare reading this book on a smartdevice or computer, click on thedocument title and it will hyperlinkyou directly to the website.If you are reading this book inpaper form, type the documenttitle into a search engine and clickon the link.

1Step 1:What is the NDIS?The NDIS is available to Australians with a permanent disability and agedunder 65 years. This includes people with a newly acquired disability.What is the NDIS for me?NDIS is a way of providing funding and support to eligible people, basedon their individual needs. Funding for supports can help you achieve goalsin different areas of life including independence, community involvement,education, employment, and health and wellbeing.As an NDIS participant, you decide who provides the help and supportsthat will help you meet your goals. The NDIS can connect you to informaland community supports too.About the NDIS – what you need to knowClick on the title of the link or enter title into a search engine.What is the NDIS? - YouTubeCLICK HEREUnderstanding the NDIS Booklet 1 (NDIS)About the NDIS – more detailNDIS Living My Plan – Part 1 YouTube (NDIS)Reasonable and Necessary Podcast Series– Summer Foundation1Page 72345

2Step 2:Can I access the NDIS?First, you need to check whether you meet the eligibility criteria forfunding with the NDIS. If a person meets the eligibility criteria they willneed to apply for the NDIS by completing an Access Request Form (ARF).You can appoint a Nominee to help you with this process. The health carestaff will also provide information about your condition on this form.A successful NDIS application is called ‘Access’.About accessing the NDIS – what you need to knowClick on the title of the link or enter title into a search engine.Can I access the NDIS? – YouTubeTip: watch from 1:04Access Request Form –National Disability Insurance Scheme (NDIS) Tip: click on link Evidence of your disabilityat the bottom of the page for more information.About accessing the NDIS – more detail for peoplewith a spinal cord injurySummer Foundation - STEP BY STEP:How to fill out the NDIS Access Request FormSpinal Cord Injuries Australia - Accessing the NDISRegistering for the NDIS – ParaQuad1Page 82345

Accessing the NDIS – your checklist1Have you received information about the NDIS?Ask the NDIA Planner for an Access Request Form (ARF).2Sometimes Health staff can do this for you,please ask if this is possible or not.3Complete the Personal Details of the Access RequestForm (ARF)4Ask Health staff to complete the Disability Details part ofthe Access Request Form (ARF)5Email the completed form to the NDIA nat@ndis.gov.auYou will be notified by the NDIA if your plan has been approved.Key people you will meet at this stageThe health care team treating you in hospital and at rehabilitation including: the medical and nursing staff social worker physiotherapist occupational therapist dietitian speech pathologist. 1Page 92345

3Step 3:Creating my planPart 1: Pre-planningThe pre-planning phase of the NDIS is about getting ready for yourPlanning meeting. The Planning meeting is to decide on the help youneed and what funding you can receive in your NDIS Plan.The pre-planning phase of the NDIS is broken down into three categories: About youYour supportsYour goalsIt is important to be prepared for this meeting by gatheringinformation. We recommend you use a pre-planning bookletto help you prepare for your Planning Meeting.About YouYour SupportsYour Goals1Page 102345

Pre-planning: About YouIn the planning meeting, the NDIA planner will ask you informationabout your day-to-day life. This is known as your Participant Statement.You will need to provide information about: where you livethe people who support youyour daily life.About YouWhere I live: Who supports me:Informal (family and friends), formal (paid by self or Including suburb, type of home, access and stairsby government services) and community options(voluntary organisations)My daily life (example):Morning routine: get up, toilet, shower, get dressed, make breakfast, eat, clean upGo out (where, when, how long, way of travel?), eat lunch, toiletEvening routine: make dinner, eat, clean up, shower, get ready for bed, toilet, sleepHousehold chores: cleaning, washing clothes, house maintenance, mowing lawn, gardening, washing carOn the weekends I enjoy reading and going for walks with my family. I go to the local gym three times per week. Driving/vehicle modificationsActivities when on holiday/special occasions/ festivities Leisure activitiesWork/education activities or interests1Page 112345

Pre-planning: Your GoalsThe goals in your NDIS plan should be focused on functional skill, independence andparticipating in the community. Your goals will be discussed at the planning meeting soyou can receive funding to achieve them.These goals are different from SMART (specific, measureable, attainable, realistic andtimely) goals. SMART goals are regularly used in health care and in rehab.NDIS goals are broader, more overarching goals.Examples of goals supported by the NDIS include: going out to see friendsgoing to studygoing to work.To achieve these larger goals, you need to set a series of small goals: getting out of bed,getting dressed, preparing and eating a meal before you go, cleaning up, transport andsupport while doing the activity in the community.Your Local Area Coordinator (LAC), NDIA Planner or volunteers from other agencieswill talk through your goals and aspirations with you before and/or during the planningmeeting.For example:I would like to go to watch the football/cricketon the weekend.What are some of your goals or aspirations? Write some ideas below.1.2.3.1Page 122345

Pre-planning: Your SupportsOnce you have determined your goals, you need to think about what people or items willhelp you achieve your goal. These are called Supports. Supports can include equipmentor people to help you. Informal supports – family, friends and unpaid carers who can help you whenyou need it. If you have people around you that are limited in their ability to supportyou (for example, they are ageing or have a disability), please make this very clearto the NDISCommunity and mainstream supports – services available from government services (e.g. council transport, education or healthcare) Formal supports – services or equipment using NDIS fundingThe NDIS uses the term ‘support categories’ in your Plan. The plan has three groupsof funded supports - Core, Capital, and Capacity Building. Your plan will have thesecategories but there is limited control over how the funds are allocated. These categoriesare important in preparing for your Plan Review in 12 months’ time.1Page 132345

Core– get you throughthe dayCapital– get equippedCapacitybuilding– build yourskillsCore - get you through the day everyday supports (e.g. personal care, house cleaning, shopping, transport) consumables (e.g. parts of continence products)Capacity building - build your skills short term services to help you build your independence includes support co-ordination, support to access social groups or educationCapital - get equipped significant equipment or modifications includes power wheelchair, pressure care bed, home & vehicle modification1Page 142345

The NDIS will fund the supports they consider to be ‘reasonable and necessary’.About reasonable and necessary supportsNDIS reasonable and necessary supports video - YouTubeNDIS reasonable and necessary supportsFor example:Equipment – wheelchair, bed, commodeSupport worker to assist with personal care,domestic tasks, assisting you to do activities inthe community (that are linked to your goals)1Page 152345

Part 2: The planning meetingAt the planning meetingThe NDIA representative will gather all the information they need to make an assessmentof your needs for the next 6-12 months. They will then take this to an NDIA Planner,who is responsible for creating the NDIS Plan.A planning meeting could look like this:1. An NDIS Representative will start the conversation and ask a few questions focusingon: your personal detailscommunity and mainstream supports you do or will receiveyour safety at home and in the communityyour goals and starting your plan.2. The representative will talk about how the NDIS funds supports. The supports willrelate to your day to day living as well as your goals to live an ordinary life.3. The representative will ask you how you want to manage the funds in your NDIS plan– self-managed, NDIA-managed, or having a Plan Manager.Options for plan managementPlan management optionHow it worksPlan ManagerIf you would like some help when you first get your plan,you can choose to pay for a Plan Manager out of yourfunding and they can pay your providers for you. Yourplan manager cannot pay more than the NDIA set pricelimit for specific supports.Self-managementThe NDIA provides you with funding to choose yourown supports to help you meet your plan goals. Thisgives you control and flexibility over who provides yoursupports and when.NDIA managedThe NDIA pays your providers on your behalf. They canonly pay providers who are registered with the NDIS.They cannot pay more than the NDIA set price limits.1Page 162345

After the planning meetingThe time from your planning meeting to receiving your plan can vary. You can contactthe NDIA to follow up on the progress of your plan.About planning – what you need to knowPlanning Book 2 – National Disability Insurance Scheme(choose from pdf, Word document or Easy English)Developing your first NDIS plan – YouTubeWhat can I get in an NDIS Plan? – Summer FoundationAbout planning – more detailNDIS Pathway Support - ParaQuadReasonable and necessary supports – YouTubeTip: start watching at 0:56 secondsNDIS Planning Workbook – Every Australian CountsPreparing for your first NDIS planning meeting– Spinal Cord Injuries Australia1Page 172345

Key people you will meet in the Planning phaseLocal Area Coordinator(LAC)From local organisations working in partnership with the NDIA. Provides general information about your NDIS plan.Links you with support and services in the community. What is a Local Area Coordinator? - NDISVolunteers/visitors/peersSupports participants to implement and review their plans.Can provide information specific to SCI. Ask staff for more details. Peer support – Spinal Cord Injuries AustraliaNDIA PlannerWorks for the National Disability Insurance Agency (NDIA).Puts together a plan, makes reasonable and necessary decisions in accordance with the NDIS Act.1Page 182345

Planning - your checklist1Select and print a Planning workbook to helpyou collect information for your Planning meeting.2Confirm your NDIS meeting time and date with the NDIA.3A Local Area Coordinator (LAC) or NDIA Planner willcontact you to arrange a time to meet and discuss yourdisability support needs. You can request informationfrom them to help with the planning meeting.4Start preparing for your meeting.a) Part 1 - About meWhere I live, who supports me and my daily lifeb) Part 2 - My goals Think about what community activities you want to dowhen you leave hospital.c) Part 3 - My supports Reasonable and Necessary Supports(Core, Capital, Capacity)5Gather information and reports for your meeting.(Tip: use a checklist in the resources listed below).6Decide who you like to attend your planning meetingwith you (for example, family members, a friend or acarer).7Write down any questions you have.1Page 192345

4Step 4:Starting my planThere are two parts to starting your plan:Part 1: Receiving and understanding my NDIS planPart 2: Using my planPart 1: Receiving and understanding my NDIS planAfter your planning meeting the NDIA will review the information fromthe planning meeting and any other necessary documentation.Sometimes you may be asked for further information.The time from your planning meeting to receiving your plan can vary.If you would like to follow up on the progress of your plan, you cancontact the NDIA.Once the plan has been approved you should receive a notification fromthe NDIA. You will receive some information and a code to access themyplace participant portal, through your mygov online account.The myplace portal is where you can: find your NDIS plan and available funding find providersmake payment requests (if you are self-managing your child’s NDIS plan).You should now have a plan implementation meeting with yourLocal Area Coordinator or Support Coordinator to discuss the planand how to implement it.1Page 202345

Part 2: Using my planChoosing service providersOnce you have received your NDIS plan and you understand what’s in it, you can startchoosing service providers. It’s important to find a service provider who is right for you.Questions to ask a service provider/agency before starting a serviceagreement: What experience do you have in working with clients with a spinal cord injury? Are your support workers trained in the needs of a person with a disability? Can they work with complex care needs or challenging behaviours? What support services do you provide? Is your service flexible? How does your service provide ‘person-centred’ care and supports?What if I am not happy with my care worker or support person, or the services provided? Does your service monitor the quality of care it provides?If you have been funded for support coordination in your plan, find a suitable servicethat understands your disability and your needs. Your Support Coordinator willcoordinate services according to your plan. They are your ‘go to’ person to link youwith the most appropriate providers for your daily/weekly care, goals and accessingmainstream services.1Page 212345

Service bookings and service agreementsYou will normally need to make a written agreement with your provider, called a serviceagreement. Each provider will have their own service agreement. Carefully look at theterms and conditions, and make sure you understand all the details before you signanything.Service bookings are different to service agreements. In a service booking, you and yourchosen provider agree on how much of your budget can be ‘reserved’ in your plan forthat provider. Service bookings are usually written for the whole duration of the NDISplan. They are documented in the myplace participant portal.About starting my plan – what you need to knowNDIS: Starting my planNDIS: myplace participant portal user guideNDIS: Find Registered Service Providers1Page 222345

5Step 5:Reviewing my planIn the few months before your NDIS Plan ends, it’s time to start collectinginformation and thinking about goals for your next plan. What has workedwell in your current plan? What would you like to change?What to think about for your plan review1. Progress towards your goals – ask for reports from your current serviceproviders about how NDIS supports have contributed to workingtowards your goals, and what supports you may need for your nextNDIS plan. Any new assessments should provide evidence of what youneed in your next NDIS plan. When you have made limited progressin your goals, explain why, for example, because of illness or a lack offunding.2. Your goals for the next 6-12 months – what supports do you need toreach them?3. Whenyou have not used all the funds in your current plan – explain why. Any unspent funds will not roll over into your next plan.4. Goingthrough major life changes – for example, starting or finishing study, moving house, planned surgeries, or requiring modified or newequipment.5. Managingyour funding – did the current option work for you? Would you like to change options?If your plan is due to finish soon but you have not yet been contacted byan NDIA representative to organise a preplanning meeting, you can contactthe NDIA.1Page 232345

Support for carersThis information guide is for consumers, their families and carers. If you would like yourcarer to view this information guide, please provide them with the link to the website.More information for carersSupport for families and carers – Carers AustraliaCarer Checklist – Carers AustraliaPage 24

Useful contactsKey organisationsOrganisationRoleContact detailsParaQuadProduct providerPhone: (02) 9132 4260Email: paraquad@paraquad.org.auSpinal Cord InjuriesAustraliaService providerPhone: 1800 819 775Email: info@scia.org.auCarers Australia (NSW)Carer Line –FreecallPhone: 1800 242 636Email: contact@carersnsw.org.auWho do I contact if I have any questions or need support? Before getting access to the NDIS: your Health Care teamAfter getting access to the NDIS: your Local Area Coordinator (or Support Coordinator if you have one)Where should I go if I have questions about the NDIS or disabilityservices in NSW? – NDIS NSWPage 25

Key peopleOrganisation theywork forNameNDIS PlannerContact detailsPhone:Address:My Local AreaCoordinator and partnerorganisation, for example,UnitingPhone:Peer support coordinatorPhone:Address:Address:Other contactsNamePage 26Relationship to meOrganisation they workfor and contact details

NDIS glossary (adapted from NDIS website)Access Request Form(ARF)The form people fill out to help the NDIAidentify if a person is eligible to become aparticipant.CarerA family member or friend who providespersonal care, support and help toa person with disability and is notcontracted as a paid or voluntary worker.ConsumablesConsumables are a support categoryavailable to assist participants withpurchasing everyday use items. Supportssuch as continence and home enteralnutrition (HEN) products are included inthis category.GoalsThings a participant wishes they could door achieve in the future, with the help ofthe NDIS.Local Are

Pre-planning and creating my plan . National Disability Insurance Scheme (NDIS) ip: click on link Evidence of your disability T at the bottom of the page for more information. Spinal Cord Injuries Australia - Accessing the NDIS Registering for the NDIS – ParaQuad 1 2

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