October 2013 Super-Utilizer Summit - Center For Health .

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October 2013Super-UtilizerThemes fromSummit CommonInnovative Complex CareManagement ProgramsBy: Dianne Hasselman, Center for Health Care StrategiesIn Brief: In many regions across the country, robust “super-utilizer” programs providing intensive outpatient care managementto high-need, high-cost patients are beginning to emerge. The term “super-utilizer” describes individuals whose complexphysical, behavioral, and social needs are not well met through the current fragmented health care system. As a result, theseindividuals often bounce from emergency department to emergency department, from inpatient admission to readmission orinstitutionalization —all costly, chaotic, and ineffective ways to provide care and improve patient outcomes.To explore how Medicaid could best advance models for this high-need group of patients, the Center for Health Care Strategies(CHCS), in partnership with the National Governors Association, hosted a Super-Utilizer Summit on February 11 and 12, 2013.The Summit brought together leaders from super-utilizer programs across the country, states, the Centers for Medicare &Medicaid Services, the Robert Wood Johnson Foundation (RWJF) Aligning Forces for Quality (AF4Q) alliances, health plans,and other key stakeholders to share strategies for changing how our health care system interacts with these high-need, highcost patients. The meeting was made possible through the generous support of RWJF and The Atlantic Philanthropies.This report presents the Summit’s common themes and key recommendations for building better systems of care forhigh utilizers. The appendices also include materials related to existing complex care management programs that can beeducational resources for states and policy-makers considering ways to implement, spread, and sustain such programs.IntroductionAs health care costs continue to consume an increasinglylarge proportion of state and federal budgets, payers,providers, and policy-makers—particularly those focusedon Medicaid, the newly eligible expansion population, andthe uninsured —are developing “super-utilizer” programswith a greater sense of urgency.Super-utilizer programs provide intensive outpatient caremanagement to patient subpopulations with very complexphysical, behavioral, and social needs. Because of theseneeds and a lack of coordinated care, these individualshave very high health care costs from avoidable utilizationof inpatient care and emergency room services. Lackinga medical “home,” super-utilizers typically bouncebetween emergency departments, inpatient admissions/readmissions, nursing homes and back again—all costly,chaotic, and ineffective ways to give and receive care.1Many super-utilizers either receive insurance throughMedicaid or are uninsured. Many super-utilizers havedisabilities that prevent them from working and areunlikely to have coverage through an employer. Many aresingle, childless adults and, as such, have been uninsuredin states that have not expanded Medicaid coverage in thepast. With the implementation of the Affordable CareAct (ACA), many more of them will become eligible forMedicaid coverage on January 1, 2014.In Medicaid overall, approximately five percent ofbeneficiaries drive more than 50 percent of total spending.1Eighty percent of high-cost beneficiaries have three ormore chronic conditions, and 60 percent have five or morechronic conditions.2 Many of these high-cost, complexbeneficiaries are super-utilizers. In addition, super-utilizersmay face an array of complex social challenges—joblessness,homelessness, substance abuse, etc.—and unstable orchaotic living conditions.2013 Super-Utilizer Summit: Common Themes from Innovative Complex Care Management Programs

Characteristics of the Top MostFrequent Emergency Department(ED) Utilizers in Washington Statein a 15-Month Timeframe:1. ED visits range from 78 to 1342. Inpatient admissions range from 0 to 22(average of 7)3. 9 out of 10 have an indication of a currentsubstance abuse problem4. 10 of 10 have an indication of mental illness5. 2 of 10 are currently homeless6. 3 of 10 are currently or have recently beenliving in a group care setting7. 1 of 10 is currently receiving in-home personal careSource: F ebruary 11, 2013 presentation by D. MancusoThe term super-utilizer became part of the commonvernacular in the last few years in part through agroundbreaking article by Dr. Atul Gawande on theCamden Coalition of Health Care Providers.3 Dr.Gawande wrote about Dr. Jeff Brenner’s “hot-spotting”work in Camden, New Jersey—how he used data tomap neighborhoods of high-cost and high-utilization ofmedical services. With support from local hospitals, Dr.Brenner would mine claims and other data to identifysuper-utilizers and provide high-touch complex caremanagement with his team. By helping manage the social,behavioral, and medical needs of these individuals, theCoalition has been successful in breaking the harmfuland costly cycle of inappropriate and costly emergencydepartment (ED) or inpatient admissions. The Coalition’swork in finding a more effective way to manage the careof the super-utilizers is not only a more patient-centeredapproach to health care, but it provides better qualitycare and promises to bend the cost trend. It leveragescommunity supports and institutions, such as churchesand faith-based organizations, as part of the solution. Thevalue placed by the Coalition on investment in humanrelationships with patients fundamentally changes andchallenges the common construct of how we think abouthealth care, wellness, and how people become healed.Across the country, other states and regions are lookingto learn from Camden’s super-utilizer approach in orderto develop new programs to manage care and controlcosts for high-need populations. This concept of complexcare management for high-cost, high-need individuals2is not new—programs like the Commonwealth CareAlliance in Massachusetts have been doing this for manyyears, and the Center for Health Care Strategies (CHCS)has been working with innovative states and deliverysystem partners to develop these models over much ofthe last decade. However, the dire budgetary situation hasheightened interest in super-utilizer programs.A number of such efforts are emerging across the county,and they are creating a growing body of evidence aroundeffective strategies. To capture and spread lessons fromexisting programs, the Robert Wood Johnson Foundation(RWJF) and The Atlantic Philanthropies supported anational Super-Utilizer Summit on February 11 and12, 2013 in Alexandria, Virginia. The Summit broughttogether a diverse mix of leaders from 14 states, superutilizer programs across the country, the Centers forMedicare & Medicaid Services (CMS), several RWJFAligning Forces for Quality (AF4Q) alliances, pilotsfrom CHCS’ Rethinking Care Program funded by KaiserPermanente, health plans, and other key stakeholders.This report captures themes discussed at the meeting andhighlights innovative strategies used by the super-utilizerprograms that presented at the Summit. It groups strategiesshared during the Summit into three areas:1. Data collection and analysis strategies to identifythe eligible population and target patient subgroupsthat are most likely to be impacted by complex caremanagement;2. Care teams and care management interventions; and3. Integration, replication, and sustainability of superutilizer programs in the delivery system.The report includes several appendices: Appendix A lists the participants and organizationsthat attended the Summit; Appendix B provides examples of key state and federallegislative language supporting delivery system andpayment reform efforts that facilitate complex caremanagement programs; Appendix C provides examples of resources and toolsfrom existing super-utilizer programs and complexcare management programs; and Appendix D provides a bibliography of relevantlegislative and programmatic references and resourcedocuments.Appendices B and C have been organized into the samethree areas created during the Summit: data collectionand analysis strategies; care teams and interventions; andintegration/replication/sustainability of programs. Thematerials in the appendices are intended as an educational2013 Super-Utilizer Summit: Common Themes from Innovative Complex Care Management Programs

resource for states and policy-makers consideringways to implement, spread, and sustain complex caremanagement programs in their communities.Exhibit 1: Per Capita Medicaid Costs: Implicationsof Behavioral Health Comorbidity4 40,000Data Collection and Analysis to IdentifyImpactable SubpopulationsTypes of DataThe Summit participants are consistently creative aboutthe types of data they pursue to understand theirpopulation and build their programs. Following is adiscussion of the ways the participants are using data.Claims DataThe programs represented at the Summit generally usehistorical claims data as a foundation to understand thesize and scope of super-utilization. Claims analysis is aniterative process and includes identifying areas of highcost and high utilization, and/or identifying groups ofrecipients with a high number of diagnoses. With thisinitial broad brush information, programs are able tofurther shape and define the target population. Forexample, Community Care of North Carolina (CCNC),which includes 14 regional networks that manage thecare of Medicaid beneficiaries, will analyze at least 12months of data in order to understand which chronicillness and mental health indicators are contributingto a high number of ED visits.Participating super-utilizer programs reported a highprevalence of behavioral health diagnoses in high-utilizersthrough claims data. Indeed per capita Medicaid costsincrease significantly with the addition of a mental healthdiagnosis, substance abuse diagnosis, or mental health plussubstance abuse diagnosis, as noted in Exhibit 1.Alternative Data SourcesBeyond claims data, super-utilizer programs that participatedin the Summit use a wide range of data to inform programdesign and patient interventions. R. Corey Waller, MD, theprogram director for a super-utilizer program at SpectrumHealth Medical Group’s Center for Integrated Medicine inWest Michigan, noted the danger of relying on only one3 35,840 30,000 24,693Annual Per Capita CostThe Summit participants unanimously agreed that access toreal-time information—such as notifications of ED visits orinpatient admissions—and a strong analytics team providea critical foundation for super-utilizer programs. One leaderreferred to data as “oxygen for our program.” Programsplace a high priority on developing a robust data repositorythat can be mined to identify groups of patients that mightrespond well to complex care management. Following arethe common themes and strategies from the meeting relatedto data analytics. 36,730 35,000 24,598 25,000 20,000 24,927 24,281 24,443 16,267 14,081 15,257 15,862 15,430 16,058 18,156 15,634 15,691 15,000 9,488 10,000 8,000 9,498 8,788 5,000 0Asthma and/orCOPDCongestive HeartFailureNo Mental Illness andNo Drug/AlcoholCoronary HeartDiseaseMental Illness andNo Drug/AlcoholDiabetesDrug/Alcohol andNo Mental IllnessHypertensionMental Illness andDrug/Alcoholtype of data—like claims or diagnosis—because it mightnot provide an accurate picture of the patient’s situation.Experience has taught him that “relying only on one typeof data makes you more vulnerable to inaccuracies.” Asan emergency room physician, Dr. Waller noted that thechaotic conditions of the ED and the frequent lack ofhistorical patient information can lead to inaccurate ormissed diagnoses.Examples of alternative data sources include real-timenotification of inpatient admissions, patient demographicfiles, patient assessments, data from electronic healthrecords (EHRs), information from conversations withpatients and families, and information gathered from thecare team. The Camden Coalition and two local hospitalsdeveloped an arrangement whereby the Coalition receivesan email of a daily list or “snapshot” of patients currentlyin the hospital with two or more inpatient admissionsand/or six or more ED visits in the last six months. TheCoalition team reviews the cases captured in this dailyadmission list to identify potential participants to recruitto its care management program. The Coalition also hasaccess to the EHRs of one of the hospitals, and as such, cangather additional information about identified patients.Programs also use assessments to gather invaluableinformation from patients. Assessments collect a rangeof information including the patient’s social supports, foodneeds, and jobs and housing situations, substance abusehabits, partners and living situation. This informationhelps the team paint a much more complete picture of thetarget subpopulations, their needs, and the opportunitiesto impact their care.Predictive ModelingPredictive modeling is a common tool used by superutilizer programs to identify who might be at risk for2013 Super-Utilizer Summit: Common Themes from Innovative Complex Care Management Programs

super-utilizing in the future. One program said they usepredictive modeling so that they are not “held hostagewaiting for claims to come down the road.” WashingtonState uses predictive modeling to begin to identify thetarget populations. Using its Health Service Encounteralgorithm, the state examines 15 months of integratedhealth care claims to determine future medical costs andinpatient risk scores. The state has found that conditionssuch as diabetes, cardiovascular disease, mental healthand substance abuse are common among the superutilizing subset of patients. It uses different approachesto further stratify subgroups for complex caremanagement including identifying individuals withextreme ED utilization (e.g., approximately 80 to 130ED visits in 15 months), high expected future medicalcosts (predicted by high utilization and costs in the past),high prospective inpatient risk scores, and significantgaps in care and quality indicators.Defining SubgroupsThrough data analysis, Summit participants discoveredthat super-utilizers are incredibly heterogeneous—thereis not one single profile for a super-utilizer but rathermany different subgroups. Programs use a variety ofdifferent definitions for super-utilizers, although commoncharacteristics include high ED use, inpatient admissions,readmissions, and poly-pharmacy.Washington’s Health Service EncounterRisk CriteriaPredictive modeling Past 15 months of integrated health careclaims determine future medical cost andinpatient risk scores High frequency conditions: mental health andsubstance abuse, diabetes, cardiovascular Minimum risk score in top 20% of expected futuremedical cost for Social Security Income (SSI)related populationCriteria based on long-term careassessment data Client lives alone High risk moods/behaviors Medication management risk Self-reported health rating is “fair” or “poor”Source: F ebruary 11, 2013 presentation by D. Mancuso4The Camden Coalition conducts a cluster analysis toidentify the various subpopulations. This involves sortingcases (usually by patient utilization history) into groups, orclusters, so that the degree of association is strong betweenpeople in the same cluster, and weak between membersin different ones. Some programs stratify the typologiesby the different social needs faced by the patients such ashomelessness, joblessness, and language preference—furtherindicating what interventions would be the most effective.Although the super-utilizer population is heterogeneous,the pilot programs did note a common thread across thesubpopulations: the prevalence of childhood trauma. Manycare management teams were working to understand andaddress the impact of early childhood trauma.Stratification of Eligible PopulationsOnce the eligible subpopulations are identified, theprograms identify which subgroups have the greatestpotential to achieve improved health outcomes andreductions in high-cost utilization from care managementinterventions. A program must generate a positive returnon investment in order to be sustainable, which meansthat limited resources must be targeted to individuals whooffer the best chance of reducing their super-utilizationbehavior. Programs participating at the Summit stressed theimportance of carefully choosing “who’s in and who’s out.”Examples of exclusion or “rule out” criteria include: Inpatient admissions related to pregnancy, oncology,trauma, or a surgical procedure for an acutecondition; Advanced age (e.g., greater than 80 years of age)and a dementia diagnosis; or Someone declining to participate in the super-utilizerprogram.Patient inclusion or exclusion criteria may also take intoaccount the skill set and experience of the care team.Finally, programs incorporate a “readiness to change”factor at an individual patient level, recognizing thatthere is a great likelihood of impact when the patient iswilling to make some changes. The Patient ActivationMeasure (PAM)5 is one example of a tool that can beused to help teams segment the patient population intolevels of activation in order to target limited outreach andengagement resources.An Iterative ProcessThe Summit participants stressed that assessing the eligiblepatient population is an iterative process—the care teamhas to keep revisiting the patients’ risk factors, which aredynamic and likely to change over time. Continuouslygathering information can help programs achieve greaterlevels of accuracy in their targeting and exclusion criteria.2013 Super-Utilizer Summit: Common Themes from Innovative Complex Care Management Programs

New York State Health HomeAnalytical ToolsMedicaid health homes, Section 2703 of the AffordableCare Act (ACA), give states the ability to pay for complexcare management/care transitions services for populationswith multiple chronic conditions and complex physical,behavioral health and social needs. Health homes can bevehicles for super-utilizer programs.New York Medicaid is using its health home programto better manage the care of its super-utilizers. NewYork’s Medicaid beneficiaries who are eligible for healthhomes are identified and assigned using a variety ofanalytical tools: Clinical Risk Groups (CRG)-BasedAttribution—Used for cohort selection; CRG-Based Acuity—Used for determiningpayment tiers; Predictive Model—Used for predicting futurenegative events; Ambulatory Connectivity Measure—Used for assigning priority; Provider Loyalty Model—Used for matchingto appropriate health home and to guideoutreach activity.Source: F ebruary 12, 2013 presentation by G. AllenOne program has a detailed system for tracking caremanagement team activities and their impact on thepatient’s social situation in its data warehouse. The programtracks how much of the care manager’s time is spentmaking calls, referrals, attending appointments, etc., foreach individual patient. This information is then assessed inrelation to whether or not there was a successful outcome,e.g., the patient ultimately got the job, or housing, or childcare. Essentially, the data is used to answer the question:what exactly does it take for the care team to make adifference in one person, and will that effort ultimatelygenerate a positive return on investment (ROI), in terms ofboth the care team’s time and financial resources?Care Management Teams and SuccessfulInterventionsIf data is considered oxygen for super-utilizer programs,the care management team and its interventions areconsidered the “secret sauce,” as described by many of the5Summit participants. Determining the right dose of theright intervention with the right individual at the right timein the right location is at the heart of successful superutilizer programs. Following are themes gleaned from theSummit participants regarding care management teams andintervention design.Care Team StructureThe programs noted that the care teams “reside” indif

3. 9 out of 10 have an indication of a current substance abuse problem 4. 10 of 10 have an indication of mental illness 5. 2 of 10 are currently homeless 6. 3 of 10 are currently or have recently been living in a group care setting 7. 1 of 10 is currently receiving in-home personal care Source: February 11, 2013 presentation by D. Mancuso

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