World Health Organization – Health Data Standards And .

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World Health Organization – Health Data Standards and InformaticsFebruary 2016ICD-11 UpdateRecommendations from theJLMMS Task Force Co-ChairsPlanning Meeting(January 2016)Message from the Director As the ICD-11 Revision Project moves into Phase2 of development, many actions are underway,with new faces in the team and changes inproject management and leadership.I am happy to report that since the lastnewsletter: around 4500 proposals have now beenprocessed in the ICD-11 Foundation; substantial technical work is underway toproduce the ICD-11 for Mortality andMorbidity Statistics; a new Roadmap for the ICD-11 has beenprepared, adapted to suit the milestonesneeded for 2016; and planning work is well underway for the ICDRevision Conference in Tokyo, Japan,October 2016.These actions take us closer to realizing thecompletion for ICD-11.The ICD-11 continues to be supported by abroad range of stakeholders, evident in thecontinued commitment and support of the RSGSEG, the JLMMS Task Force and the WHO-FICCouncil and network. The advisory function is avaluable contribution to the ICD-11development. For example, in January 2016, aplanning meeting with the JLMMS Task ForceCo-Chairs helped guide the work needed forICD-11, with recommendations for WHO asnoted below.- Dr Ties Boerma, Director, Information,Evidence, and ResearchA primary goal of the January planning meeting was toensure a common understanding of the work to be doneand how we will do it given the large volume but shorttimeline and limited resources.WHO is expected to deliver to the WHA, with the JTF’sassistance, a classification suitable for internationalmortality and morbidity statistics whichbuilds on and has substantial backwardcomparability with ICD-10; differs from ICD-10 where justified by newknowledge, changes in mortality or morbidity andchanged user requirements and in order to remedytechnical deficiencies in ICD-10; is developed in a way that takes advantage ofdevelopments in information technology so as tofacilitate its use and maintenance; is designed to be, or is a suitable basis for, clinicalmodifications that may be developed by someMember States; and which is expected to be accompanied in future byspecialist classifications, based on the samefoundation and designed to serve special purposes. The recommendations also specify the state ofdevelopment of ICD-11 that was considered to benecessary before submission to the WHA.Prioritization is essential. The top priority is thecontent, meaning the codable entities, the informationassociated with each one, and the structure in whichthey sit. The task of getting a usable JLMMS out is justachievable and only if work is very efficient – nospinning wheels or re-hashing decisions once made.Focus must be on essential tasks.- Dr Stefanie Weber and Dr James Harrison, Co-Chairs

World Health Organization – Health Data Standards and InformaticsICD-11: Taking ShapeAdvances in Infectious DiseasesThe Infectious Diseases chapter has high significance.Efforts were made in ICD-11 to reorganize the chapterto be more consistent with a microbiological approach,but though the relevance of such an approach wasacknowledged, there were many concerns about theeffect on the statistical, as well as epidemiological andclinical, uses for which ICD is designed. In order to meetthe expectations and requirements of the JLMMS TaskForce and international stakeholders, a thorough reviewwas commissioned to evaluate the structure and makewhat changes were necessary to serve the users of ICD.This review has included the WHO team working closelywith two external experts for two week-long meetingsto identify and make necessary changes to the chapter.To date, progress on the chapter has included: Making the statistical organization of the chapter theprimary view. This section includes 22 blocks and willbe used for coding purposes.Updating additional options for chapter organization,such as by microbiological agent or for specificepidemiological purposes. These sections have 11code ranges designed for use as special tabulations.15 of the 20 blocks have been reviewed and revised inthe statistical view.5 of the 11 code ranges have been reviewed andrevised in the special tabulations.Revised blocks include intestinal infectious diseases,mycobacterial diseases, predominantly sexuallytransmitted diseases, malaria, HIV, viral hepatitis,certain zoonotic diseases, arthropod-borne viral fevers,viral haemorrhagic fevers, viral infections of the centralnervous system, viral infections characterized by skinand mucous membrane lesions, mycoses, helminthiasis,pediculosis, ascariasis and other infestations, andsequelae of infectious diseases. 6 specific issues were identified that will requireadditional, broader review.90 public proposals on Infectious Disease chapteritems remain pending while 103 have beenaddressed.February 2016ICD-11 Coding ToolThe ICD-11 Coding Tool is software to help the usersof ICD search and find categories within theclassification. The tool works using an incrementalsearching approach, meaning that the tool narrowsthe search constantly as the user continues to type. Itgenerates (and dynamically updates) three differentoutputs as the user types:Word ListThe first output is the word list. The system will try topredict the word being typed with each letter that isentered. Once the word has been completed, thesystem will show related keywords.Destination EntitiesThe second output is matched entities. This output issorted by how good the text entered matches a phrasein ICD. It is also grouped by the ICD hierarchy so thatif the search text matches a parent category andseveral children, they will appear in a style that iseasy to visually identify the relationships.Chapter DistributionThis area gives a summary view of where the resultsare found in each chapter. The results can be filteredfurther by including or excluding chapters from theresults.The tool which is configured to use the JointLinearization for Mortality and Morbidity Statistics(JLMMS) can be found athttp://icd11ct.cloudapp.net/ct

World Health Organization – Health Data Standards and InformaticsFebruary 2016ICD-11: Foundation UpdateReconciling received proposals into the Foundation layer was identified as a priority for the WHO team at theSeptember 2015 meeting of the JLMMS Task Force. Since that meeting, more than 85% of the proposals have beenactioned. The table below shows the number of proposals for each chapter. Actioning includes implementation ofthe proposal in whole, or in part, requests for further information from the author, or rejection for varied reasons.The WHO team continues to work on the proposals received prior to December 31, 2015.In the first part of 2016, processing proposals will focus on those prioritized for JLMMS development. Otherproposals received after that date will be actioned in the next phase expected to take place November 2016.ChapterInfectious DiseasesNeoplasmsDiseases of blood and blood forming organsDisorders of the immune systemConditions related to sexual healthEndocrine, nutritional and metabolic diseasesMental and behavioural disordersSleep-wake disordersDiseases of the eye and adnexaDiseases of the nervous systemDiseases of the ear and mastoid processDiseases of the circulatory systemDiseases of the respiratory systemDiseases of the digestive systemDiseases of the skinDiseases of the musculoskeletal system and connective tissueDiseases of the genitourinary systemPregnancy, childbirth and the puerperiumCertain conditions originating in the perinatal and neonatal periodDevelopmental anomaliesSymptoms, signs, clinical forms and abnormal clinical andlaboratory findings, not elsewhere classified22 Injury, poisoning and certain other consequences of external causes23 External causes of morbidity and mortality24 Factors influencing health status and contact with health services25 Codes for special purposes26 Extension codesN/A - Proposals attached to deleted entities123456789101112131415161718192021Total received up to December 31, 256552024417Pending785

World Health Organization – Health Data Standards and InformaticsICD-11: 2015 Revision AdvisoryFebruary 2016Governance StructureMeeting Dates10-15 Feb – UNECA CRVS Workshop15-16 Feb – ICHI Planning Meeting15-16 March – MRG Mid-year Meeting17-18 March – MRG Table Group11-14 April – JLMMS Task Force (TBD)May – FDC Mid-year Meeting (TBD)20 May – Nordic DRG ICD-11 Meeting3-6 June – EIC Mid-year Meeting (TBD)3-6 June – FDRG Mid-year Meeting (TBD)Teleconference Dates11 Feb – WHO-FIC Council SEG18 Feb – JLMMS Task Force25 Feb – WHO-FIC Council3 March – Revision Steering Group SEG7 March – FDRG7 March – fTAG10 March – WHO-FIC Council SEG17 March – JLMMS Task Force24 March – Revision Steering Group (RSG)4 April – FDRG Co-Chairs4 April – fTAG Co-Chairs7 April – Revision Steering Group SEG14 April – WHO-FIC Council SEG21 April – JLMMS Task Force28 April – WHO-FIC Council2 May – FDRG Co-Chairs2 May – fTAG Co-Chairs5 May – Revision Steering Group SEG12 May – WHO-FIC Council SEG19 May – JLMMS Task Force2 June – Revision Steering Group SEG6 June – FDRG9 June – WHO-FIC Council SEG16 June – JLMMS Task Force23 June – Revision Steering Group (RSG)27 June - fTAGRSG-SEGThe RSG-SEG advises on the high-level connectionswithin and outside ICD-11, and helps resolve possibleconflicts arising in the design of the JLMMS. The RSGSEG meets on a monthly basis by teleconference, withoccasional urgent meetings on an as-needed basis.This also includes ad hoc electronic communicationwhen necessary.JLMMS Task Force (JTF)The Joint Linearization for Mortality and MorbidityStatistics Task Force (JTF) is the steering group forJLMMS. The JTF provides strategic and technicaladvice to WHO for the finalization of the JLMMSdevelopment. The input to JLMMS will draw onscientific advice, where recommended by the JTF orWHO. Design of the JLMMS linearization will not besubject to alteration by the RSG.Revision Steering Group (RSG)In Phase 2 of the ICD-11 Revision, the RSG will serveas a forum for the bilateral exchange of informationand concerns of the TAG chairs representing themembership of TAGs, and dissemination of revision ormaintenance-related general information.Membership includes the RSG Chair, all Co-Chairs ofthe Topic Advisory Groups for ICD-11 Revision, and allTask Force Co-Chairs, as well as the WHO-FIC CouncilCo-Chairs, the chairs of URC the FDC, and otherCommittee and Reference Group Co-Chairs asindicated, and as listed online /. Thegroup will meet by teleconference on a quarterlybasis.Vertical Topic Advisory Groups (TAGs)Vertical TAGs have the role of scientific editorialboards, with responsibility to advise WHO on thescientific validity of content and relationships in theFoundation Component, upon request. This isdesigned for the maintenance of ICD-11.Cross-Cutting Topic Advisory Groups (TAGs)Cross-cutting TAGs provide expertise in codingpractice and guidelines, as well as classificationdevelopment and implementation, with responsibilityto advise WHO on the utility and quality of theclassification, particularly with regard to thestructure, upon request.

World Health Organization – Health Data Standards and InformaticsFebruary 2016The International Classification of Disease 11th Revision: Roadmap 2016-2018ICD-11 MMS : TechnicalDevelopment ICD-11 Foundation: Clinicaldetail and scientific input ICD-11 MMS: Tooling andImplementation Package Governance: KeyStakeholders DeliverablesMilestones 201620172018Technical Development and ReleaseCandidate VersionField testing andFirst UpdateTechnical Work Pre- and post- coordinationdevelopmentFinalization ICD-11 testing. Residualtechnical work (post-testing)Finalize post-coordination mechanismsFirst update, reference guide,paper index, from testing andtechnical work post-testing.TranslationsEdit content model,Tabulation list on iCATManage proposals, elements essential forICD-11 MMS, round 1Update content from proposals and broadenediting beyond ICD-11 MMSCoding scheme versioningCoding toolMulti-lingual platform Essential extension codes finalizationImplement coding notes for sanctioningContent updateContent update Update tooling: coding and multilingualtools, crosswalksPrepare IRIS links, and browser.Update tooling andimplementation package.Japan Conference CommitteeRevision Steering Group – SEGJoint Linearization for Mortality andMorbidity Statistics Task ForceWHO FIC networkWHO secretariatTask Force deliverables (2 meetings)ICD Revision Conference: ConferenceDocument ; Release candidate packageincluding V1.0 reference Guide, V1.0 paperindex, Browser, Coding Tool, multilingualplatformExecutive Board briefing May 2016ICD Revision Conference Oct 2016, TokyoJapan Revision Steering Group – SEGJoint Linearization for Mortality andMorbidity Statistics Task ForceWHO FIC networkWHO secretariat Implementation ToolsEssential postcoordination featuresand toolsFirst Update ICD-11 TechnicalPackageContent editing and cleaningReview of code lists, chapters, shoreline anddefinitionsFocused testing (line coding) New Governance structure forICD-11WHO FIC networkWHO secretariatRelease ICD 2018 update:December 2018

8 Sleep-wake disorders 2 1 1 9 Diseases of the eye and adnexa 117 93 24 10 Diseases of the nervous system 257 232 25 11 Diseases of the ear and mastoid process 22 21 1 12 Diseases of the circulatory system 107 93 14 13 Diseases of the respiratory system 107 95 12 14 Diseases of the digestive system 264 236 28 15 Diseases of the skin 341 284 57 .

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