The Hagerstown Parkinson’s Support Group

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The Hagerstown Parkinson’s Support GroupHagerstown, MD and the Four-State AreaMonthly NewsletterJanuary 2017Visit Our Website at:www.fareshare.net/Parkinsons/Volume 7, Issue 1www.fareshare.net/ParkinsonsVisit us on FacebookThis Month’s MeetingJanuary MeetingThere were 48 people at our Decembermeeting. A very nice turn out consideringso many of our regulars are among thesick and walking wounded. We hope all ofthose under the weather or in a facility forrehab get well soon and have a great holiday. We are thinking and praying for all ofyou.MARK YOUR CALENDARSThanks to Dave and Patsy (and others) fordecorating our Christmas tree. It lookedvery festive. And thanks to all of you whohelped get the meeting set up and packedup afterwards. You all were very generousin contributing a “Christmas” gratuity to thestaff. Over 90 was collected for the women who take care of us.We had a fun time celebrating the Holidayswith a Christmas Family Feud Game basedon the popular TV game show. Everyoneenjoyed the game and came up with a lotof “good answers” that amused all of us.Linda Wilke won the game by a largemargin, scoring 660 points. For scoringthe most points, Linda won a 10 gift certificate donated to the group by the ownersof the Western Sizzlin’ Restaurant. DoryKennedy came in second with 600, forhonorable mention.That was followed by the exchange of gifts.Everyone enjoyed opening the surprisepresents and discovering what their giftwas.Bill Wilhide won the 10 gift certificate donated to the group by the owners of theWestern Sizzlin’ Restaurant. Thanks toPaul and his family for being so generous.Thanks to Ecile Shaw for delivering a slilent prayer for all of us before lunch.The Hagerstown Parkinson’s Support GroupGroup Facilitator:Art Guyer22215 Troy LaneHagerstown, MD 21742240-625-27224Parkinsons@gmail.comJoin us for our nextParkinson Support Group Meetingat theWestern Sizzlin Steakhouse17567 York Road, Hagerstown, MDThursday, January 5, 2016, 11:45 AMPatients and CaregiversBreakout SessionsNewsletter HighlightsTips for Making Life Easier (Page 3)Heads Up, Caregivers! (Page 4)Christmas Party Photos (Page 5)PD Linked to Microbiome (Page 6)Detailed Event Listing (Pages 7 & 8)Local Support Group ContactsWinchester Area Parkinson's Support GroupCheryl Reames, Facilitator, .com/winchesterPDsupportCumberland Parkinson's Support GroupToby Feddis, 301-729-5569,Iansgranny2007@yahoo.comPam Dolly, 304-738-2196,pameladolly89@gmail.comFriends in Frederick Parkinson’s Support GroupJanet Silvious, 301-831-5609,janet@fifpdsg.org orJohn Kraft, 301-845-6514, john@fifpdsg.org.www.fifpdsg.orgFrederick Parkinson’s Disease Early Onset orNewly Diagnosed Community Support GroupDeb Bergstrom, Facilitator, 301-712-5381,bergstromdf@gmail.comCentral PA PD Support Group - West Shore(Mechanicsburg, PA)Dan Yother, 304-676-2053,oldred714@verizon.netGettysburg Parkinson’s Disease Support GroupPaula Chaplin, 717-337-4407,pchaplin@wellspan.orgFuture Meetings2017Jan 5, Patients & Caregivers Breakout SessionsFeb 2, Daniel Quirk, DPT, Fox RehabilitationMar 2, Jaclyn Garrish, Speech-Language Path.Apr 6, Sandra Mertz, Neuro. Ortho. HypotensionMay 4, Patients & Caregivers Breakout SessionsJun 1, Colleen Brown, RN, BSN, Medtronic DBSJul 6, TBDAug 3, Becky Dunlop, RN, BSN, Hopkins MDCSep 7, Patients & Caregivers Breakout SessionsOct 5, Dr. Stephen Ryan, Physical TherapistNov 2, Dr. Kelly Mills, Movement Disorder Specialist, Johns’ Hopkins UniversityDec 7, Christmas Party & Gift ExchangeCross Keys Parkinson’s Support Group(New Oxford, PA)Daune Wynn, 717-495-5671wynn574@crosskeysvillage.netAttend aSupport Group MeetingParkinson’s Events Calendar On-Line.The Hagerstown Parkinson’s Support Groupis supported in part by:Thanks to Paul Romsburg, his family, and staffof the Western Sizzlin for supporting our group.17567 York Road Hagerstown, MDStop by for lunch ch is to get a drug into the brain. However, if PD is indeed not solely caused by changes in the brain butinstead by changes in the microbiome, then you may just have to get drugs into the gut to help patients, which is much easier to do,”Mazmanian says. Such drugs could be designed to modulate SCFA levels, deliver beneficial probiotics, or remove harmful organisms.“This new concept may lead to safer therapies with fewer side effects compared to current treatments.”6

The Hagerstown Parkinson’s Support GroupHagerstown, MD and the Four-State AreaMonthly NewsletterJanuary 2017Reminders of upcoming events as of Sunday, December 04, 2016REGULAR EVENTS:EventDate, Time, LocationContact for InformationHagerstown Parkinson’s Support Group Meeting1st Thursday @ 11:45 AMWestern Sizzlin Restaurant, Hagerstown , MDArt Guyer, 240-625-27224Parkinsons@gmail.comCumberland PD Support Group Meeting1st Friday @ 4:00 PMGrace Memorial Church, Cumberland , MDToby Feddis, 301-729-5569,Iansgranny2007@yahoo.comPam Dolly, 304-738-2196,pameladolly89@gmail.comWinchester PD Support Group Monthly Meeting2nd Tuesday @ 11:00 AMWinchester Church of God, Winchester, VACheryl Reames, 540-662-4632winchesterparkinsons@gmail.comCentral PA PD Support Group Meeting2nd Wednesday @ 1:30 PMHealth South Rehab Hospital, Mechanicsburg, PADan Yother, 304-676-2053oldred714@verizon.netHagerstown Parkinson’s Support GroupCaregivers’ Breakfast3rd Monday @ 8:30 AMHagerstown Family Diner, Hagerstown, MDArt Guyer, 240-625-27224Parkinsons@gmail.comFrederick PD Support Group Monthly Meeting3rd Wednesday @ 1:00 PMMount Pleasant Ruritan Club, Walkersville , MDJanet Silvious, 301-831-5609janet@fifpdsg.orgGettysburg PD Support Group Meeting3rd Wednesday @ 1:00 PMWellSpan Adams Health Center, Gettysburg, PAPaula Chaplin, 717-337-4407pchaplin@wellspan.orgFrederick County Parkinson’s Early Onset or NewlyDiagnosed Community Support Group3rd SaturdayTime and Location VariesDeb Bergstrom, 301-712-5381bergstromdf@gmail.comCross Keys Parkinson’s Support Group3rd Thursday @ 2:15 PMCross Keys Village, New Oxford, PADaune Wynn, 717-495-5671wynn574@crosskeysvillage.netOTHER EVENTS: Thursday, December 15, 2016, Noon – 1:00 PM Memory Café: Free lunch and meeting at Ledo Pizza Restaurant located at1423 Dual Highway, Hagerstown. Contact David Kukor for information and reservations at 301-639-3166 or dkukor@ahcglobal.com. Monday, December 19, 2016, 8:30 – 10:00 AM, Caregivers’ Breakfast: Hagerstown Family Diner, Hagerstown, MD. ContactArt Guyer for information at 4Parkinsons@gmail.com or 240-625-2722. Thursday, January 5, 2017, 11:45 AM, Hagerstown Parkinson’s Support Group Meeting: Breakout Sessions, Patients andCaregivers Monday, January 16, 2017, 8:30 – 10:00 AM, Caregivers’ Breakfast: Hagerstown Family Diner, Hagerstown, MD. Contact ArtGuyer for information at 4Parkinsons@gmail.com or 240-625-2722. Thursday, January 26, 2017, Noon – 1:00 PM Memory Café: Free lunch and meeting at Ledo Pizza Restaurant located at1423 Dual Highway, Hagerstown. Contact David Kukor for information and reservations at 301-639-3166 or dkukor@ahcglobal.com. Thursday, February 2, 2017, 11:45 AM, Hagerstown Parkinson’s Support Group Meeting: Daniel Quirk, Regional Director ofFOX Rehabilitation.7

The Hagerstown Parkinson’s Support GroupHagerstown, MD and the Four-State AreaMonthly NewsletterJanuary 2017 Monday, February 20, 2017, 8:30 – 10:00 AM, Caregivers’ Breakfast: Hagerstown Family Diner, Hagerstown, MD. ContactArt Guyer for information at 4Parkinsons@gmail.com or 240-625-2722. Thursday, February 23, 2017, Noon – 1:00 PM Memory Café: Free lunch and meeting at Ledo Pizza Restaurant located at1423 Dual Highway, Hagerstown. Contact David Kukor for information and reservations at 301-639-3166 or dkukor@ahcglobal.com. Thursday, March 2, 2017, 11:45 AM, Hagerstown Parkinson’s Support Group Meeting: Jaclyn Garrish, MS, CCC/SLP,Speech-Language Pathologist, Total Rehab. Monday, March 20, 2017, 8:30 – 10:00 AM, Caregivers’ Breakfast: Hagerstown Family Diner, Hagerstown, MD. Contact ArtGuyer for information at 4Parkinsons@gmail.com or 240-625-2722. Thursday, March 23, 2017, Noon – 1:00 PM Memory Café: Free lunch and meeting at Ledo Pizza Restaurant located at 1423Dual Highway, Hagerstown. Contact David Kukor for information at 301-639-3166 or dkukor@ahcglobal.com. Thursday, April 6, 2017, 11:45 AM, Hagerstown Parkinson’s Support Group Meeting: Sandra Mertz, Lunbeck, NeurogenicOrthostatic Hypotension.MAKE TAX-DEDUCTIBLE DONATIONS TO THE HAGERSTOWN PARKINSON’S SUPPORT GROUPYou can make tax-deductible donations to our support group through the Maryland Association for Parkinson’s Support, Inc.(MAPS), a non-profit organization that can receive charitable contributions for Parkinson’s support groups, issue tax-deductible receipts to donors, and administer the funds to the designated group.To contribute, make your check payable to MAPS. On the memo line write Hagerstown PD Support. You must write that to assure the money goes into the account that MAPS has set up for our support group.Mail donations to: MAPS Treasurer, Box 450, Brooklandville, MD ------------------------------Cut Out and ------------------------------Hagerstown Parkinson’s Support Group2017 Speaker ScheduleDateSpeakerJanuary 5February 2March 2Patients & Caregivers Breakout SessionsDaniel Quirk, DPT, Regional Director, FOX RehabilitationJaclyn Garrish, MS, CCC/SLP, Speech-Language Pathologist, Total RehabApril 6Sandra Mertz, Lunbeck, Neurogenic Orthostatic HypotensionMay 4Patients & Caregivers Breakout SessionsJune 1Colleen Brown, RN, BSN, Clinical Specialist for Medtronic DBSJuly 6August 3September 7October 5TBDBecky Dunlop, RN, BSN, Johns Hopkins Movement Disorder CenterPatients & Caregivers Breakout SessionsDr. Stephen Ryan, Physical TherapistNovember 2Dr. Kelly Mills, Movement Disorder Specialist, Johns HopkinsDecember 7Christmas Party -- No Speaker8

with a Christmas Family Feud Game based on the popular TV game show. Everyone enjoyed the game and came up with a lot of “good answers” that amused all of us. Linda Wilke won the game by a large margin, scoring 660 points. For scoring the most points, Linda won a

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