Anxiety And Intellectual Disability

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Anxiety andIntellectual DisabilityMolly Faulkner, PhD, CNP, LISWUniversity of New MexicoContinuum of CareMarch 9, 2015

Learner Objectives Describe incidence of anxiety in individuals withintellectual disability (ID). List two potential causes of anxiety in individualswith ID. Identify symptoms and characteristics of anxietyseen in individuals with ID. Discuss two potential techniques todecrease anxiety for an individualwith ID.

Definitions “Intellectual disability (ID) is the term used todefine a developmental disorder characterized byboth intellectual and adaptive functioningdeficits.” Replaced “mental retardation” in DSM-5 Change led by renaming of organizations President’sCommittee for People With Intellectual Disabilities in2003 and the American Association on Intellectual andDevelopmental Disabilities in 2006.

Identification andCharacteristics ofAnxiety in Adults with ID“Anxiety and anxiety disorders are frequently comorbidwith developmental disabilities including mentalretardation, autistic disorder, Asperger’s disorder andpersons with pervasive developmental disorder nototherwise specified” 1-5

How Many Clientswith ID are Diagnosed with Anxiety Disorder? Adults with autism 3x rate of anxietysymptoms than adults with DDs Children with autism 55.5% met anxietydisorder criteria Studies14% to 26.85% adults with DD hadcomorbid anxiety disorder Associated with level of stress

Why Is AnxietyHard to See in Clients with ID?Anxiety may be overlooked by the DD itselfValid diagnostic information hard to obtainDifficulty describing internalizing symptoms of anxietyDeficits in communication, social skills and intellectualfunctioning.Challenging behaviors may mask anxietyLimited number of empirical studiesLack of standardized assessments specific to diagnosing clientswith IDs and psychiatric co morbiditiesModified diagnostic criteria proposed

Characteristics/SymptomsAnxiety in Clients with ID Phobias Hypervigilant Panic Agoraphobia (afraid ofopen spaces) Obsessive CompulsiveDisorder Screaming Self injury (picking,scratching, biting, sucking) Stereotypies (flapping,shouting, rocking) Generalized AnxietyDisorders Sleep disturbances PTSD Selective Mutism Tantrums Aggression

Generalized AnxietyDSM-5- Definition

Assessment Tools forClients with ID and Anxiety Mood and Anxiety Semi-StructuredInterview (validity, sensitivity, specificity and interpreter reliabilityin ID population) The Fear Survey (children and adults) Anxiety Depression and Mood Scale Glasgow Anxiety Scale Yale Brown OCD Scale (adult clients with autism and OCD have different obsessional content & compulsive behaviors than adults with OCD and no DD)

What CausesAnxiety Disorders in ID?

Neurobiological Dysregulation ofautonomic nervous systemactivity -- abnormal stressand autonomic systemreactivity and brainfunction Sensory disintegration Abnormal cardiovascularand electrodermalresponses Genetic temperament offamily

Structural Abnormalities Abnormalities ofserotonin anddopamine Metabolic deficits infront cortex Structuralabnormalities inamygdala andhippocampus andlimbic system as awhole

Environmental Trauma/bullying Multiple homes Many transitions Stressful work and social situations Illness

Practitioner Issues Practitioners often feel inadequate to assess,diagnose and treat ID population, particularly ifpsychiatric issues in ID population.8 Practitioner anxiety can often interfere withability to provide good care.

Assessment Multi disciplinary Thorough assessmentfor possible physicalcause ofanxiety/agitation Applied behavioralanalysis Multiple resourceshome, work, family,particular those whoknow individual forlong period of time Any recent trauma oranniversary or LOSS?

Treatments for Anxiety*Environmental Life style Skill building Reduce stimulinoiseclutterlightingtemperature Earphones, earplugs Sunglasses Reduction in transitions Remove aversive stimuliBiological SSRI’s for repetitivesymptoms, stereotypies, selfinjurious, hair pulling Naltrexone- self harmingbehaviors Propranolol generalizedanxiety Rare if ever benzodiazepineuse as can disinhibit May pre medicate for anxietyprovoking situations *often multifocal

Treatments for Anxiety (cont’d)Behavioral Providing activities andopportunities to engage withothers Teaching relatives andcaregivers techniques forimproving communication Setting boundaries,Redirection Positive reinforcement ofdesired behaviors, Noncontingentreinforcement procedures, Activity schedules Task correspondencetraining.

InterventionsInterventions will be moresuccessful if they not only reducethe risk factors, but also promotethe protective factors observed inresilient adults.

Group Home Interventions Create a peaceful, calm and relaxing homeenvironment Support positive behavior when anxious- Monitor behavior especially during common problem times- acknowledge and reward positive behavior- use reminders and review of behavior expectations. Respond to problem behavior consistentlyand effectively- Use consistent procedures in responding to minor andserious problem behaviors. Institute procedures forproblems solving meetings.

Group Interventions Establish and teach the house rules and proceduresaround creating and maintaining a calm, supportiveand relaxing home for all. Be aware and proactively manage common stressfultimes: transitions, unstructured times, newsituations Promote social and emotional functioning Use rewards effectively Manage angry/acting out behavior

Individual Interventions Analyze specific behaviors related to anxietyand trigger Consistently reinforce positive, calming,relaxing behavior and use of skills Use of proactive and instructive modelingstrategies to encourage positive behaviorsand problem solve with the client Teach client with ID to self-monitor anxietyand cue when needed

Piecing it All Together:What Does All of this Mean?

Family Involvement Parents- use a “partnership approach” toclient’s success with managing anxiety Provide daily calendar to record anti anxietyexercises to reinforce desired behavior. Encourage positive parentalreinforcement of specificdesired behaviors

What Direct Care Professionalsand CliniciansShould Avoid Use of only reactive behavioral strategies Model antisocial behaviors by yelling orinsulting client with ID Use of harsh punishment Only coercive interactionswith client with ID

What Direct Care Professionalsand Clinicians Should Do Understand that working with ID with anxiety (andpossible CB) can be frustrating and exhausting Directly TEACH good emotional self care skills as amatter of routine and part of structure of the day Model and teach good self care skills, ie. relaxation,and downshifting skills and have them do returnteaching Develop and use individualized interventions foranxiety in ID Understand how the helper-clientanxiety and conflict cycle startsand how to derail or de-escalate it

Implications for Practice: Be aware of the complex relationship betweenpsychopathology/anxiety and CB in patients with ID. Analyze complex relationships in those with ID Perform thorough diagnostic procedures. Attention to different dimensions of functioning, i.e.biological/physiological, psychological, social &environmental dimensions. Requires a multidisciplinary and multidimensionalapproach to explore the dynamics betweenpsychopathology/anxiety and ID

Questions?

Learning to Relax When I get worried, anxious,angry or tense my body can feelmany different ways. My teeth may be clenched My hands may feel sweaty My hands may be in a fist My face may feel warm My muscles may be tight andhurt When I begin to feel angry ortense there are many ways tohelp me relax Close my eyes and take 5 deepbreaths Ask to take a break Ask to take a walk Ask to stand up and stretch Get a relational fidget

Questions?

References1. Stavrakaki C, Lunsky Y, Bouras N, et al.: Depression, Anxiety and Adjustment Disorders in People withIntellectual Disabilities. Psychiatric and Behavioural Disorders in Intellectual and DevelopmentalDisabilities, 2nd edn. New York, NY, US, Cambridge University Press, 20072. Saulnier C, Volkmar F, Bouras N, et al.: Mental Health Problems in People with Autism and RelatedDisorders. Psychiatric and Behavioural Disorders in Intellectual and Developmental Disabilities, 2ndedn. New York, NY, US, Cambridge University Press, 20073. Schlauch RC, Gordon KH, Schmidt NB, et al.: The Assessment, Diagnosis, and Treatment ofPsychiatric Disorders in Individuals with a Dual Diagnosis: The Co-occurrence of DevelopmentalDisorders and Psychiatric Disorders. Mental Health Care for People of Diverse Backgrounds. Abingdon,United Kingdom, Radcliffe Publishing, 20074. Tantam D: Psychological disorder in adolescents and adults with Asperger syndrome. Autism 4(1):47–62, 2000. doi: 10.1177/13623613000040010045. Masi G, Favilla L, Mucci M: Generalized anxiety disorder in adolescents and young adults with mildmental retardation. Psychiatry 63(1):54–64, 2000.6. Davis, E., Saeed, S. A., & Antonacci, D. J. (2008). Anxiety disorders in persons with developmentaldisabilities: empirically informed diagnosis and treatment. Reviews literature on anxiety disorders in DDpopulation with practical take-home messages for the clinician. Psychiatric Quarterly, 79,249–263.7. http://greatist.com/happiness/reduce-anxiety

References8. Agarwal, R., Guanci, N., & Appareddy, V. L. (2013). Issues in treating patientswith intellectual disabilities. Psychiatric Times, ies#sthash.ARN9g3AJ.dpuf

Learner Objectives Describe incidence of anxiety in individuals with intellectual disability (ID). List two potential causes of anxiety in individuals with ID. Identify symptoms and characteristics of anxiety seen in individuals with ID. Discuss two potential techniques to decrease anxiety for an individual with ID.

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