Brain Injury & Stroke RESOURCE DIRECTORY

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Brain Injury & StrokeRESOURCE DIRECTORYMAINEThird EditionThe Voice of Help, Hope and Healing

THE BRAIN INJURY ASSOCIATION OF AMERICAMAINE CHAPTER (BIAA-ME)The Maine Brain Injury and Stroke Resource Directory is intended toprovide information and resources available to individuals with braininjuries or stroke. The fluid nature of services and service providersmakes it likely that contact information and service availability willchange and that some services and/or providers may not be included.It is the responsibility of the user to verify and investigate services andproviders to determine the best options for your individual situation.Brain Injury Association of America, Maine Chapter60 Western Ave., Ste. 3, Box 221Augusta, ME 04330www.biausa.org/maineFor brain injury information, personal assistance in identifying brain injury programsand related services and information about support groups, please contact theBIAA-Maine Brain Injury Information Center toll-free at: (800) 444-6443Brain Injury Association of America, Inc.1608 Spring Hill Rd., Ste. 110Vienna, VA 22182www.biausa.orgNational Brain Injury Information Center: (800) 444-6443Copyright 2019 by Brain Injury Association of America, Inc. All rights reserved. Except as permitted under the United States Copyright Law of 1976,no part of this publication may be reproduced or distributed in any form or by any means, or stored in a database or retrieval system, without thewritten permission of the Brain Injury Association of America, Inc.DisclaimerThe Brain Injury Association of America, Inc. (hereafter BIAA) and its Maine Chapter (hereafter BIAA-ME) have created this directory as a service to thosein need of brain injury information and services. This directory includes paid advertising. BIAA and BIAA-ME do not endorse, recommend or guaranteeany services or service providers listed in this directory and are not liable or responsible for any claim, losses or damages resulting from use of theagencies or services listed within this directory. The information contained in this directory is believed to be accurate but is not guaranteed. All contentis provided "as is" without any warranty, expressed or implied. BIAA and BIAA-ME disclaims liability for any errors or omissions and disclaims any impliedwarranty or representation of accuracy or completeness in this directory.2 – BRAIN INJURY AND STROKE RESOURCE DIRECTORY

The Voice of Help, Hope and HealingTABLE OF CONTENTSThe Brain Injury Association of America –Maine Chapter (BIAA-ME). 4-5BIAA-ME Services and Support Maine Brain Injury Information CenterResource FacilitationSupport GroupsEducation and Information about Brain InjurySocial, Recreation and Outreach ProgramsAdvocacyCommunity and Individual Events to Raise Awarenessand Funds for Brain InjuryAbout Brain Injury. 6-7Brain Injury Definitions Acquired Brain Injury (ABI)Traumatic Brain Injury (TBI)ConcussionStrokeMaine Brain Injury Support Groups. 7-9Brain Injury Fundamentals. 9Online Family Training. 9Insurance and Financial Assistance. 9-12Important Federal Insurance and FinancialAssistance Programs Affordable Care ActMedicareSocial Security IncomeSocial Security Administration Offices in MaineImportant State of Maine Insurance and FinancialAssistance Programs MaineCare – Health Insurance Maine My Connection Workers CompensationSelecting and Monitoring Brain Injury Services:Guiding Principles.12-13Brain Injury Medical, Rehabilitation and CommunityPrograms.14-20Services for People who are Blind, Deaf, have Visual orHearing Impairments Blind and Visually Impaired Services Deaf and Hard of Hearing ServicesBrain Injury Specialty Services and Professionals. 20-27AttorneysChiropractic NeurologyConcussionCounseling ResourcesDriving Evaluation and ConsultantsNaturopathsNeurologic Music psychologistsPhysiatristsSpeech and Language TherapyVision ConsultantsState of Maine Brain Injury Agencies and Services. 28-35Maine Department of Heath and Human Services Office of Aging & Disability Services Brain Injury Waiver: Home and Community Based Services forAdults with Brain Injury (Section 18) Home and Community Based Services for Adults with OtherRelated Conditions (ORC) (Section 21) Skilled Nursing Facility Acquired Brain Injury ServicesOther Important State Agencies and Services Services for Children Office of Special ServicesAdult and Child Protective Services Adult Protective Services Hotline Child Protection – Child Abuse HotlineState of Maine Aging and Disability Resource CentersState Prescription Drug Discount Programs Maine Low Cost Drug Programs for the Elderly and Disabledand Maine Rx PlusEmployment and Vocational Assistance Client Assistance Program One-Stop Career Centers Ticket to Work ProgramIndependent and Community LivingIndependent Living Services ProgramHomeward BoundAdvocacy and Awareness Organizations.35-39Awareness OrganizationsAssistive Technology and Adaptive EquipmentCommunication Assistance ServicesCrisis Support and Services.40Community Action Agencies.40-42Employment.42Senior Community Services Employment ProgramHospitals in Maine.42-45Housing.46-47Library erans Services.50-52VA Maine Healthcare System Screening for Traumatic Brain Injury (TBI) Togus VA Medical CenterBureau of Maine Veterans ServicesGoodwill Northern New England Job Connectionand Veterans Access FundMilitary OneSourceVet Center ProgramVeterans Sports and RecreationAppendix A.53-58Selecting and Monitoring Brain Injury ServicesAppendix B.59-60Guide to Selecting Legal RepresentationBRAIN INJURY AND STROKE RESOURCE DIRECTORY – 3

THE BRAIN INJURY ASSOCIATION OF AMERICA –MAINE CHAPTER (BIAA-ME)BIAA-ME serves people of all ages who havesustained a traumatic or acquired brain injuryfrom many causes including but not limited to: Aneurysm and arteriovenous malformation (AVM)Brain Injury Association of America, Maine Chapter60 Western Ave., Ste. 3, Box 221Augusta, ME 04330E-mail: BIAMaine@biausa.orgWebsite: www.biausa.org/maineFor brain injury information and resource information,contact BIAA’s Maine Brain Injury Information Center:(800) 444-6443Monday to Friday, 9 a.m. to 5 p.m.E-mail: MaineBrainInjuryInfo@biausa.orgThe Brain Injury Association of America, Inc. (BIAA)is the country’s oldest and largest nationwidebrain injury advocacy organization. BIAA advancesawareness, research, treatment, and education andworks to improve the quality of life for all peopleaffected by brain injury. We are dedicated toincreasing access to quality health care and raisingawareness and understanding of brain injury. We arethe voice of brain injury.BIAA’s Maine Chapter (BIAA-ME) is available toserve the more than 10,000 Mainers affected bybrain injury, their families, and the professionals whoprovide caring services after brain injury. Guided bya volunteer Advisory Board, BIAA-ME identifies theneeds of Mainers with brain injuries and their familiesand works to ensure that a wide range of servicesand supports are available in the state. BIAA-MEprovides advocacy, education and information aboutbrain injury to all those in need. A free monthlye-Newsletter published by BIAA-ME helps keepMainers informed about important issues andBIAA-ME events. Contact BIAA-ME to subscribe.4 – BRAIN INJURY AND STROKE RESOURCE DIRECTORY AnoxiaBrain ningitis, encephalitis, and infections of the brainPoisoning/Neurotoxic injurySports injuryStrokeSurgeryBIAA-ME SERVICES AND SUPPORTMAINE BRAIN INJURYINFORMATION CENTERToll-free phone: (800) 444-6443E-mail: MaineBrainInjuryInfo@biausa.orgBIAA-ME offers free personalized information,direction to available services, and support throughthe Maine Brain Injury Information Center. A tollfree phone call connects persons with a braininjury, family members or friends, professionals,and the public with an experienced brain injuryspecialist. Inquiries can also be e-mailed to:MaineBrainInjuryInfo@biausa.org.RESOURCE FACILITATIONResource facilitation is more intensive than theinformation and resource information providedthrough BIAA’s Maine Brain Injury InformationCenter. BIAA-ME’s resource facilitation services

The Voice of Help, Hope and Healingare personalized to each individual’s situation anduses a collaborative process that involves participants(individuals with brain injury and their personalsupport systems) working together with BIAA-MEfacilitators (individuals who provide assistance innavigating systems) to achieve agreed upon goals.SUPPORT GROUPSBrain injury support groups exist throughout Maineand serve to help Mainers with brain injury and theirfamilies to know that they are not alone. Being partof a strong local support network makes a hugedifference in coping after you or a loved one sustainsa brain injury. BIAA-ME helps link people with thesupport groups that are available through the Mainebrain injury community. A specialist from BIAA-MEfrequently is a guest presenter at support groupsthroughout the state.BIAA-ME also fosters statewide advocacy to help thebrain injury community work together to advocatefor the services, supports and funding needed bypersons with brain injury and their families.COMMUNITY AND INDIVIDUALEVENTS TO RAISE AWARENESSAND FUNDS FOR BRAIN INJURYBIAA-ME plans community events, such as Bowlingfor Brain InjurySM, that offer individuals a way to helpto raise awareness of brain injury as well as funds tosupport the services offered through BIAA-ME. Checkout the event calendar at www.biausa.org/maine fordetails. If you are interested in holding an event toraise awareness and funds for brain injury in Maine,please e-mail development@biausa.org.EDUCATION AND INFORMATIONABOUT BRAIN INJURYBIAA-ME provides a wide variety of educationaland informative resources for persons affected bybrain injury and their families/caregivers includingan annual conference entitled Defining Momentsin Brain Injury, access to BIAA webinars, bookletsand brochures and more. BIAA-ME also providesoutreach to the 38 hospitals in Maine to assist themin helping patients make a smoother transition fromthe hospital.SOCIAL, RECREATION ANDOUTREACH PROGRAMSBIAA-ME offers social and recreational programswhen community interest and resources permit.BIAA-ME participates in community health fairs andother outreach programs to help raise awareness ofbrain injury and the services available for Mainers. Fordetails and a current schedule, check the BIAA-MEwebsite at www.biausa.org/maine.ADVOCACYBIAA-ME offers advocacy on an individual basisthrough resource facilitation services to help personswith brain injury meet their needs in the community.BRAIN INJURY AND STROKE RESOURCE DIRECTORY – 5

ABOUT BRAIN INJURYBrain injury is a major cause of death and disability inthe United States. People who survive a brain injuryface effects lasting from a few days to disabilitiesthat last the rest of their lives. The severity ofdamage to the brain is a key factor in how a personwill be affected after brain injury. The severity of abrain injury is classified as mild, moderate or severebased in large part on whether there is a loss ofconsciousness and how long that lasts.Brain injury affects who we are, the way we think,act, and feel. It can change everything about us in amatter of seconds. The effects of a brain injury can beunpredictable, complex, and vary greatly from personto person; no two brain injuries are exactly the same.The effects of an injury depend on multiple factorsincluding cause, physical location, and severity.Changes can be temporary or permanent, causingimpairment or a complete inability to perform afunction. Each part of the brain serves a specificfunction and links with other parts of the brain toperform complex functions.Brain injury can result in physical impairments(e.g. speech, vision, hearing, headaches, paralysis,seizures, fatigue and more), cognitive issues (likememory deficits, impaired concentration, slowedthinking, limited attention span, and impairments toperception, planning, writing, reading, and judgment),and emotional problems (such as mood swings,anxiety, depression, restlessness, lack of motivation,and difficulty controlling emotions).Regardless of the severity of a brain injury, the earlyhours, days and weeks after injury can be confusing.A “good” day of progress may be followed by a“down” day. Setbacks are common and do notnecessarily imply a permanent reversal. Individualswith brain injuries may not be fully aware of theimpact of his or her injuries. Recovery is often anunpredictable process involving time, specializedbrain injury therapies and services, and family/community support.6 – BRAIN INJURY AND STROKE RESOURCE DIRECTORYAfter a brain injury, family and friends become anintegral part in the life-long journey of the survivor.Learning a new language filled with medical andrehabilitation terms is often necessary to understandwhat happened and what services are available andhow they help persons with brain injury recover.Digesting information on the outcome of the braininjury, making the right decisions for accuratetreatment for a successful recovery, acquiringbenefits, planning for the future, and accepting thisnew situation can be very stressful on all involved.The Maine Brain Injury and Stroke Directory listsresources available to Mainers who have experiencedbrain injury and their families to assist in navigatingthrough the maze of needed services.BRAIN INJURY DEFINITIONSACQUIRED BRAIN INJURY (ABI)An acquired brain injury is an injury to the brain,which is not hereditary, congenital, degenerative, orinduced by birth trauma. An acquired brain injuryis an injury to the brain that has occurred afterbirth. Common causes of ABI include stroke, neardrowning, hypoxic or anoxic brain injury, tumor,neurotoxins, electric shock or lightning strike.TRAUMATIC BRAIN INJURY (TBI)A traumatic brain injury (TBI) is defined as analteration in brain function, or other evidence of brainpathology, caused by an external force. Commoncauses of a TBI include gunshot wounds, motorvehicle crashes, sports injuries, assaults, and falls.CONCUSSIONA concussion is a type of TBI caused by a bump,blow, or jolt to the head or by a hit to the body thatcauses the head and brain to move rapidly back andforth This sudden movement can cause the brainto bounce around or twist in the skull, stretchingand damaging the brain cells and creating chemicalchanges in the brain.

The Voice of Help, Hope and HealingA concussion may be called a mild traumatic braininjury because concussions are usually not lifethreatening. Even so, the effects of a concussioncan be serious. Concussions can occur in anysport or recreational activity, from falls or otheractivities where a bump, blow or jolt to the headoccurs. Concussion may or may not involve loss ofconsciousness, can result in memory loss for eventsimmediately before or after trauma, and can resultin neurological deficits that may or may not betransient.Concussion is not always recognized as a brain injury.It is not always diagnosed and subsequent problemsthat a person may have are not always associatedwith the concussion.STROKEA stroke occurs when blood flow to the brain isinterrupted and the brain does not get the oxygen itneeds, often with devastating consequences. A strokemay be hemorrhagic, caused by a burst blood vesselin the brain, or ischemic, caused by a blood clot thatblocks blood flow to part of the brain.Some people experience TIAs (transient ischemicattacks) or “mini-strokes” that result from a temporaryblood clot. A TIA is often a warning sign that a strokeis likely to occur and should be taken seriously. Whilea stroke is most common in older adults, children andyoung adults also experience strokes. The severity ofa stroke is often assessed using the National Institutesof Health (NIH) Stroke Scale.MAINE BRAIN INJURYSUPPORT GROUPSSupport groups are a great resource for personswith brain injury, family members and caregivers toshare with and learn from others who face similarchallenges. Each support group is different becauseit serves to meet the needs of those participatingat any given time. Support groups may includepresentations about various aspects of brain injury,opportunities to share experiences and get supportand suggestions from others in the group, social orrecreational activities, and more.Please note that contacts, dates and times frequentlychange; please check the BIAA-ME website atwww.biausa.org/maine or contact those listed belowto confirm the date, location and time of a group youare interested in.AUGUSTAMaine General Medical Center35 Medical Center Pkwy.Augusta, ME 04330Last Monday of the month, 6:30-8 p.m.Contact: Myra Champagne, (207) 582-6692AUGUSTA – BRAIN TUMORMaine General Medical Center35 Medical Center Pkwy.Augusta, ME 04330Meets four times per year on Wednesdays,6-8 p.m., Classroom #3Contacts: Kelly Theberge, (207) 215-4817BREWER – STROKEMachias Savings Bank Conference Room581 Wilson St.Brewer, ME 04412Meets monthly (dates and times vary)Contact: Angela Wheelden, (207) 973-8278 orawheelden@emhs.orgBRUNSWICKMid Coast Hospital123 Medical Center Dr.Brunswick, ME 04011First Friday of the month, 1-3 p.m.,Community RoomContact: Elizabeth Hyde, (207) 373-6175BRAIN INJURY AND STROKE RESOURCE DIRECTORY – 7

BRUNSWICK – APHASIAMid Coast Hospital123 Medical Center Dr.Brunswick, ME 04011First and third Tuesday of the month, 1-2:30 p.m.,Classroom #1Contact: Peggy Beaulieu, CCC-SLP, (207) 373-6175CAMDENCamden Public Library55 Main St.Camden, ME 04843First Wednesday of the month, 10 a.m. to 12 p.m.Contact: Carol Rohl, (207) 273-2090CENTRAL MAINE – SKOWHEGANSkowhegan Free Public Library9 Elm St.Skowhegan, ME 04976First Monday of the month, 3-4 p.m.Contact: Lee Glynn, (207) 215-7064 orWLFGRP@aol.comLEWISTONWestSide NeuroRehab Services618 Main St.Lewiston, ME 04240First Monday of the month, 6-8 p.m.Contact: (207) 795-6110ONLINE – APHASIAAphasia Communication GroupWhen: Every Thursday, 10-11:30 a.m.Contact: Dr. Judy Walker,judy.p.walker@maine.eduPORTLANDNew England Rehabilitation Ho

For brain injury information and resource information, contact BIAA’s Maine Brain Injury Information Center: (800) 444-6443 Monday to Friday, 9 a.m. to 5 p.m. E-mail: MaineBrainInjuryInfo@biausa.org The Brain Injury Association of America, Inc. (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization.

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