TB WOMEN STRATEGIC PLAN 2021 – 2025

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TB WOMENSTRATEGIC PLAN2021 – 2025“A just and inclusive society, where women in all our diversityare empowered to realize a world free from TB”

TB WOMEN STRATEGIC PLAN 2021 – 20252TB Women Strategic Plan 2021-2025Copyright 2021 TB WomenFacebook: /TBWomenGlobalInstagram: /TBwomenglobalTwitter: @TBWomenGlobal

Table ofContentsAcronyms 4Acknowledgements 5Foreword 6Executive Summary 7CHAPTER 1Introduction, Contextand InstitutionalFramework91.1 Introduction 101.2 Functions & Mandate of TB Women 141.3 Governance and Management 15CHAPTER 2Strategic Direction162.1 Vision Statement 172.2 Mission Statement 172.3 Core Values 172.4 Strategic Pillars, Objectives, and Outputs 182.5 Rationale of Strategic Objectives and Action 20Table of ContentsTB WOMEN STRATEGIC PLAN 2021 – 2025@ TB WomenReferences 2933

TB WOMEN STRATEGIC PLAN 2021 – 2025AcronymsAcronyms4ACTAfrican Coalition of TB ActivistsACT! APActivists’ Coalition on TB Asia-PacificCHWCommunity Health Care WorkersCLMCommunity Led MonitoringCSEMCivil Society Engagement MechanismCSSCommunity Systems StrengtheningCRGCommunity, Rights, and GenderCOVID-19Coronavirus disease 2019CSCivil societyCGCommunity GroupsDRAF TBDynamique de la Réponse d’Afrique contre la TuberculoseGBVGender-based violenceGCTAGlobal Coalition of TB ActivistsGFATMThe Global Fund to fight AIDS, Tuberculosis and MalariaM&EMonitoring and evaluationMoHMinistry of HealthMoUMemorandum of UnderstandingNSPNational Strategic PlanNTPNational TB ProgrammeSDGsSustainable Development GoalSTPStop TB PartnershipTBECTB Europe CoalitionTBWTB WomenTBTuberculosisUHCUniversal Health CoverageUNHLMUnited Nations High Level Meeting on TBWHOWorld Health Organization

AcknowledgementsTB Women acknowledges the guidance of the interim leadership comprised of Maurine Murenga (Kenya),Thokozile Phiri Nkhoma (Malawi), Ani Hernasari (Indonesia), Meirinda Sebayang (Indonesia), Cintia Dantas(Brazil), Paula Rusu (Romania), Ida Savandogo (Burkina Faso), Dr. Santosh Kumar Giri (India), and Kate O’Brien(USA). Thank you all for sharing your valuable and diverse experiences which informed the development ofthis strategy. This team has been instrumental in driving the establishment of the organisation. Throughoutthe development of the Strategic Plan, they have guaranteed that their dedication to ensuring gendertransformation in the tuberculosis (TB) response is made a reality.We pay special thanks to the ‘peer gender expert reviewers’, including Anna Versfeld, Sophie Dilmitis, RD Marte,Ingrid Schoeman and Deliana Garcia whose technical inputs and advice – at truly short notice – shaped andenriched the content and structure of the Strategic Plan. We also acknowledge the Stop TB Partnership for thefinancial support to produce this Strategic Plan, James Malar for his invaluable inputs and technical review andRicarda Steele for reviewing, copy editing and design coordination, both from Stop TB Partnership Secretariat.We give a special thanks to Dr. Lucica Ditiu, our Special Advisor, for her guidance, advice, and support inshaping TB Women. We thank Lucica because not only has she meaningfully engaged TB affected communities,but Lucica also championed a human rights and gender responsive TB approach to programming at thecountry level. This is making a significant difference in finding people with TB in our communities and ensuringwe can overcome the legal, human rights and gender barriers to accessing services often experienced.AknowledgementsTB WOMEN STRATEGIC PLAN 2021 – 2025Lastly, we extend special appreciation to Olive Mumba for her dedication and commitment in the developmentof this Strategic Plan and defining our vision, mission, and objectives.5

ForewordWhat began as a side conversation in 2019 between a group of women, who are members of TBpeople, hasgrown and, with this Strategic Plan, now lays the foundation for a movement.The last few months have been quite engaging for the TB Women Interim Board as we discussed and agreed tothe network’s vision - to ensure a just and inclusive society, where women in all our diversity are empowered torealize a world free from TB - a vision which carries even greater weight in light of the COVID-19 pandemic andits impact on women, TB, health and socio-economic systems.To have a just and inclusive society, TB Women - a new network (2020) with women who have survived TB inthe forefront - will work towards empowering girls, boys, women and men to redress the power dynamics andstructures that serve to reinforce gendered inequalities, and to decrease TB stigma and other socioeconomicfactors with the aim of strengthening the TB response.The mandate involves strengthening the engagement, representation and voice of women TB survivors to form acoordinated global movement. TB Women will use key gender-transformative approaches with the aim of:a.Building a global movement of women in all their diversity committed to ending TB;b.Fostering critical examination of inequalities and gender roles, norms and dynamics that act as barriersto ending TB and playing a leadership role in developing interventions/ guidance to address barriers;c.Recognizing and strengthening positive norms, policies and strategies that support equality for anenabling environment that responds to TB; andd.Promoting the relative position of women, girls and marginalized groups and transforming theunderlying social structures, policies and broadly held social norms that perpetuate and legitimizegender inequalities.TB WOMEN STRATEGIC PLAN 2021 – 2025ForewordTB Women’s mandate will be guided by four key strategic objectives, including creating a conducive legaland policy environment, and capacitating communities. The network will identify key gender-related issuesand respond to this by advancing the gender advocacy agenda at local, national, and global levels throughresearch, capacity development and engagement of key TB affected communities. As a new network, TBWomen’s early efforts will be channelled towards developing its governance and management structures,policies and processes so as to ensure it is a viable network that is able to attract and retain partnerships.The current leadership will bring a management team on board that will support the network to reach itsobjectives and increase the network’s profile and visibility, strengthen relationships with key stakeholders andlink key leaders to the network. The technical management team will ensure it includes women from the TBcommunity to ensure the approach is bottom up.6It is with an immense sense of privilege and responsibility that TB Women adopts this significant mandate.We look ahead with vigour and commitment, guided by our Strategic Plan 2021 - 2025, and steadfast in ourcore values and principles, which are grounded in the realities of the communities we aim to serve. TB Womenreadily moves forward with direction from our interim leadership, informed by our focal points, inspired bycommunity partners, and supported, yet held accountable, by our Board, partners and broader stakeholders.We eagerly look forward to the next 5 years and to creating a women’s TB movement, strengthening TB gendertransformative responses, advancing human rights and ending TB by 2030!TB Women Interim Board8th March 2021International Women’s Day

Executive SummaryTB Women is a newly formed network comprised ofwomen leaders from across the globe, representingdifferent constituencies that have come together toprovide leadership, coordination, and respond toissues related to TB and gender equality. TB Women’smandate is two-fold:a.Build a movement and garner a collective voiceon TB and gender equalityb.Act as the global voice on women’sempowerment and evidence-based gendertransformative TB policy, programmingand representationTB Women’s vision is a just and inclusive society,where women in all our diversity(i) are empoweredto realize a world free from TB. In the context ofthe COVID-19 pandemic, where inequalities andmarginalisation have been heightened and programresources stretched and program reach restricted,this has never been more important8.TB Women’s mission is to build a coordinatedmovement for a gender transformative TB responsethrough women’s mobilization, empowerment,policy advocacy, innovation, evidence building andknowledge sharing.TB Women, as a global TB network of women in allour diversity, is committed to integrity, accountabilityand transparency and is a network that respectsinclusion and fosters solidarity through collaborationand partnerships whilst advocating for gender equity,mutual respect and confidentiality. As a network wefirmly believe that women’s rights are human rights,children’s rights are human rights, and transgenderrights are human rights and that the realisation ofthese rights, as is called for in the Deadly Divide: TBCommitments vs. TB Realities9 report, is essential toending TB. With this in mind, all of our work is focusedon the promotion and protection of human rights,women’s rights and ensuring that no one facesTB alone.Diversity encompasses acceptance and respect. It means understanding that each individual is unique and recognizing our individualdifferences. These can be along the dimensions of race, ethnicity, gender identity, sexual orientation, socio-economic status, age, physicalabilities, religious beliefs, political beliefs, or other ideologies. It is the exploration of these differences in a safe, positive, and nurturingenvironment. It is about understanding each other and moving beyond simple tolerance to instead embracing and celebrating the richdimensions of the diversity contained within each individual. Diversity here means women, girls, transwomen, women who are part of TB keypopulations, women in their different roles (productive or not productive), women as leaders both within and outside the TB response, andmen and boys as allies.(i)Executive SummaryTB WOMEN STRATEGIC PLAN 2021 – 2025To end tuberculosis, effectively and sustainabilityrecover and “catch up” after the impacts ofCOVID-19 and realise universal health coverageand comprehensive social protection systems, thereis a critical need to adopt and invest in a gendertransformative TB response at national, regionaland global level. The UN HLM on TB PoliticalDeclaration1, the End TB Strategy2, the Global Planto End TB3 recognizes gender as a critical dimensionfor understanding and responding to TB. Globally,64% of new cases occur among males – reflectinggender patterns in societies and cultures (thoughwe note recent report on Afghanistan that suggestsshows that women are disproportionately impactedin terms of prevalence as well)4, such as those relatingto high-risk occupations and poor health‑seekingbehaviours5. However, a deeper analysis revealscomplex dynamics on risk and access to healthand social support services. For example, TB inpregnant women living with HIV increases the risk ofmaternal and infant mortality by almost 400%6. Keyand vulnerable populations (which, for TB, includegroups such as prisoners, urban poor, migrants,refugees and indigenous populations) often facesocial marginalization that is compounded bygender. Subsequent TB related stigma also manifestsdifferently for men, women and transgender personsand also manifests differently at various points in time- before TB diagnosis, during treatment, and evenafter treatment is completed. A gender transformativeapproach7 enables us to be effective and efficient inour investment by identifying and utilizing key strategicinformation. Through data analysis and meaningfulconsultation with affected communities, it is possible to‘know your epidemic’ and ‘know your response’.7

The Strategic Pillars and Objectives of TB WomenTB WOMEN STRATEGIC PLAN 2021 – 2025Executive SummarySTRATEGIC PILLAR8STRATEGIC OBJECTIVEBuilding a TB movement ofwomen in all our diversityStrategic Objective 1: To create an enabling environment for a movementof women in all our diversity to strategically and effectively engage in the TB responseEnhancing the evidence base toinform a gender transformativeTB responseStrategic Objective 2: To generate new evidence and innovations, andmaximise the use of existing innovations and evidence base to enable agender transformative TB responseDriving a gender transformativepolicy and advocacy agendaStrategic Objective 3: To drive and monitor the empowerment of women inall our diversity through a strategic and coordinated advocacy agendaEstablishing a strong, effectiveand sustainable networkStrategic Objective 4: To strengthen the membership and coordinationcapacity of TB Women as a global network

CHAPTER 1Chapter 1TB WOMEN STRATEGIC PLAN 2021 – 2025@ TB WomenIntroduction, Context andInstitutional Framework99

TB Women, a newly formed network in 2020,is comprised of women in all our diversityfrom different parts of the world andrepresenting different constituencies, whoare coming together to provide leadershipand coordination, and to respond to issuesrelated to TB, women and gender equality.With this Strategic Plan, TB Women is puttingstructures and processes in place to makeit a viable movement/institution and willbe reaching out to various stakeholdersand development partners to support thewomen empowerment agenda in endingTB. The leadership(ii) believes in buildingmembership, leadership, partnerships,evidence, innovation and advocacy to ensurewomen affected by TB are capacitatedto identify and address key barriers andpriorities and contribute to ending TB andpositive social change.This document outlines the context andstrategies that TB Women will leverage tomove its agenda forward.1.1 IntroductionTB and WomenTB WOMEN STRATEGIC PLAN 2021 – 2025Chapter 1In September 2018, the global TB community cametogether for the United Nations High Level Meeting(UNHLM) on TB. The resulting political declarationmakes clear reference to the need for genderequality and social inclusion to be central to theTB response10. Though there is mention of genderresponsive health services and of approaches thatprotect and promote human rights and genderequality11, the UNHLM political declaration does notgo further to develop gender-specific targets norto expand upon what “gender-responsive healthservices” looks like and means. More recently, theTB affected communities report, A Deadly Divide:TB Commitments vs. TB Realities, re-explores theneed to further strengthen efforts to realize agender transformative TB response.10communities, has significant physical, psychologicaland financial effects that continue beyond treatment,and consequently leaves future generationswithout opportunity. COVID-10 has served to furtherexacerbate this marginalisation and vulnerability15.For too long we have been trying to address TB as amedical issue only, but TB has always been a diseaseof poverty12 and has affected those who are mostmarginalized. In addition to this, the TB responsehas not done enough to explore how women andmen are impacted differently by TB and how thesedifferences can be further understood through anenhanced understanding of social norms, behavioursand practices.As public health experts, we know that more men fallill with TB than women, but as development expertswe also know that women carry the brunt of thedisease in many other ways. TB in women addsto already drastic inequalities - TB interrupts girls’education, in many settings TB stigma limits youngwomen’s marriage prospects, and leads to loss ofland ownership and disenfranchisement for women16.Women with undiagnosed TB who have, or takecare of, children or the elderly inevitably put themat risk. Women, whether young or old, cis gender ortransgender, caregivers, health workers, mothers,patients, those who have a criminalised legal statusor hold a level of privilege, all experience the burdenof TB differently. Across settings, women spend twiceas much time as men17 on housework and family careand, according to the World Health Organization(WHO), 70%18 of the health workforce in developingcountries are women. TB may be more prevalentamong men, but for every man there is likely awoman delivering his diagnosis and treatment, and awife or mother to take care of him and his children.TB kills around 1.5 million people every year, or4,300 people a day13. It is the single largest infectiousdisease killer globally, and among the top fivekillers of women aged 20-5914. In many TB highburden countries, TB continues to kill more peoplethan COVID-19. TB devastates families and entirePregnant women and their babies are also vulnerableto diseases such as TB. According to the TB Alliance,6-15 percent of all maternal deaths are caused byTB19. In addition, a baby is at six times the risk of dyingjust before or after birth when the mother has TB20.Integrating TB preventive care and screening servicesMaurine Murenga (Kenya), Thokozile Phiri Nkhoma (Malawi), Ani Hernasari (Indonesia), Meirinda Sebayang (Indonesia), Cintia Dantas(Brasil), Paula Rusu (Romania), Ida Savandogo (Burkina Faso), Dr. Santosh Kumar Giri (India), Kate O’Brien (USA).(ii)

into antenatal care visits is crucial for the health andwell-being of women and their children. With genderas a focus in the post-2015 development agenda,the global health community is working to improvematernal, new-born and child health.Gender is increasingly recognized as a criticaldimension for understanding and responding to TB,including in the End TB Strategy and the Global Planto End TB. Globally, 64%22 of new of people diagnosedwith TB are male – reflecting gender patterns insocieties and cultures, such as those relating tohigh‑risk occupations and poor health-seekingbehaviours. However, a deeper analysis revealscomplex dynamics on risk and access to services.For example, TB in pregnant women living with HIVincreases the risk of maternal and infant mortality byalmost 400%23.Social determinants such as poverty, literacy,nutrition, and legal status remain central to theTB epidemic and there is a need to understandthe experience of women in this context. Genderinequality reduces the ability of women and girls toprotect and keep themselves healthy, and accesssocial services like education. This is also noted inSustainable Development Goal (SDG) 524 whichstipulates the need to achieve gender equality andempower all women and girls, with emphasis tosupport prevention interventions for women and girlsincluding those that aim to decrease gender-basedviolence (GBV) and increase women’s relationalpowers. Globally, differentiations exist which affectwomen’s right to access, control, voice and participatein the socioeconomic, political sphere25. These rightsalso determine access to TB health services.Gender equity is a key determinant of health andwellbeing26. It makes a fundamental difference asto who is at risk to a disease, who can access theservices they need, and whose lives are impacted(socially, economically, etc.) and to what extent. Agender equity approach towards achieving genderequality enables governments, TB communities andcivil society at large to be effective and efficient in TBinvestments by identifying and utilizing key strategicevidence and data. Through data analysis andmeaningful consultation with women affected by TB,it is possible to ‘know the TB epidemic’ and ‘know theTB response’. This ensures an understanding of thegender-related factors (social, cultural, economic,etc.) that not only affect women’s vulnerability toChapter 1TB WOMEN STRATEGIC PLAN 2021 – 2025TB and Gender@ TB WomenIn addition, different studies are providing evidencearound the impact of COVID-19 in other healthchallenges, including TB. Analysis from severalstakeholders show that the response to TB will beseverely affected by the challenges in responding tothe COVID-19 pandemic. Ongoing studies in Indiaand South Africa suggest that people with TB mayhave a significantly higher chance of death if theycontract COVID-19 and estimate that thousandsof deaths per year co

TB WOMEN STRATEGIC PLAN 2021 2025 Foreword Foreword What began as a side conversation in 2019 between a group of women, who are members of TBpeople, has grown and, with this Strategic Plan, now lays the foundation for a movement. The last few months have been quite engaging for

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