Rhode Island’s State Of The State Presentation

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Rhode Island’sState of the State PresentationLearn the Signs, Act Early Regional SummitApril 26th and 27th, 2010Providence, RI

Welcome to Rhode Island !! Geographically smallest state (37 x 48 miles) 1048 sq mi (1545 include Narragansett Bay) 384 miles of coastline 43rd most populace state – 1,048,319 (2000) Most densely populated state 247,822 under 18 (24%) Longest state name -“State of Rhode Island andProvidence Plantations”

Rhode Island Facts State Nicknames Ocean State Little Rhody State bird – Rhode Island Red (Hen) State shell – Quahog State motto - Hope

Rhode Island Facts 39 cities and towns6 core cities - 15% children in poverty18.3% children in poverty - #5 NE32% children - single parent families - #6 NE5% newborns – single, teen and HS moms96% children US born, 24% immigrant parent73% W, 14% H, 5% B, 3% A, 5% O children7% children uninsured in 2007 (up from 4.3%in 2001)

Current Early ChildhoodState Systems Successful Start: Early Childhood Systems PlanLevel 1 Risk AssessmentKIDSNETHealthy Tomorrows Grant Watch Me Grow RI – 16 practices/35 centers Pediatric Practice Enhancement Project (35 sites) Project LAUNCH Grant Nurse Families Partnership Grant

Current State Systems –Early Intervention 10 certified EI provider agencies (IACC) One specialty provider for ASD 2.2% children 1 yo (#4 US, #2 NE) 4.8% children 3 yo (#4 US, #2 NE) 19% Single Established Condition 73% Significant Developmental Delay 8% Multiple Established Conditions

RI Medical CentersServing Children with ASDs Center for Autism and DevelopmentalDisabilities – Bradley Hospital Children’s Neurodevelopmental Center –Hasbro Children’s Hospital The Neurodevelopmental Center ofMemorial Hospital of RI The Behavior and Development Clinic atthe Brown Center for the Study of Childrenat Risk – Women and Infants’ Hospital

RI’s Diagnosis and AssessmentEfforts RI Department of Health Office of Special HealthCare Needs Convening of Diagnosticians Product: Identification and Evaluation of ASDGuidelines RI Department of Health Office of Special HealthCare Needs Convening of Educators, Evaluators,and Therapeutic Providers Product: Assessment of Function andIntervention Planning

Current State Systems –Direct Services & Supports Early Intervention CEDARR -Comprehensive Evaluation,Diagnosis, Assessment, Referral and Reevaluation – care coordination, information andauthorization home based options Home Based Therapeutic Services – HBTS intensive home therapies including ABA Personal Assistance Services and Supports PASS– families hire and train workers to implementpersonal therapy plans

Current State Systems –Direct Services / Supports Kids Connect – behavioral & medical support foreligible children in child care settings Respite – up to 100 hours/year for 400 families in2008 meeting level of care criteria Katie Beckett – allows children with long termdisability and level of care criteria to be eligiblefor Medicaid and these funded services Pediatric Practice Enhancement Project –enhanced medical homes for children with specialneeds including ASDs

Current State Systems –Family Support and Education Paul Sherlock Center for Disabilities at RICollege – (UCED/ Family to Family Network) RI Parent Information Network (FamilyVoices, PPEP) The Autism Project of RI The Autism Society of RI Families for Effective Autism Treatment of RI(FEAT/RI)

Current State Systems –Education – 3 to 21 yo with 39925786653120 14241 86197 252311407498

RI Children with ASD in SchoolsRace/Ethnicity 2007-2008

Professional Education HRSA/MCHB Brown Leadership Trainingin Developmental-Behavioral Pediatrics Fellowship, Residency, COR, GR Paul Sherlock Center on Disabilities at RICollege – UCEDD RIC Autism Certificate Program Statewide Training, ProfessionalDevelopment, Technical Assistance

Legislative Efforts The Special House Commission to Studythe Education of RI Children with Autism –23 members, broad sector Two bills on covering autism treatmentcurrently in committees – one in senate andone in the house

Challenges and Gaps Current recession and state budget gap mayjeopardize existing programs Funding for services for children not meetinglevel of care or financial eligibility forMedicaid Developmental screening is on the rise,however is far from universal Gaps in qualified personnel and funding leadto waitlists for diagnosis and treatments Transitional services are lacking for CYSHCN

Looking Toward the Future Increasing competencies of medicalproviders through DBP Grant activities –Grand Rounds, COR, fellowship/residents,research, publications Implementing the State ImplementationGrant activities, specifically increasingaccess to information and support to parentsof children and youth with an ASD

Looking Toward the Future Identifying level of need for services inschools and increasing competencies ofeducators Developing resources and a support systemfor youth with an ASD transitioning toadulthood Continued statewide collaboration Exploring funding opportunities

Welcome to Rhode Island !! Geographically smallest state (37 x 48 miles) 1048 sq mi (1545 include Narragansett Bay) 384 miles of coastline 43. rd. most populace state – 1,048,319 (2000) Most densely populated state 247,822 under 18 (24%) Longest state name -“State of

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