Pain BC Toolbox

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Pain BC ToolboxTreatment Options for Pain:Beyond Medications, Surgery, and Injections 2011–2016

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsIntroductionAuthorsThe Pain BC Toolbox was originally created by leading pain experts Dr. Pam Squire, Dr. Owen Williamson, Dr. Brenda Lau,Diane Gromala, Ph.D., and Neil Pearson in October 2011. Since then, it has been revised and updated by Pain BC.About Pain BCPain BC is a non-profit society made up of health care practitioners, peopleliving with pain, and others with a shared passion to improve the lives ofpeople in pain in British Columbia. We enable people to live better withchronic pain, help health care providers to better assess and treat theirpatients, and act as a resource hub for health care decision makers.Our efforts are focused on: Reducing pain and lessening the impact of pain on all aspects of people’s lives and their families’ lives Providing pain self-management tools and resources Promoting skills development and building confidence and hope Fostering an inclusive community of allies and advocates for health care reform Raising public awareness and ending the stigma around chronic pain.Pain BC recognizes that nothing affects our wellbeing more than pain; whether living with a chronic condition(like arthritis, heart disease, or cancer), suffering with an illness like fibromyalgia or Complex Regional PainSyndrome, or recovering from injury or surgery, persistent pain is the common element with the single greatestimpact on quality of life.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsHow to Use the Pain BC ToolboxFeeling overwhelmed? You’re not alone.Chronic pain is overwhelming. Manypeople living with chronic pain feellike giving up at some point. The PainBC Toolbox offers pain managementresources to help you cope.Pain self-management is important for anumber of reasons. It gives you back the controlin managing your pain. You’ll feel better knowingthat there are things you can try on your own.Pain is different for each person—trying out anumber of tactics is the key to finding out whatcombination of pain management methodsworks best for you.People who live well with chronic pain tell us that they do best when they are equal partners in managing theirpain. Most said that in the early days, they relied heavily on medications, surgery, and specific procedures likeneedles because they were anxious to find a cure for the pain that had started to control and destroy their life.Medication and interventions can helpsome people, but they are usually notthe only answer. The Pain BC Toolboxoffers helpful ideas that have beenproven to work, reducing pain, andimproving quality of life.We hope that you, in consultation with yourhealth care team, can use the resourcesprovided in the Pain BC Toolbox and take stepsto achieve your goals.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedWe know your pain is realwe know every daycan be achallenge.Your Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsGet StartedYour Pain is RealChronic pain is overwhelming, period. We recommend that you try things one small bit at a time. Trying to addresseverything all at once can feel overwhelming and can add to the stress of living with pain. By taking time toexperiment with different approaches, you can figure out what works best for you.A great place to start is by watching this five-minute YouTube video produced in Australia. It provides an easy-to-understandoverview of what happens when pain persists.You Feel MisunderstoodCommunities, homes, and workplaces can and do influence people’s health decisions and experience. Your experienceis happening in a society that doesn’t recognize chronic pain or know what to do about it. You may feel that no oneunderstands. Family, friends, and even your doctors, may express doubt that your pain is as bad as you say or that itexists at all. You may respond with anger, worry, annoyance, and sadness. When stressed out, even questions like,“Why don’t you try this?” or “Maybe if you exercised more you’d feel better?” can feel like an attack.Short-term pain, like stubbing your toe, doesn’t last—ice it, raise it, and soon the pain is gone. Chronic pain onthe other hand is complex, often invisible, and may have no end in sight. The science of pain is evolving and thereis a lot that we don’t understand. We do know that once the body has healed, nerves may still be excited andengaged. There is often no magic cure for this pain. Getting your pain under control might require several thingsincluding physical therapy, counselling, and maybe medications.Until recently, there has not been enough pain research and funding in Canada. Many doctors, nurses, and others workingin health care don’t receive the training they need to assess and treat chronic pain well. This is starting to change.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneEvery day, more than1 in 5 British Columbiansare living withchronic pain.Help! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsYou’re Not AlonePeople who report feeling the best tend to have health care providers who empathically and gentlypush them towards wellbeing (this includes your doctor, physiotherapist, occupational or exercisetherapist, psychologists, etc.). We all do better when we have a support system in place.Remember, pain management varies from person to person; one size doesn’t fit all. So. pick one area to startwith and try something. Didn’t help? Not at all?Don’t give up!It may take some patience, but if you feel like giving up, just remember you’re not alone! Someone is goingthrough the same struggle and feeling as frustrated as you are. Reach out and talk to others living with pain,either through Pain BC’s Facebook community, Pain BC’s Live Plan Be secure community forum, or through apeer support group.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHelp! I Can’t CopePain BC’s Connect for Health for-healthIt’s important to have the support you need to live better with pain.Living with chronic pain is challenging and living with the impacts of pain can be even harder. Pain BC’s Connectfor Health program advocates for people in pain and their families, connecting you with services and supportthat go beyond your doctor’s office.How We HelpIn collaboration with health care and social service providers, we advocate for you, provide information, and followup to ensure you’re getting the support you need in your local community. We connect you to resources such as: Housing Employment/income security Food security Parenting support, child care, and respite services Education Recreation services Social services Health servicesHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationHow to ConnectWe invite you to talk confidentially with our trained volunteers on the phone or online. Call us 24 hours a day atone of the numbers below (leave a message at any time, night or day):Tel: 604-730-0818Toll-free: 1-844-430-0818Email: cforhintake@painbc.caWeb: Complete a self-referral form if you’re living with chronic pain or know someone who is.Volunteers are available to assist you Monday to Friday (excluding statutory holidays). We aim to get back to youwithin 3 business days.Get Involved with Pain BCPain BC’s Connect for Health is not a crisis line. If you need immediate medical assistance, call 9-1-1. If you’re indistress, or feel you may cause harm to yourself or others, these crisis lines can provide immediate assistance:Feedback & linesInfluence the Health Care System

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsYour Role in Managing Your PainResearch shows that getting involved in managing your pain can have a big impact on yourquality of life. Self-management refers to the skills and behaviours that can help you live wellwith your chronic condition. Self-management doesn’t replace physical therapies, medication,and psychological support, but it’s a big part of feeling better.Self-Management ProgramsIn-Person Free Local Pain Self-Management Workshopswww.selfmanagementbc.caCall toll free: 1-866-902-3767Self-Management British Columbia offers a range of free workshops in communities across the province. Participantsmeet as a group (10 to 16 people) once a week for 2½ hours for six consecutive weeks. Workshop leaders arevolunteers who live with chronic pain themselves and deliver a course that has been taken by thousands of peoplewith chronic pain all across Canada. These workshops are a great way to learn more about chronic pain and howto manage it. Most people who have attended these were surprised by how helpful they were. Find out when andwhere there are Chronic Pain self-management workshops in your area and register through the Self-ManagementBC website. You can also become a program leader and volunteer to lead a workshop!BC Arthritis Society Chronic Pain Management Workshopwww.arthritis.ca/cpmwCall toll free: 1-800-321-1433The Chronic Pain Management Workshop (CPMW) (http://www.arthritis.ca/cpmw) is a single, two-hour coursethat focuses specifically on pain management; the course is not limited to people living with arthritis but is opento anyone living with chronic pain from any condition. Participants have the chance to learn new information andskills, discuss ideas, and share experiences with others that have chronic pain. It also aims to teach family members,partners and friends how to support people with chronic pain. The CPMW is available in many communitiesacross the country and is usually held in wheelchair-accessible settings.

Links to ContentOnline ResourcesIntroductionPain BC’s Live Plan BeAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & Questionswww.liveplanbe.caLive Plan Be is a free online self-management tool developed by Pain BC to support those living with pain, nomatter where they are on their pain journey. The tool has four main components: pain education, self-assessmenttools, Brief Action Planning, and a secure community forum.Pain BC’s Pain Waves painbcPain Waves Radio is an Internet radio show created by Pain BC, where listeners can hear from leading chronicpain experts, as well as people in pain, as they discuss the latest pain management research, tools, and trends.Listen to current and past episodes online anytime.The Pain Toolkitwww.paintoolkit.orgThis is a great resource for anyone who wants to start from step one, including an app for Apple or Android. It’sthe ultimate beginner’s guide to dealing with pain on a day-to-day basis. Discover 12 friendly and comfortingtools that you can start using immediately.PainSupportwww.painsupport.co.ukThe PainSupport website is packed with pain relief techniques and advice. There’s a friendly and helpful DiscussionForum and a Contact Club for making new friends. There’s also a shop with useful books, CDs, and downloads, aregular email newsletter, and much more.Canadian Pain Coalitionwww.canadianpaincoalition.caThe Canadian Pain Coalition is a partnership of pain consumer groups, health professionals who care for peoplein pain, and scientists studying better ways of treating pain. Listen to their archived podcasts that explain painand provide guidance about pain self-management techniques. The Conquering Pain for Canadians bookletanswers a series of frequently asked pain-management related questions such as, “How should I talk to healthcareprofessionals about my pain?” The “Conquering Your Pain: Where to Start” video outlines a number of simplethings you can try to alleviate pain in everyday physical routines. Both the booklet and video can be found on theCPC homepage.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneHelp! I Can’t CopePain BC’s Connect for Health ProgramHow We HelpHow to ConnectYour Role in Managing Your PainSelf-Management ProgramsOnline ResourcesRecommended AppsSupport GroupsPain ClinicsPain Management BooksGeneralBooks on Pain Pathophysiology or How Pain PersistsBooks on Living with Pain from a Personal PerspectiveHealthy LivingMental HealthMind-Body Strategies for Pain ReliefSleepExerciseEating WellSupplementsFor Kids and Teens in Pain (and their families)Pain ServiceBooksWebsitesRecommended AppsFor ParentsDisability InformationInfluence the Health Care SystemGet Involved with Pain BCFeedback & QuestionsPain Concernhttp://painconcern.org.uk/Pain Concern is a UK-based charity working to support and inform people with pain and those who care forthem, whether family, friends, or healthcare professionals. Pain Concern produces information on pain using avariety of different media platforms, and the website is full of valuable resources like videos, books, and personalaccounts of people living with pain.Alberta Health Services: Chronic Pain Management Lecture /Page2790.aspxThis series of 10 lectures offers information about the nature of pain and the ways that your body’s systems areaffected by pain. Learn more about everything from nutrition and exercise to attention and memory.Canadian Institute for the Relief of Pain and Disability (CIRPD)http://www.cirpd.org/WebinarsThe CIRPD is a registered charitable organization dedicated to the prevention and reduction of pain, painrelated suffering, and disability. The CIRPD (partnering with Pain BC) provides free webinars containing credibleinformation for people living with pain as well as their family to encourage living well with chronic pain. The focusis on the most recent research on effective self-management techniques and ways you can improve your lifedespite pain.Overcome Pain Self tionPain science education is an effective and evidence-based intervention for people in pain. Many clinicians tellus that when people understand pain better, it improves clinician-to-patient communications and decreasesclinical stress in complex pain situations. “Overcome Pain Self Management” is an education facilitation packagethat was created to assist health professionals in providing effective pain science education to their patients,especially in group settings. View the free introductory video.First Nations Health Authority (FNHA)http://www.fnha.ca/ he First Nations Health Authority is a Health & Wellness partner to each and every First Nations person living inTBC. The FNHA website has a large range of resources, including information on programs, benefits, and servicesavailable for First Nations. It’s also packed with tips for healthy living, and includes informational on traditionalhealing practices. Find out more on their website.

Links to ContentIntroductionAuthorsAbout Pain BCHow to Use the Pain BC ToolboxGet StartedYour Pain is RealYou Feel MisunderstoodYou’re Not AloneRecommended AppsCheck out these helpful apps to better manage your persistent pain using web-basedtechnology that can be accessed from a smartphone or tablet.Relaxation AppsSmiling MindSmiling Mind is meditation made easy. A simple tool that helps put a smileon your mind anytime, anywhere, and every

Your Role in Managing Your Pain Self-Management Programs Online Resources Recommended Apps Support Groups Pain Clinics Pain Management Books General Books on Pain Pathophysiology or How Pain Persists Books on Living with Pain from a Personal Perspective Healthy Living Mental Health Mind-Body Strategies for

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