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Health Systemsin AfricaCommunity Perceptionsand PerspectivesThe Report of a Multi-Country StudylREGIONAL OFFICE FORAfrical

Health Systems in AfricaCommunity Perceptions and PerspectivesThe Report of a Multi-Country StudyJune 2012

This publication contains the report of an international study team on the perceptions and perspectives ofpopulations on the health systems in ten African countries and does not necessarily represent the decisions or thepolicies of the World Health Organization nor those of the governments concerned

Health Systems in AfricaCommunity Perceptions and PerspectivesThe Report of a Multi-Country StudyJune 2012

Published byThe World Health OrganizationRegional Office for AfricaBrazzavilleRepublic of Congo WHO Regional Office for Africa, 2012Publications of the World Health Organization enjoy copyright protection in accordance with the provisionsof Protocol 2 of the Universal Copyright Convention. All rights reserved. Copies of this publication may beobtained from the Library, WHO Regional Office for Africa, P.O. Box 6, Brazzaville, Republic of Congo (Tel: 47 241 39100; Fax: 47 241 39507; E-mail: afrobooks@afro.who.int). Requests for permission to reproduceor translate this publication – whether for sale or for non-commercial distribution – should be sent to thesame address.The designations employed and the presentation of the material in this publication do not imply theexpression of any opinion whatsoever on the part of the World Health Organization concerning the legalstatus of any country, territory, city or area or of its authorities, or concerning the delimitation of its frontiersor boundaries. Dotted lines on maps represent approximate border lines for which there may not yet be fullagreement.The mention of specific companies or or certain manufacturers’ products does not imply that they areendorsed or recommended by the World Health Organization in preference to others of a similar naturethat are not mentioned. Errors and omissions excepted, the names of proprietary products are distinguishedby initial capital letters.All reasonable precautions have been taken by the World Health Organization to verify the informationcontained in this publication. However, the published material is being distributed without warranty of anykind, either express or implied. The responsibility for the interpretation and use of the material lies with thereader. In no event shall the World Health Organization or its Regional Office for Africa be liable for damagesarising from its use.WHO/AFRO Library Cataloguing – in – Publication DataHealth Systems in Africa: Community Perceptions and Perspectives1. Health systems plans – organization and administration 2. Delivery of health care– organization and administration – trends 3. Socioeconomic factors 4. CommunityHealth Planning – trends 5. Community Health Workers – utilization 6. mAfricaI. World Health Organization. Regional Office for AfricaISBN: 978 929 023 2018(NLM Classification: WA 540 HA1)Typeset by AMA DataSet Limited, Preston, Lancashire, UKPrinted and bound by Charlesworth Press, Wakefield, UKiv

ContentsList of abbreviationsviiReport writing teamviiiForewordixAcknowledgementsxExecutive summaryxiChapter 1 Introduction1Chapter 2 Research Questions and Objectives3332.1 Overall research questions2.2 Research objectivesChapter 3 Methodology3.13.23.33.43.53.63.73.8Study design and methodsStudy sites and populationSamplingResearch instrumentsData analysisEthical considerationsThe study processStudy limitationsChapter 4 Results4.14.24.34.44.5Socio-demographic informationCommunity perceptions of health and health care deliveryExperience with health servicesCommunity perceptions of health care financingHealth system goals and social capital5555677889912303643Chapter 5 Discussion49Chapter 6 Conclusions57Chapter 7 Recommendations59Chapter 8 References61v

Health Systems in Africa: Community Perceptions and PerspectivesAnnexes65Annex 1:Definitions of terms65Annex 2:Distribution of mean age by site67Annex 3:Distribution of respondents who had ever attended school by sex67Annex 4:Proportion reporting diabetes as a common health problem per site68Annex 5:Common health problems of older persons by locality68Annex 6:Rating of involvement of communities in decision making by locality68Annex 7:Households needing health care by locality69Annex 8:Households needing health care by performance of district69Annex 9:Most common reasons why health care was sought by sub-region70Annex 10:Reimbursement of money paid for drugs in sub-region70Annex 11:Freedom of expression by loacility71Annex 12:Freedom of expression on health matters by sub-region71Annex 13:Location of the study sites71Annex 14:Research Team72vi

List of NGONIDPHCPMTCTRCSPSSSSATBTDRUNUNDPUNICEFWHOWHO Regional Office for AfricaAntenatal CareAfrican Programme for Onchocerciasis ControlAntiretroviralsBehaviour Change CommunicationBacille-Calmette-GuérinCentral African RepublicCommunity-Based Health InsuranceCommunity-Based OrganizationCommunity-Directed Treatment with IvermectinCivil Society OrganizationDemographic and Health SurveyDiphtheria Pertussis Tetanus (three doses)Democratic Republic of the CongoFocus Group DiscussionHead of HouseholdHuman Immunodeficiency Virus/Acquired Immunodeficiency SyndromeIn-depth InterviewIncome-generating ActivityInstitutional Review BoardLocal Government AreaMillennium Development Goals ReportMillennium Development GoalMemorandum of UnderstandingNoncommunicable DiseaseNon-governmental OrganizationNational Immunization DayPrimary Health CarePrevention of Mother-to-Child TransmissionRegional CommitteeStatistical Package for Social SciencesSub-Saharan AfricaTuberculosisUNICEF/UNDP/World Bank/WHO Special Programme for Research andTraining in Tropical DiseasesUnited NationsUnited Nations Development ProgrammeUnited Nations Children’s FundWorld Health Organizationvii

Report writing teamListed in alphabetical orderDr Uche AmazigoDr Mary Amuyunzu-NyamongoDr Tieman DiarraProf S. J. H. HendricksDr Tarcisse Elongo LokombeProf Paul-Samson Lusamba-DikassaProf Pascal LutumbaDr Leonard MukengeviiiProf Peter NdumbeDr Richard NdyomugyenyiDr Ngozi NjepuomeProf Martin Oka ObonoProf Joseph OkeibunorDr Luis G. SamboMs Yolande F. Longang TchounkeuMr Honorat G. M. Zouré.

ForewordDuring my address to the Sixty-fourth WorldHealth Assembly on 16th May 2011, I madethe point that all of our debates and discussionsin the health arena only have meaning whenthey improve the health of people and relievetheir suffering. I therefore urged delegates at theassembly to “remember the people”.I am pleased to commend the research teamthat sought the community perceptions and perspectives regarding health systems in the WHOAfrican Region in order to provide the evidencebase for more relevant, responsive and equitable services that meet people’s expectations andrespond adequately to their needs.The inequalities in the health status of people between and within countries have been acause for concern for health managers and providers over time. They led to the Alma-AtaDeclaration and its other reiterations such as theOuagadougou Declaration.When we compare the key health indicatorsin the world, for example those related to theMillennium Development Goals, we are struckwith the uneven distribution of health acrosscountries, within countries, and between population sub-groups, e.g. rich and poor, men andwomen. Further, there are differences betweenrural and urban areas in coverage of key healthservices such as skilled attendance at birth,immunization, and diagnosis and treatmentof common diseases. These inequities can beavoided through the adoption and implementation of relevant health and development policiesthat seek to minimize variations of health indicators associated with socioeconomic status.In essence, the attainment of an acceptablelevel of health requires, in addition to the healthsector, the participation of all related sectors aswell as the participation of the community in theplanning, organization, operation and monitoring of health delivery mechanisms. Since healthcare delivery mechanisms are intended for thecommunity, the non-participation of communities may result in irrelevant interventions.The results of this study are enlightening andrevealing. Communities had clear perceptionsof health and service delivery. They includedthe physical, mental, emotional, spiritual, socialand economic well-being in their definition ofhealth and underlined the necessity of our healthservices to be more responsive to all of the healthneeds of the community and not only to focuson some of them. These findings are worthy ofour attention.The respondents in this study also identifiedareas in which their participation could improvethe overall governance of the health deliverysystems. There is evidence that governanceand accountability issues, if properly addressed,would contribute to ensuring the achievementof positive outcomes of the different healthinterventions.I hope that the results of this study will bediscussed with all national stakeholders so thatpolicies and strategies are developed to respondappropriately to our people’s needs. This willlead us towards universal coverage and theattainment of the highest level of health that ourcountries and populations can afford.Dr Margaret ChanWHO Director-Generalix

AcknowledgementsThe research team is grateful to the ministriesof health and other national departments fortheir support including technical assistance,ethical approvals and permission to conduct thestudy in the ten countries: Algeria, Cameroon,Central African Republic, Democratic Republicof the Congo, Kenya, Niger, Nigeria, Senegal,South Africa and Uganda. It is indebted to leaders and managers of health institutions at thedifferent levels, frontline health workers, community members and their leaders in the variousstudy sites for their time and invaluable contributions that ensured the successful conduct ofthe study.xThe team thanks the research and academicinstitutions of the participating countries andtheir staff for in-country support, and the WHORegional Office for Africa and the AfricanProgramme for Onchocerciasis Control staff fortheir assistance.The research team is particularly grateful tothe ministers of health of the participating countries for their feedback on the briefing presentedby the study initiators (20 May 2012 in Geneva,Switzerland) and their consent to publish thestudy results.The WHO Regional Office for Africa andthe African Programme for OnchocerciasisControl provided the funding for this study.

Executive summary“In all hospitals, even in clinics, there is nolove. When you arrive at the hospital, they giveyou the patient form. He holds his pen. Youtell him: Papa, write, my child is dying; hewill answer, pay the money. He even crosseshis legs; you are anxious, fidgeting and hewill insist that you pay the money. Before themoney arrives, the child dies. There is nolove there. To use the hospital, it is money infull or you’ll die if you do not have the money”(Focus Group Discussion women).BACKGROUND1. Every decade since the 1940s, health policymakers, professionals and providers havelaunched new global and national initiativesin an attempt to address the health challengesand needs of populations, particularly thoseliving in sub-Saharan Africa. However, fewreforms have been successful.2. Recent debates have emphasized how tomake progress in strengthening the healthsystems, achieving universal health coverageand making progress towards meeting theMillennium Development Goals (MDGs).However, the perspectives of health professionals and providers fundamentally drive themajority of these debates with little attention to the end-users’ perceptions and views.While it remains essential in many sub-Saharan African countries to continue advocacyfor increased investments in health, there issubstantial untapped potential residing in thehuman capital and indigenous knowledge ofthe end-users.3. Improving the delivery capacity of nationalhealth services in Africa goes beyond declarations and increased financing. It alsorequires the input of communities. In viewof this, we engaged people in urban, periurban and rural areas in this study with theobjective of understanding their perceptionsand perspectives on health and health servicedelivery.4. The study sought to answer six researchquestions: (i) how are health and healthcare perceived by African communities; (ii)how is health care implemented in selectedurban, peri-urban and rural health districts;(iii) to what extent are existing health service delivery systems responsive to community needs; (iv) what is the existing potentialand capacity of communities to contributeto and engage in health service delivery; (v)how can people and groups in urban, periurban and rural communities be empoweredin community health development and howcan their capacity be increased; and (vi) whatare the perspectives of the communities onthe delivery of health care.5. This multi-country, multidisciplinary crosssectional study was therefore designed toinvestigate the issues articulated above witha view to gain in-depth understanding ofthe interface between communities andhealth services and yield new knowledge onways through which communities could beempowered to better contribute to healthxi

Health Systems in Africa: Community Perceptions and Perspectivesreforms together with other key stakeholders—governments, partners, private sector,among others.6. The study was conducted in 13 sites in tenAfrican countries selected through a multistage sampling process. First, the countries were clustered into three subregions(Central, East and Southern, and West)according to criteria of the WHO RegionalOffice for Africa. Within each subregion,three or four countries were selected on thebasis of demographic, language, geographicand existing capacity for research. The tencountries (Algeria, Cameroon, CentralAfrican Republic, Democratic Republic ofthe Congo, Kenya, Niger, Nigeria, Senegal,South Africa and Uganda) reflect a widevariety of health system models representedin the African Region. In addition, theyconstitute 26% of the 46 Member States andrepresent over 52% of the population of theRegion.7. In each study site, two health regions wererandomly selected in two stages based on themost recent demographic and health survey(DHS) reports as well as maternal, infant,neonatal mortality and immunization coverage data. The regions were grouped intotwo clusters of high-performing and lowperforming based on the health indicators.8. The study combined biomedical and socialscience research methods: cross-sectionalsurveys, qualitative inquiry and case studyresearch. Workshops were held to standardize the methodology and implementation ofthe study protocol to ensure the collectionof comparable data.9. The study was conducted in urban, periurban and rural areas. Eligible respondentswere randomly drawn from 24 communities in six health districts in each site (a totalof 240 communities). The study participantsper site ranged from 799 in CAR to 980 inKenya. The quantitative data were collectedusing an interviewer-administered household questionnaire. A total of 10 932 headsof households (HHHs) or their representatives were interviewed. The qualitative datacollection was based on in-depth interviews(IDIs) and focus group discussions (FGDs)with various stakeholders including community members, and health personnel atxiifrontline, district and national health provision levels. A total of 24 FGDs were conducted per study site giving a total of 312FGDs and 816 IDIs; 78 case studies wereconducted.KEY FINDINGS10. The mean age of the 10 932 respondents was43.9 years with a range between 38.7 and54.6 years. Males comprised 53.2% of thesample. The distribution of sampled households in urban, peri-urban and rural areaswas 33.8%, 33.1% and 33.1%, respectively.Most respondents had lived in the studyareas for more than 25 years.11. The study results provide important information on people’s perspectives of being ingood health and health system componentsthat require leveraging to better respond totheir expectations. The communities’ definitions of health include “physical, mental,emotional, spiritual, social and economicwell-being.” This definition, which goesbeyond the WHO definition of health1, isillustrated by the quote below:“What I think « agh » I would not bewrong, but the conceptualization I haveof good health should be spiritual as wellas physical. You can be physically in goodhealth but not well spiritually. The mostimportant thing is to be in good healthspiritually and physically” (FGD, maleadults, urban).12. About 23% of respondents mentioned theability to work (21.5%) as what constitutesgood health. Other characteristics of goodhealth mentioned included movement (19%)and engagement in vigorous activities (10.3%).According to most respondents, a goodhealth system should be people-centred (atthe individual and household levels), withpolicies, knowledge sharing, infrastructure,access to essential health services and strongcommunity involvement. The respondents’perspectives identify the key components of1 The World Health Organization defines healthas follows: “Health is a state of complete physical,mental, and social well-being and not merely theabsence of disease or infirmity” (source: .

Executive summarya health system to include: health and healthrelated policies, knowledge, medicines,health facilities, health personnel, delivery ofhealth services within a framework of leadership, governance, stewardship, and community involvement.13. The respondents recognized the high burden of communicable and noncommunicable diseases (NCDs) in their communities.Malaria was the most commonly reportedhealth problem in 11 of the 13 sites, theexceptions being in Algeria and SouthAfrica. Malaria and fever (mentioned by69% and 53% of the respondents, respectively) were the most common health problems of children. For older people, the mostcommonly reported health problems werearthritis (42%), followed by hypertension(41.3%), malaria and eye problems (each at35.9%). It is noteworthy that HIV/AIDSwas not among the most commonly citeddiseases across all the sites even in countrieswith known high prevalence.14. The level of awareness of NCDs was highacross the study sites, especially hypertension, diabetes and mental health problemsalbeit with some site differences. In the Eastand Southern subregion, 63.2% and 41.1%of respondents mentioned malaria andfever as common ailments. Hypertensionand diabetes received more mention in theEast and Southern subregion (26.8% and23.9%, respectively) and the West subregion (33.3% and 23.3%, respectively) compared to the Central subregion (22.5% and12.2%). Algeria, DRC West, Nigeria SouthEast, Senegal and South Africa reported highlevels of awareness of diabetes as a commonhealth problem.15. In all study sites, 85–90% of the respondents cited public sector health facilities as themain sources of health care. This was followed by private health facilities in urbanareas (55.9%) and traditional healers (17.9%).16. In urban areas, respondents mentioned nonpublic sector such as faith-based health facilities (14.7%) and informal medicine vendors(13.8%) as alternative sources of health care.In the West subregion, the use of faith-basedhealth facilities was mentioned by 5% ofrespondents compared to 22.3% in the Eastand Southern subregion and 17.5% in theCentral subregion. Informal medicine vendors were mentioned as important sourcesof health care in the Central subregion by18.1% of respondents and 15% of respondents in the West subregion. These findings have implications on the stewardship,regulatory, oversight and convening role ofgovernment in health system leadership andmanagement.17. Though public sector health facilities werecited by 90% of respondents as the mainsources of health care, the facilities were perceived and described by the people, in particular, those in the West subregion, “as centres for child immunization, and antenatalcare and delivery for women.” In the threesubregions, treatment of ailments was thecommonest service offered in public healthsector facilities as mentioned by 80.2% of therespondents in the West subregion, 79.9% inCentral, and 54% in the East and Southernsubregion. This was followed by services forchildren and women.18. On people’s rating of the responsiveness ofthe health services delivery, more than twothirds of the 10 932 respondents rated theservices at public sector facilities as inadequate with the only exception being SouthAfrica. The main reasons cited for the poorrating were: unavailability of drugs andequipment (39.1%); poor attitude of healthproviders (27.7%); and delays in the provision of care and long waiting time (13.1%).This perception is captured in the quotebelow:“Previously, when I arrived at the healthcentre, I was welcomed. Before asking mefor money they treated the child and onlyafter that they gave me the bill. Now,what we see, you bring a sick child, thechild is in coma but they ask you to bringmedicines, blood and transfusion supplies.By the time you go through all these stepsthe child’s condition deteriorates” (FGD,male adults, rural).19. In general, the main factors influencing therating of health facility services in the studywere: health personnel attitudes towardsusers; insufficiency of medicines and othersupplies; and the friendliness of the environment. There were differences by locationsand subregions. Concerns and dissatisfactionxiii

Health Systems in Africa: Community Perceptions and Perspectiveswere more in the Central subregion (69%)followed by the West subregion (67%).The people’s sentiments are captured in thequotes below:“The health workers are not friendly.They are rude to patients” (FGD, femaleadults, urban).“Only people who have relation(s) inthe health centre have the opportunityto have good care and are well received.Those who have no relations in the hospital are ignored and nobody cares aboutthem even if you are dying alone” (FGD,female youth, urban).20. An adult male described the environment inpublic sector health facilities as unfriendly tothe newborn, noting that:“A newborn baby will be delivered welland before day dawn about 10 mosquitoes have already bitten him and this isbefore he leaves the hospital. How do youexpect such a child to be fine? In such acase would you still want to go to the hospital or would you prefer another place?”(FGD, males, urban).21. In contrast, the respondents who reportedthat the services were good attributed thismainly to health personnel responsiveness tousers (42.7%), friendly environment (18.9%)and availability of medicines (14%).22. Across localities (whether urban, peri-urbanor rural), the responses present a description of a health system in which the greatestexpectations by the beneficiaries are medicines, facilities and human resources. Wherethe health providers were responsive, peoplealso expressed positive appreciation of theservice: “We see in our centre, health personnel walking long distances on foot to getmedicines” (Female FGD).23. There are ailments for which people preferto seek care from alternative sources due totheir cultures and beliefs. About 25% of therespondents mentioned fever, malaria andarthritis as health conditions not taken tothe nearest health facilities. Other ailmentscited included depression and respiratoryproblems.24. Traditional and spiritual healers constitutethe main providers of health care for ailments not taken to conventional health facilities. Of the respondents who mentionedxivtraditional healers as the main recipients ofailments which they do not take to the hospital, 67.1% were from peri-urban communities. Other providers of care mentionedspiritual healers (21.1%) and informal medicine vendors (16.2%).25. On access to health services, over 90% ofthe respondents knew where to seek healthcare. However, financial barrier was citedby 34.1% of the respondents as the mainconstraint to accessing health care. Otherconstraints included transport (11%), inadequate drugs (6.7%) and the perception thatthe health condition was not serious enough(5.4%). The study showed that 2.8% of therespondents were discouraged from seeking care in public sector health facilities asa result of the poor attitude of the healthworkers despite this being mentioned by27.7% of the respondents as one of the reasons for rating these facilities as poor.26. Three out of the ten participating countries have formal health insurance (Algeria,Cameroon and South Africa). The majorityof the respondents in the three subregionsdid not have health insurance and had limited reimbursement of the money they spenton treatment. About 12% of the respondents had health insurance in the Centralsubregion, 9.1% in the East and Southernsubregion and 2.5% in the West subregion.In CAR, respondents reported that the government, with resources from developmentpartners, provided subsidies, while in Senegalthe model was based on community financing. Exceptionally, in Algeria, the insurance companies provide 99.3% reimbursement for medicine for those in rural areas,96.4% for those in urban areas and 98.9%for those in peri-urban areas. Respondentsin some sites, particularly in South Africa,recognized access to free government healthservices. However, the overall proportion ofthe respondents who had free governmenthealth services was less than 14%.27. Communities contribute to health servicedelivery in numerous ways: providing assistance in managing and maintaining the healthfacilities (20.9%), appointing volunteers(10.7%) and training community volunteers(10.5%). In some study sites, communitiesbuilt the facilities (6.3%) or provided the

Executive summarynecessary labour for the construction (5.6%).Across localities, individuals’ contributionsto the delivery of community health serviceswere highest in caring for patients as cited bymore than 30% of respondents.28. The results show that across the subregions,individuals are contributing to health caredelivery. The highest proportion of thosemaking contributions to health care delivery (37.7%) was in rural areas, followed byperi-urban (36.4%) and urban (34.0%) areas.However, as many as 26.2% of the respondents did not know how or if their communities contributed to health care and 64% hadnever made contributions.29. It is noteworthy that a higher proportionof the respondents reported willingness tocontribute to health service delivery in thefuture: 70.9% in the West, 66.2% in Eastand Southern, and 62.3% in the Centralsubregion.30. Some of the respondents (40.5%) trusted thatthe government would do the right thingfor the communities all the time but 13.8%reported that they did not trust governmentto act in their interest. The statement belowcaptures the perspectives and some of thereasons people distrust governments:“We acquired land some time ago to buildresidential quarters for the health personnel so that they would work well. In fact,we had started moulding the blocks andpouring sand at the site. Then the localgovernment chairman, at that time, saidthat we should not build the residentialquarters because the government woulddo it. As we speak now, the quarters havenot been built and all the blocks and sandhave been wasted” (IDI, communityleader, peri-urban).31. The level of involvement of communitiesin decision-making about how health services could be delivered was rated as poor inEast and Southern (48.8%), West (44.0%)and Central subregion (41.8%). These proportions indicate the insufficient inclusionof community members in decision-makingwithin the health reform agenda.32. On ways to improve the delivery of essential health services, participants suggestedimproving the supply of medicines as themost significant aspect in which healthservices should be improved. This was followed by improved quality of health staffand the construction of health facilities. Theparticipants involved in the FGDs expressedsimilar views, as illustrated below:“You know why we are asking forthe staff to be increased? If you’rejust here at 11pm and you are sick, whatever the gravity of your illness, you willwait until the next day. There is nobodywho will be here to put a drip on youbecause they will say that there will be nopersonnel to take care of you during thenight. This is what they will tell you”(FGD male, peri-urban).CONCLUSIONS33. This study has shown that people’s perceptions of health and health service deliveryprovide valuable insights that could help toimprove health systems’ responsiveness andeffectiveness in the African Region. Theresults indicate that communities understand the dynamics and interactions thatoften influence the delivery of health careand the outcomes at the community level.The study provides useful insights into thedeterminants of health including the physical, mental, emotional, spiritual, social andeconomic well-being dimensions. Peopleare concerned about malaria, fever andNCDs that require additional investmentsat the district and community levels. Therespondents were equally concerned aboutthe shortage of medicines in the public sector health facilities and the poor attitude ofhealth personnel, in particular during emergency situations.34. In spite of government and partner effortsto strengthen health service provision inmost countries in the Region, the users stillfind the health care and facilities inadequate.The findings show that local and community health services are under-resourcedand require more investments to boost theircapacity to deliver quality care and increaseaccess for the poor and vulnerable membersof society including older persons. Servicesin district public sec

Annex 5: Common health problems of older persons by locality 68 Annex 6: Rating of involvement of communities in decision making by locality 68 Annex 7: Households needing health care by locality 69 Annex 8: Households needing health care by performance of district 69 Annex 9: Most common

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