Eating Disorders 101: Signs, Symptoms, Screening, And Referral - NCEED

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1/22/2020 Eating Disorders 101: Signs, Symptoms, Screening, and Referral Louise Metz, MD Internal Medicine Physician Mosaic Comprehensive Care Chapel Hill, NC Anna Bardone-Cone, PhD Bowman & Gordon Gray Distinguished Term Professor of Psychology, University of North Carolina at Chapel Hill; Director of Clinical Psychology 1 What is NCEED? National Center of Excellence for Eating Disorders (NCEED) Established thanks to a SAMHSA grant from the U.S. Dept. of Health and Human Services Primary mission: education and training – Healthcare professionals – Public stakeholders Web-based platform in development—sign up to stay informed! www.nceedus.org 1

1/22/2020 www.nceedus.org 3 Goals Describe DSM-5 eating disorder (ED) diagnoses Identify evidence-based screening measures for eating disorders Review evidence-based practices for an initial medical work-up following a positive screen Recommend ways to approach patients you have concerns about & provide referrals 4 2

1/22/2020 Goals Describe DSM-5 eating disorder (ED) diagnoses Identify evidence-based screening measures for eating disorders Review evidence-based practices for an initial medical work-up following a positive screen Recommend ways to approach patients you have concerns about & provide referrals 5 Anorexia Nervosa (AN) Diagnostic criteria: - restricted dietary intake leading to significantly low weight for age, height, sex, & developmental trajectory - intense fear of gaining weight or becoming fat (or behavior interfering with weight gain) despite low weight - disturbed body perception OR self-evaluation overly due to weight/shape OR persistent lack of recognition of seriousness of low weight Subtypes: Restricting; Binge-eating/Purging 6 3

1/22/2020 Bulimia Nervosa (BN) Diagnostic criteria: - recurrent episodes of objective binge eating & inappropriate compensatory behaviors intended to prevent weight gain - on average, at least 1x/wk for 3 months - self-evaluation overly due to weight/shape - does not occur solely in the context of AN https://www.youtube.com/watch?v STkBb9mo0fQ 7 Objective Binge Eating, Compensatory Behaviors Binge sense of lack of control over eating during the episode unusually large amount of food discrete period of time (e.g., within 2 hours) Compensatory behaviors Ex, self-induced vomiting, laxatives, diuretics, fasting, excessive exercise 8 4

1/22/2020 Binge-Eating Disorder (BED) - recurrent episodes of objective binge eating - on average, at least 1x/wk for 3 months - absence of regular inappropriate compensatory behaviors - 3 of the following: eating more rapidly than normal; eating until uncomfortably full; eating large amounts when not hungry; eating alone because embarrassed; feeling disgusted with self, depressed, guilty after binge 9 Anorexia Nervosa Bulimia Nervosa Binge Eating Disorder Lifetime prevalence (for females) 1% 2% 3-4% Age of onset early-to-late adolescence mid-adolescence to young adulthood adolescence or young adulthood Gender more females more females more females, fairly balanced Comorbidity anxiety, depression, anxiety, depression, trauma (for binge/ substance use purge subtype) disorders, trauma Race, ethnicity anxiety, depression, substance use disorders, trauma all races and ethnicities 10 5

1/22/2020 Avoidant/Restrictive Food Intake Disorder (ARFID) Diagnostic criteria: - eating/feeding disturbance(e.g., lack of interest in food; food avoidance due to sensory characteristics) associated with 1 of the following: - significant weight loss or failure to achieve expected weight gain (for children) - significant nutritional deficiency - dependence on enteral feeding or oral nutritional supplements - marked interference in psychosocial functioning - unlike AN, no significant distress about weight/shape - not explained by lack of available food or a culturally sanctioned practice - Note: ARFID most commonly develops in infancy/childhood & can persist into adulthood 11 Other Specified Feeding or Eating Disorder (OSFED) Examples: Atypical anorexia nervosa – all criteria but, despite significant weight loss, not underweight Bulimia nervosa or binge eating disorder of low frequency (e.g., 1x/wk) or limited duration (e.g., 3 months) Purging disorder – recurrent purging behavior to influence weight/shape in the absence of binge eating 12 6

1/22/2020 Warning Signs and Symptoms Preoccupation with food, eating, calories – Often cooking/baking, but refusing to eat – Watching cooking shows – Counts calories obsessively Reluctance to eat with others – Frequently saying, “I’ve already eaten.” – Bringing own food to meal outings 13 Warning Signs and Symptoms Food rituals – Cutting food into small pieces – Pushing food around the plate – Excessive use of condiments Secretive behavior related to eating – Food missing – Wrappers in car, bedroom – Regularly using the bathroom shortly after eating (to vomit) 14 7

1/22/2020 Warning Signs and Symptoms Weight and shape concerns – Frequent self-weighing – Wearing baggy clothes to hide shape – Scrutinizing shape in mirror – Body checking 15 What Do EDs “Look Like”? What: Eating pathology is a spectrum Who: Eating disorder stereotypes are misleading Eating disorders affect: – males – racial/ethnic minorities – individuals with low SES – e.g., living with food insecurity – sexual and gender minorities “Marginalized Voices” from NEDA: https://youtu.be/OU768PVZvgY 16 8

1/22/2020 Biopsychosocial Model of Eating Disorders Biology Dieting Genetics Physical changes Puberty/Menopause Brain Chemicals Psychology Stressful events Coping skills Identify/self‐image Personality (e.g., perfectionism, impulsivity) Anxiety Depression Social/environment Cultural factors Pressure from: family, peer, media Media/social media messages about appearance 17 Goals Describe DSM-5 eating disorder (ED) diagnoses Identify evidence-based screening measures for eating disorders Review evidence-based practices for an initial medical work-up following a positive screen Recommend ways to approach patients you have concerns about & provide referrals 18 9

1/22/2020 Early Detection is Key! Patients rarely present directly for eating disorders care Patients may be secretive or ashamed Routine screening with PCP or mental health provider – Leveraging existing relationship – Avoiding judgment Early diagnosis and treatment better prognosis 19 Screening for Eating Disorders SCOFF Eating Disorder Screen for Primary Care (EDSPC) Screen for Disordered Eating (SDE) NEDA Screener -tool) 20 10

1/22/2020 SCOFF Questionnaire Do you make yourself Sick (vomit) because you feel uncomfortably full? Do you worry you have lost Control over how much you eat? Have you recently lost more than One stone (14 lbs) in a 3 month period? Do you believe yourself to be Fat when others say you are too thin? Would you say that Food dominates your life? 2 “Yes” responses positive screen (sens 86%, spec 83%) 21 Eating Disorder Screen for Primary Care Are you satisfied with your eating patterns? (“reversescored”) Do you ever eat in secret? Does your weight affect the way you feel about yourself? Have any members of your family suffered with an eating disorder? Do you currently suffer with or have you ever suffered in the past with an eating disorder? 2 “yes” responses positive screen (sens 97%, spec 40%) 22 11

1/22/2020 Screen for Disordered Eating Do you often feel the desire to eat when you are emotionally upset or stressed? Do you often feel that you can’t control what or how much you eat? Do you sometimes make yourself throw up (vomit) to control your weight? Are you often preoccupied with a desire to be thinner? Do you believe yourself to be fat when others say you are thin? 2 “yes” responses positive screen (sens 91%, spec 56%) 23 NEDA Online Screen www.nationaleatingdisorders.org/screening-tool 24 12

1/22/2020 NEDA Online Screen www.nationaleatingdisorders.org/screening-tool 25 Who Should Be Screened? All adolescents & adults as part of new patient visits and annual physical paperwork, and in particular: Adolescents (12-25 years) Athletes Patients with a family history of eating disorders Patients with trauma history Patients seeking help for weight loss or history of chronic dieting 26 13

1/22/2020 Who Should Be Screened? Patients with certain medical conditions: Diabetes mellitus, Type 1 and 2 Polycystic ovarian syndrome Irritable bowel syndrome, Chronic constipation Hypothalamic amenorrhea POTS (Postural orthostatic tachycardia syndrome) Autoimmune conditions Patients with psychiatric comorbidities: Mood disorders Anxiety disorders Substance use disorders 27 Goals Describe DSM-5 eating disorder (ED) diagnoses Identify evidence-based screening measures for eating disorders Review evidence-based practices for an initial medical work-up following a positive screen Recommend ways to approach patients you have concerns about & provide referrals 28 14

1/22/2020 Common Symptoms and Medical Complications Fatigue and malaise Temperature dysregulation – Cold/heat intolerance Cardiovascular – Dizziness, fainting, slow or fast heart rate, swelling Endocrine – Amenorrhea or irregular periods, infertility, osteoporosis, stress fractures 29 Common Symptoms and Medical Complications Gastrointestinal complaints – Constipation, heartburn, IBS, bloating Hematologic – Anemia, low white blood count Metabolic or electrolyte abnormalities – Low potassium, low sodium, urine ketones Vitamin deficiencies Cognitive symptoms 30 15

1/22/2020 Weight and ED Presentation Weight fluctuations Weight suppression Lack of weight gain or height growth in adolescents ED symptoms and behaviors can occur in individuals of any body size 31 Medical Assessment: Vitals Blood pressure, Heart rate, Temperature, Respirations, Oxygen saturation Orthostatic vital signs – Blood pressure and heart rate lying, sitting, and standing Height and weight – Blind weight in gown – Avoid documenting weight on after-visit summary printout or patient portal 32 16

1/22/2020 Medical Assessment: Exam Thorough physical examination in a gown Skin/hair Head, Eye, Ears, Nose, Throat Neck Cardiovascular Respiratory Abdominal Musculoskeletal Neurologic 33 Medical Assessment: Laboratory testing Blood testing Urine testing Blood counts Kidney tests/electrolytes Liver function tests Pancreatic enzymes Thyroid function tests Hormone levels Vitamin/mineral levels Urinalysis Urine pregnancy test Urine drug toxicology 34 17

1/22/2020 Medical Assessment: Testing Most patients: – EKG Some patients: – Echocardiogram – X-ray imaging – Bone density test 35 Goals Describe DSM-5 eating disorder (ED) diagnoses Identify evidence-based screening measures for eating disorders Review evidence-based practices for an initial medical work-up following a positive screen Recommend ways to approach patients you have concerns about & provide referrals 36 18

1/22/2020 Approaching a Patient – Do’s Inform the patient of their symptoms and why they concern you Provide information on harmful effects of eating disorders on physical health Inform them of available treatment options and that you are supportive Remind them of your confidentiality as their healthcare provider 37 Approaching a Patient – Don’ts DO NOT approach the topic in an open area with others around DO NOT use language that blames or shames (instead, use non-judgmental language) DO NOT give simple solutions “you just need to eat” DO NOT make any appearance-based comments 38 19

1/22/2020 Treatment Options Levels of care Inpatient (hospital-based; medically acute) Residential (less medically acute) Partial hospitalization/day treatment Intensive outpatient (3-7x/week) Outpatient ( 1x/week) APA Level of Care Guidelines for Management of Eating disorders: Guidelines on NEDA website, Yager et al APA Practice Guidelines 39 Outpatient treatment: Team Approach Referral to outpatient eating disorders specialists Team members Psychotherapist Registered dietitian Primary care provider Psychiatrist 40 20

1/22/2020 Treatment Options: Team Approach Nutritional counseling: Meal plans, use of food exchanges Intuitive eating Moderation/discontinuation of exercise 41 Treatment Options: Team Approach Psychotherapy: Cognitive Behavioral Therapy (CBT): Identifying, challenging, and changing maladaptive thoughts that often influence emotions and behavior; identifying and modifying behavioral patterns Family-based therapy: Parents/guardians deliver treatment Dialectical Behavior Therapy (DBT), Acceptance and Commitment Therapy (ACT), Interpersonal Psychotherapy (IPT) Group therapy 42 21

1/22/2020 Treatment Options: Team Approach Medical provider: Evaluation and management of medical complications Pharmacotherapy: Limited pharmacologic agents for EDs Treatment for comorbid psychiatric conditions 43 Providing Referrals Work with local centers and providers when possible – www.findedhelp.com Consistent communication is key! 44 22

1/22/2020 9 Truths About Eating Disorders Truth 1: Many people with eating disorders look healthy, yet may be extremely ill. Truth 2: Families are not to blame, and can be the patients’ and providers’ best allies in treatment. Truth 3: An eating disorder diagnosis is a health crisis that disrupts personal and family functioning. Truth 4: Eating disorders are not choices, but serious biologically influenced illnesses. 45 9 Truths About Eating Disorders Truth 5: Eating disorders affect people of all genders, ages, races, ethnicities, body shapes and weights, sexual orientations, and socioeconomic statuses. Truth 6: Eating disorders carry an increased risk for suicide and medical complications. Truth 7: Genes and environment play important roles in the development of eating disorders. 46 23

1/22/2020 9 Truths About Eating Disorders Truth 8: Genes alone do not predict who will develop eating disorders. Truth 9: Full recovery for an eating disorder is possible. Early detection and intervention are important. 47 References American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders 5th ed. Washington, DC: American Psychiatric Association; 2013 Balantekin KN, Birch LL, Savage JS. Eating in the absence of hunger during childhood predicts self-reported binge eating in adolescence. Eat Behav. 2017;24:7–10. doi:10.1016/j.eatbeh.2016.11.003 Becker CB, Middlemass K, Taylor B, Johnson C, Gomez F. Food insecurity and eating disorder pathology. Int J Eat Disord. 2017;50(9):1031-1040. doi: 10.1002/eat.22735 Bulik CM, Sullivan PF, Kendler KS. Genetic and environmental contributions to obesity and binge eating. Int J Eat Disord. 2003;33(3):293-298. doi:10.1002/eat.10140 Eating disorders: A Guide to Medical Care. AED Report 2016. 3rd edition. Fairburn CG, Doll HA, Welch SL, Hay PJ, Davies BA, O’Connor ME. Risk factors for binge eating disorder: a community-based, case-control study. Arch Gen Psych. 1998;55(5):425-432. doi: 10.1001/archpsyc.55.5.425 Garber, AK. Moving beyond “skinniness”: Presentation weight is not sufficient to assess malnutrition in patients with restrictive eating disorders across a range of body weights. J Adolesc Health. 2018;63(6):669-670. doi: 10.1016/j.jadohealth.2018.09.010. Graham et al. J Am Coll Health. A screening tool for detecting eating disorder risk and diagnostic symptoms among college-age women. 2019 May-Jun;67(4):357-366. doi: 10.1080/07448481.2018.1483936. Epub 2018 Oct 9. Grilo CM, Masheb RM. Childhood psychological, physical, and sexual maltreatment in outpatients with binge eating disorder: frequency and associations with gender, obesity, and eating-related psychopathology. Obes Res. 2001;9(5):320-325. doi: 10.1038/oby.2001.40 Harrington et al. Initial Evaluation and Treatment of Anorexia nervosa and Bulimia nervosa. Am Fam Physician. 2015. Jan 1;91(1):46-52. Herman BK, Deal LS, DiBenedetti DB, Nelson L, Fehnel SE, Brown TM. Development of the 7-Item Binge-Eating Disorder Screener (BEDS-7). Prim Care Companion CNS Disord. 2016;18(2) doi: 10.4088/PCC.15m01896 48 24

1/22/2020 References Hilbert A, Pike KM, Goldschmidt AB, et al. Risk factors across the eating disorders. Psychiatry Res. 2014;220(12):500-506. doi: 10.1016/j.psychres.2014.05.054. Kutz et al. J Gen Intern Med. Eating Disorder Screening: a Systematic Review and Meta-analysis of Diagnostic Test Characteristics of the SCOFF. 2019 Nov 8. doi: 10.1007/s11606-019-05478-6. Maguen S, Hebenstreit C, Li Y, et al. Screen for Disordered Eating: improving the accuracy of eating disorder screening in primary care. Gen Hosp Psychiatry. 2018;50:20-25. doi: 10.1016/j.genhosppsych.2017.09.004 Mehler, Philip and Arnold Anderson. Eating disorders: A Guide to Medical Care and Complications. Johns Hopkins Univ Press, 2017. Mitchell KS, Neale MC, Bulik C, et al. Binge eating disorder: a symptom-level investigation of genetic and environmental influences on liability [published correction appears in Psychol Med. 2010 Nov;40(11):19078]. Psychol Med. 2010;40(11):1899–1906. doi:10.1017/S0033291710000139 Morgan JF, Reid F, Lacey JH. The SCOFF questionnaire: a new screening tool for eating disorders. West J Med. 2000;172(3):164–165. doi:10.1136/ewjm.172.3.16 Puhl R, Suh Y. Health consequences of weight stigma: implications for obesity prevention and treatment. Curr Obes Rep. 2015;4(2):182-190. doi: 10.1007/s13679-015-0153-z Schaumberg K, Welch E, Breithaupt MA, et al. The science behind the Academy for Eating Disorders’ Nine Truths About Eating Disorders. Eur Eat Disord Rev. 2017;25(6):432-450. doi: 10.1002/erv.2553 Vartanian LR, Porter AM. Weight stigma and eating behavior: a review of the literature. Appetite. 2016;102:3-14. doi: 10.1016/j.appet.2016.01.034 Yager et al. Practice Guideline for the Treatment of Patients with Eating disorders. Third Edition. 2010. 49 Questions? nceedus@gmail.com 50 25

9 Truths About Eating Disorders Truth 1: Many people with eating disorders look healthy, yet may be extremely ill. Truth 2: Families are not to blame, and can be the patients' and providers' best allies in treatment. Truth 3: An eating disorder diagnosis is a health crisis that disrupts personal and family functioning. Truth 4: Eating .

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