Brain Injury And Stroke RESOURCE DIRECTORY

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Brain Injury and StrokeRESOURCE DIRECTORYMAINEFOURTH EDITIONThe Voice of Help, Hope, and Healing

Brain Injury Association of America, Maine Chapter60 Western Ave., Ste. 3, Box 221Augusta, ME 04330Website: www.biausa.org/maineThe Maine Brain Injury and Stroke Resource Directory is intended to provide information andresources available to individuals with brain injuries or stroke. The fluid nature of services andservice providers makes it likely that contact information and service availability will change andthat some services and/or providers may not be included. It is the responsibility of the user to verifyand investigate services and providers to determine the best options for your individual situation.Brain Injury Association of America, Inc.Website: www.biausa.orgNational Brain Injury Information Center: 1-800-444-6443BIAA-Maine gratefully acknowledges partial support for the Maine Brain Injury and Stroke Resource Directory,Fourth Edition from Brain Injury Services, Office of Aging and Disability Services, Maine Department of Healthand Human Services.DisclaimerThe Brain Injury Association of America, Inc. (hereafter BIAA) and its Maine Chapter (hereafter BIAA-ME) have created this directory as aservice to those in need of brain injury information and services. This directory includes paid advertising. BIAA and BIAA-ME do not endorse,recommend or guarantee any services or service providers listed in this directory and are not liable or responsible for any claim, losses ordamages resulting from use of the agencies or services listed within this directory. The information contained in this directory is believed tobe accurate but is not guaranteed. All content is provided "as is" without any warranty, expressed or implied. BIAA and BIAA-ME disclaimsliability for any errors or omissions and disclaims any implied warranty or representation of accuracy or completeness in this directory.Copyright 2020 by Brain Injury Association of America, Inc. All rights reserved. Except as permitted under the United States CopyrightLaw of 1976, no part of this publication may be reproduced or distributed in any form or by any means, or stored in a database or retrievalsystem, without the written permission of the Brain Injury Association of America, Inc.2 – BRAIN INJURY AND STROKE RESOURCE DIRECTORY

The Voice of Help, Hope, and HealingTABLE OF CONTENTSThe Brain Injury Association of America –Maine Chapter (BIAA-ME). 4-5BIAA-ME Services and Support Maine Brain Injury Information CenterResource FacilitationSupport GroupsEducation and Information About Brain InjurySocial, Recreation, and Outreach ProgramsAdvocacyCommunity and Individual Events to Raise Awarenessand Funds for Brain InjuryAbout Brain Injury. 5-7Brain Injury Definitions Acquired Brain InjuryTraumatic Brain InjuryConcussionStrokeMaine Brain Injury Peer Mentoring and SupportGroups. 7-9Brain Injury Fundamentals. 9211 Maine.10Online Family Training.10Insurance and Financial Assistance.10-12Important Federal Insurance and FinancialAssistance Programs Affordable Care ActMedicareSocial Security IncomeSocial Security Administration Offices in MaineImportant State of Maine Insurance and FinancialAssistance Programs MaineCare – Health Insurance My Maine Connection Workers’ CompensationGuiding Principles When Selecting A Brain InjuryRehabilitation Program.12-14Brain Injury Medical, Rehabilitation, and CommunityPrograms.14-20Services for People who are Blind, Deaf, Have Visual orHearing Impairments Blind and Visually Impaired Services Deaf and Hard of Hearing ServicesBrain Injury Specialty Services and Professionals. 20-27Attorneys and Legal AssistanceChiropractic NeurologyConcussionCounseling ResourcesDriving Evaluation and ConsultantsNeurologic Music psychologistsPhysiatristsSpeech and Language TherapyVision ConsultantsState of Maine Brain Injury Agencies and Services. 27-35Maine Department of Heath and Human Services Office of Aging and Disability Services Brain Injury Waiver: Home and Community Based Services forAdults with Brain Injury (Section 18) Home and Community Based Services for Adults with OtherRelated Conditions (ORC) (Section 20) Skilled Nursing Facility Acquired Brain Injury ServicesOffice of Substance Abuse and Mental Health ServicesOther Important State Agencies and Services Services for Children Office of Special Services Children with Special Health NeedsAdult and Child Protective Services Adult Protective Services Hotline Child Protection HotlineState of Maine Aging and Disability Resource CentersState Prescription Drug Discount Programs Maine Low Cost Drug Programs for the Elderly and Disabledand Maine Rx PlusEmployment and Vocational Assistance Benefits Counseling ServicesClient Assistance ProgramOne-Stop Career CentersProtection and Advocacy for Beneficiaries of Social SecurityTicket to Work ProgramIndependent and Community Living Independent Living Services Program Homeward BoundAdvocacy Organizations.35-39Assistive Technology and Adaptive EquipmentCommunication Assistance ServicesCrisis Support and Services.39Community Action Agencies.40-41Employment.41Senior Community Services Employment ProgramHospitals in Maine.42-45Housing.45-46211 MaineLibrary erans Services.50-52Veterans Counseling/Mental HealthVA Maine Healthcare System Screening for TBI Togus VA Medical CenterBureau of Maine Veterans ServicesGoodwill Northern New England Job Connectionand Veterans Access FundMilitary OneSourceVet Center ProgramVeterans Sports and RecreationAppendix A.53-58Selecting and Monitoring Brain Injury ServicesAppendix B.59-60Guide to Selecting Legal RepresentationBRAIN INJURY AND STROKE RESOURCE DIRECTORY – 3

THE BRAIN INJURY ASSOCIATION OF AMERICA –MAINE CHAPTER (BIAA-ME)BIAA-ME serves people of all ages who havesustained a traumatic or acquired brain injury frommany causes, including but not limited to: Aneurysm and arteriovenous malformation (AVM)Brain Injury Association of America, Maine Chapter60 Western Ave., Ste. 3, Box 221Augusta, ME 04330E-mail: BIAMaine@biausa.orgWebsite: www.biausa.org/maineFor brain injury information and resources, contactBIAA’s Maine Brain Injury Information Center:Toll-free phone: 1-800-444-6443Monday to Friday, 9 a.m. to 5 p.m.E-mail: MaineBrainInjuryInfo@biausa.orgThe Brain Injury Association of America, Inc. (BIAA)is the country’s oldest and largest nationwidebrain injury advocacy organization. As the voiceof brain injury, BIAA works to advance awareness,research, treatment, and education to improve thequality of life for all people affected by brain injury.The Association is dedicated to increasing accessto quality health care and raising awareness andunderstanding of brain injury.BIAA’s Maine Chapter (BIAA-ME) is available toserve the more than 10,000 Mainers affected bybrain injury, their families, and the professionals whoprovide caring services after brain injury. Guided bya volunteer Advisory Board, BIAA-ME identifies theneeds of Mainers with brain injuries and their familiesand works to ensure that a wide range of servicesand supports are available in the state. BIAA-MEprovides advocacy, education and informationabout brain injury to all those in need. A freemonthly e-Newsletter published by BIAA-ME helpskeep Mainers informed about important issues andBIAA-ME events. Contact BIAA-ME to subscribe.4 – BRAIN INJURY AND STROKE RESOURCE DIRECTORY AnoxiaBrain ningitis, encephalitis, and infections of the brainOpioid and other substance overdosePoisoning/Neurotoxic injurySports injuryStrokeSurgeryBIAA-ME SERVICES AND SUPPORTMAINE BRAIN INJURYINFORMATION CENTERToll-free phone: 1-800-444-6443E-mail: MaineBrainInjuryInfo@biausa.orgBIAA-ME offers free personalized information,direction to available services, and supportthrough the Maine Brain Injury Information Center.A toll-free phone call connects persons with a braininjury, family members or friends, professionals,and the public with an experienced brain injuryspecialist. Inquiries can also be e-mailed to:MaineBrainInjuryInfo@biausa.org.RESOURCE FACILITATIONResource facilitation is more intensive than theinformation and resources provided through BIAA’sMaine Brain Injury Information Center. BIAA-ME’sresource facilitation services are personalized to each

The Voice of Help, Hope, and Healingindividual’s situation and uses a collaborative processthat involves participants (individuals with braininjury and their personal support systems) workingtogether with BIAA-ME facilitators (individuals whoprovide assistance in navigating systems) to achieveagreed upon goals.SUPPORT GROUPSBrain injury support groups exist throughout Maineand serve to help Mainers with brain injury and theirfamilies to know that they are not alone. Being partof a strong local support network makes a hugedifference in coping after you or a loved one sustainsa brain injury. BIAA-ME helps link people with thesupport groups that are available through the Mainebrain injury community. A specialist from BIAA-MEfrequently is a guest presenter at support groupsthroughout the state.EDUCATION AND INFORMATIONABOUT BRAIN INJURYBIAA-ME provides a wide variety of educationaland informative resources for persons affected bybrain injury and their families/caregivers includingan annual conference entitled Defining Momentsin Brain Injury, access to BIAA webinars, bookletsand brochures and more. BIAA-ME also providesoutreach to the 38 hospitals in Maine to assist themin helping patients make a smoother transition fromthe hospital.SOCIAL, RECREATION, ANDOUTREACH PROGRAMSBIAA-ME offers social and recreational programswhen community interest and resources permit.BIAA-ME participates in community health fairs andother outreach programs to help raise awareness ofbrain injury and the services available for Mainers. Fordetails and a current schedule, check the BIAA-MEwebsite at biausa.org/maine.ADVOCACYBIAA-ME offers advocacy on an individual basisthrough resource facilitation services to help personswith brain injury meet their needs in the community.BIAA-ME also fosters statewide advocacy to help thebrain injury community work together to advocatefor the services, supports and funding needed bypersons with brain injury and their families.COMMUNITY AND INDIVIDUALEVENTS TO RAISE AWARENESSAND FUNDS FOR BRAIN INJURYBIAA-ME plans community events such as Bowlingfor Brain InjurySM that offer individuals a way to helpto raise awareness of brain injury as well as fundsto support the services offered through BIAA-ME.Check out the event calendar at biausa.org/maine fordetails. If you are interested in holding an event toraise awareness and funds for brain injury in Maine,please e-mail development@biausa.org.ABOUT BRAIN INJURYBrain injury is a major cause of death and disability inthe United States. People who survive a brain injuryface effects lasting from a few days to disabilitiesthat last the rest of their lives. The severity ofdamage to the brain is a key factor in how a personwill be affected after brain injury. The severity of abrain injury is classified as mild, moderate or severebased in large part on whether there is a loss ofconsciousness and how long that lasts.Brain injury affects who we are, the way we think,act, and feel. It can change everything about us in amatter of seconds. The effects of a brain injury can beunpredictable, complex, and vary greatly from personto person; no two brain injuries are exactly the same.The effects of an injury depend on multiple factorsincluding cause, physical location, and severity.Changes can be temporary or permanent, causingimpairment or a complete inability to perform afunction. Each part of the brain serves a specificfunction and links with other parts of the brain toperform complex functions.Brain injury can result in physical impairments(e.g., speech, vision, hearing, headaches, paralysis,BRAIN INJURY AND STROKE RESOURCE DIRECTORY – 5

seizures, fatigue, and more), cognitive issues (likememory deficits, impaired concentration, slowedthinking, limited attention span, and impairments toperception, planning, writing, reading, and judgment),and emotional problems (such as mood swings,anxiety, depression, restlessness, lack of motivation,and difficulty controlling emotions).Regardless of the severity of a brain injury, the earlyhours, days and weeks after injury can be confusing.A “good” day of progress may be followed by a“down” day. Setbacks are common and do notnecessarily imply a permanent reversal. Individualswith brain injuries may not be fully aware of theimpact of his or her injuries. Recovery is often anunpredictable process involving time, specializedbrain injury therapies and services, and family/community support.After a brain injury, family and friends become anintegral part in the life-long journey of the survivor.Learning a new language filled with medical andrehabilitation terms is often necessary to understandwhat happened and what services are available andhow they help persons with brain injury recover.Digesting information on the outcome of the braininjury, making the right decisions for accuratetreatment for a successful recovery, acquiringbenefits, planning for the future, and accepting thisnew situation can be very stressful on all involved.The Maine Brain Injury and Stroke Directory listsresources available to Mainers who have experiencedbrain injury and their families to assist in navigatingthrough the maze of needed services.BRAIN INJURY DEFINITIONSACQUIRED BRAIN INJURYAn acquired brain injury (ABI) is an injury to the brain,which is not hereditary, congenital, degenerative,or induced by birth trauma. An acquired brain injuryis an injury to the brain that has occurred afterbirth. Common causes of ABI include stroke, neardrowning, hypoxic or anoxic brain injury, tumor,neurotoxins, electric shock or lightning strike.6 – BRAIN INJURY AND STROKE RESOURCE DIRECTORYTRAUMATIC BRAIN INJURYA traumatic brain injury (TBI) is defined as analteration in brain function, or other evidence of brainpathology, caused by an external force. Commoncauses of a TBI include gunshot wounds, motorvehicle crashes, sports injuries, assaults, and falls.CONCUSSIONA concussion is a type of TBI caused by a bump,blow, or jolt to the head or by a hit to the body thatcauses the head and brain to move rapidly back andforth This sudden movement can cause the brainto bounce around or twist in the skull, stretchingand damaging the brain cells and creating chemicalchanges in the brain.A concussion may be called a mild traumatic braininjury because concussions are usually not lifethreatening. Even so, the effects of a concussioncan be serious. Concussions can occur in anysport or recreational activity, from falls or otheractivities where a bump, blow or jolt to the headoccurs. Concussion may or may not involve loss ofconsciousness, can result in memory loss for eventsimmediately before or after trauma, and can resultin neurological deficits that may or may not betransient.Concussion is not always recognized as a brain injury.It is not always diagnosed and subsequent problemsthat a person may have are not always associatedwith the concussion.STROKEA stroke occurs when blood flow to the brain isinterrupted and the brain does not get the oxygen itneeds, often with devastating consequences. A strokemay be hemorrhagic, caused by a burst blood vesselin the brain, or ischemic, caused by a blood clot thatblocks blood flow to part of the brain.Some people experience TIAs (transient ischemicattacks) or “mini-strokes” that result from atemporary blood clot. A TIA is often a warning signthat a stroke is likely to occur and should be takenseriously. While a stroke is most common in older

The Voice of Help, Hope, and Healingadults, children and young adults also experiencestrokes. The severity of a stroke is often assessedusing the National Institutes of Health (NIH)Stroke Scale.MAINE BRAIN INJURYPEER MENTORING ANDSUPPORT GROUPSSupport groups are a great resource for personswith brain injury, family members and caregivers toshare with and learn from others who face similarchallenges. Each support group is different becauseit serves to meet the needs of those participatingat any given time. Support groups may includepresentations about various aspects of brain injury,opportunities to share experiences and get supportand suggestions from others in the group, social orrecreational activities, and more.Please note that contacts, dates and times frequentlychange; please check the BIAA-ME website atbiausa.org/maine to check for changes. Werecommend you reach out to the group facilitatorto confirm details prior to attending a group meetingfor the first time.PEER MENTORINGBrain Injury VoicesSurvivor volunteer group offeringpeer mentoring services.Phone: 207-200-4210Website: www.braininjuryvoices.orgSUPPORT GROUPSAUGUSTAMaine General Medical Center35 Medical Center ParkwayAugusta, ME 04330When: Third Wednesday of the month, 3-4 p.m.Contact: Lee Glynn, 207-215-7064 orWLFGRP@aol.comAUGUSTA – BRAIN TUMORKelly's Cause for Brain TumorsMaine General Medical Center35 Medical Center ParkwayAugusta, ME 04330When: Meets 4 times per year,Wednesdays, 6-8 p.m.Contact: Kelly Theberge, 207-215-4817 orkellyscause@hotmail.comBOOTHBAY HARBORLincolnHealth St. Andrews Campus6 St. Andrews Ln.Boothbay Harbor, ME 04538When: Second Tuesday of the month, 6-7:30 p.m.Contact: Tom Wilson, 207-315-6365 ormortomcat@adelphia.netBREWER – STROKEMachias Savings Bank Conference Room581 Wilson St.Brewer, ME 04412When: Meets monthly (dates/times vary)Contact: Angela Wheelden, 207-973-8278 orawheelden@northernlight.orgBRUNSWICKMid Coast Hospital123 Medical Center Dr.Brunswick, ME 04011When: First Friday of the month, 1-3 p.m.in the Community RoomContact: Elizabeth Hyde, 207-373-6175

The Brain Injury Association of America, Inc. (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization. As the voice of brain injury, BIAA works to advance awareness, research, treatment, and education to improve the quality of life for all people affected by brain injury.

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