Spirituality And Dementia
Spirituality and DementiaThis list is a reviewed collection of articles, books, web resources and videosprepared by the Alzheimer's Association Green-Field Library staff. To borrowitems we own contact your local chapter or local library. Read more aboutborrowing at https://www.alz.org/helpsupport/resources/virtual library/how to borrow.On this resource list:Persons Living with DementiaCare, ClinicalCare, FamilyCare, PastoralDiversityPersons Living with DementiaArticles, JournalDalby, P. The lived experience of spirituality and dementia in older people livingwith mild to moderate dementia. Dementia (London). Jan 2012; vol. 11(1), pp.75-94.Abstract: ield Library owns. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 1
Daly, L, Fahey-McCarthy, E; Timmins, F. The experience of spirituality from theperspective of people living with dementia: a systematic review and metasynthesis. Dementia (London). Dec 9 2016, Epub ahead of print.Abstract: Field Library owns.Jolley, D.; Benbow, SM; Grizzell, M; et al. Spirituality and faith in dementia.Dementia (London). Aug 2010; vol. 9(3), pp. pp. 311-325.Abstract: 01210370645Green-Field Library owns.Keady, Jessica, M. Dementia: living in the memories of god.Urgesi, C.; Aglioti SM; Skrap, M; et al. The spiritual brain: selective corticallesions modulate human self-transcendence. Neuron. Feb 11, 2010; vol. 65(3),309-319.Full-text: 0896627310000528Green-Field Library does not own.BooksFor additional book titles visit GoodReads and Amazon.comBjorck IL; Bjorck, J. Twilight meditations: one woman’s thoughts of God asAlzheimer’s Advances.Pasadena, CA: Jeffrey P. Bjorck, 2017.Green-Field Library does not own.MacKinlay E; Trevitt, C. Facilitating spiritual reminiscence for people withdementia.New York, NY: Jessica Kingsley, 2015Green-Field Library does not own.Sawatsky, J. Dancing with elephants: mindfulness training for those living withdementia, chronic illness or an aging brain.Toronto, ON: Red Canoe Press, 2017Green-Field Library Call No.: WM 220 S271 2017 Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 2
Swinton, J. Dementia: living in the memories of God.Grand Rapids, MI: Eerdmans, 2012Green-Field Library does not own.Web ResourceEhman, J. Spirituality & people with dementia/Alzheimer’s disease: selectbibliography of articles.Penn Presbyterian Medical Center: Philadelphia, PA, 2011http://www.acperesearch.net/Res Alzheimers and Spirituality.pdfCare, ClinicalArticles, JournalAgli, O.; Bailly, N.; Ferrand, C. Spirituality and religion in older adults withdementia: a systematic review. International Psychogeriatrics. May 2015; vol.27(5), pp. 715-725.Abstract: ield Library owns.Carr, TJ.; Hicks-Moore, S.; Montgomery, P. What’s so big about the ‘little things’:a phenomenological inquiry into the meaning of spiritual care in dementia.Dementia (London). Aug 2011; vol. 10(3), pp. rly/2011/05/27/1471301211408122.abstract?rss 1Green-Field Library owns.Coin, A., Perissinotto, E.; Najjar, M.; et al. Does religiosity protect againstcognitive and behavioral decline in Alzheimer’s dementia. Current AlzheimerResearch. Aug 2010; vol 7(5), pp. 445-452.Abstract: ield Library owns. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 3
Counted, V.; Possamai, A.; Meade, T. Relational spirituality and quality of life2007 to 2017: an integrative research review. Health and Quality of LifeOutcomes. Apr 2018; vol. 16(1), p. 75.Full-text: 36/Green-Field Library does not own.Dos Santos, S.; Rocha, G.; Fernandez, L.; et al. Association of lower spiritualwell-being, optimism and hope scores with mild cognitive impairment and milddementia. Frontiers in Psychology. Apr 2018; vol. 9, p. 371.Full-text: 11/Green-Field Library does not own.Ewing, WA. Land of forgetfulness: dementia care as spiritual formation. Journalof Gerontological Social Work. 2005; vol. 45(3), pp. 301-311.Abstract: ield Library owns.Gwyther, LP. Spirituality and caring for older family members. Southern MedicalJournal. Oct 1, 2006; vol. 99(10), pp. 1106-1107.Abstract: -Field Library does not own.Hebert, RS; Dang, Q.; Schulz, R. Religious beliefs and practices are associatedwith better mental health in family caregivers of patients with dementia: findingsfrom the REACH study. American Journal of Geriatric Psychiatry. Apr 2007; vol.15(4), pp. 292-300.Abstract: ield Library owns.Helen, S. The importance of spirituality for people living with dementia. NursingStandard. Feb 17, 2016; vol. 30(25), pp. 41-50.Abstract: Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 4
Hosseini, S; Chaurasia, A; Oremus, M. The effect of religion and spirituality oncognitive function: a systematic review. Gerontologist. Apr 2019; vol. 59(2), e76e85.Abstract: Field Library owns.Hovland, CA; Kramer, BJ. Barriers and facilitators to preparedness for death:experiences of family caregivers of elder with dementia. Journal of Social Workin End-of-Life and Palliative Care. Jan-Mar 2019; vol. 15(1), pp. 55-74Abstract: Field Library does not own.Kartupelis, J. Spiritual life in homes shared by older people. Working with OlderPeople. 2015; vol. 19(3), p. 150-156Abstract: P-01-2015-0001Green-Field Library does not own.Katsuno, T. Personal spirituality of persons with early-stage dementia: is itrelated to perceived quality of life? Dementia (London). Oct 2003; vol. 2(3), pp.315-335.Abstract: en-Field Library owns.Kaufman, Y.; Anaki, D.; Binns, M.; et al. Cognitive decline in Alzheimer'sdisease: impact of spirituality, religiosity, and QOL. Neurology. May 1, 2007; vol.68(18), pp. 1509-1514.Abstract: ield Library owns.Kevern P. The spirituality of people with late-stage dementia: a review of theresearch literature, critical analysis and some implications for person-centredspirituality and dementia care. Mental Health, Religion & Culture. Nov 2015; vol.18(9), pp. 765-776.Abstract: 76.2015.1094781Green-Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 5
Kevern, P.; Stifoss-Hanssen, H. The challenges of dementia care and the(un)making of meaning: analysis of an online forum on carer spirituality.Dementia (London). Aug 2018.Abstract: Field Library owns.Koenig, TL. Caregivers’ use of spirituality in ethical decision-making. Journal ofGerontological Social Work. 2005; vol. 45(1-2), pp. 155-172.Abstract: ield Library owns.Lawrence, RM. Aspects of spirituality in dementia care: when clinicians tune intosilence. Dementia (London). Oct 2003; vol. 2(3), pp. 393-402.Abstract: Field Library owns.LoboPrabhu, S.; Molinari, V.; Arlinghaus, K.; et al. Spouses of patients withdementia: how do they stay together “till death do us part”? Journal ofGerontological Social Work. 2005, vol. 44(304), 161-174.Abstract: n03 10Green-Field Library owns.Nelson-Becker, H.; Nakashima, MC; Edward, R. Spiritual assessment in aging: aframework for clinicians. Journal of Gerontological Social Work. 2007, vol. 48(34), pp. 331-334.Abstract: ield Library owns.Snyder, L. Satisfaction and challenges in spiritual faith and practice for personswith dementia. Dementia (London). Oct 2003; vol. 2(3), pp. 299-313.Abstract: en-Field Library owns.Spurlock, WR. Spiritual well-being and caregiver burden in Alzheimer'scaregivers. Geriatric Nursing. May-Jun 2005; vol. 26(3), pp. 154-161.Full-text: ield Library owns. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 6
Timmins, F; Murphy, M.; Begley, T; et al. The extent to which core nursingtextbooks inform holistic spiritual care. Nursing Management. Sep 2016; vol.23(5), pp. 31 – 37.Green-Field Library does not own.Toivonen, K.; Charalambous, A.; Suhonen, R. Supporting spirituality in the careof older people living with dementia: a hermeneutic phenomenological inquiryinto nurses’ experiences. Scandinavian Journal of Caring Sciences. Jun 2018;vol. 32(2), pp. 880-888.Abstract: Field Library does now own.Volicer, L. Review of programs for persons facing death with dementia.Healthcare (Basel). Apr 15, 2019; vol. 7(2), pp. pii: E62Full-text: ld Library does not own.Watson, NM. Spiritual nurturance and the support for nursing home residentswith dementia. Dementia (London). Feb 2011; vol. 10(1), pp. 59-80.Abstract: ield Library owns.Yoon, K.; Moon, Y.; Lee, Y.; et al. The moderating effect of religiosity oncaregiving burden and depressive symptoms in caregivers of patients withdementia. Aging & Mental Health. Jan 2018; vol. 22(1), pp. 141-147.Abstract: Field Library does not own.Books & Book ChaptersGrollman, EA. The Alzheimer's patient. IN: Gilbert, R.B. Health care &spirituality: listening, assessing, caring, 203-210.Amityville, NY: Baywood Publishing Co., 2002.Green-Field Library Call No.: BL 625 G465 2002. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 7
Grollman, EA. Spirituality and Alzheimer's disease. IN: Living with grief:Alzheimer's disease, pp. 213-223.Washington, DC: Hospice Foundation of America, 2004.Green-Field Library Call No.: WM 220 L785 2004Shamy, E. Guide to the spiritual dimension of care for people with Alzheimer'sdisease and related dementias: more than body, brain, and breath.London, UK: Jessica Kingsley Publishers, 2003.Green-Field Library Call No.: BL 625.9 S53 2003.Stolley, JM; Cholan, J. Professional sensitivity to religion-spirituality among malecaregivers. IN: Kramer, B.J.; Thompson, E.H. Men as caregivers: theory,research, and service implications, pp 317-336.New York, NY: Springer Publishing, 2002.Green-Field Library Call No.: WY 200 M534 2002Journal IssuesBuddhist and Native American Spirituality and Aging. Journal of Religion,Spirituality, and Aging. 2013, vol. 25(1), pp. 1-66.Special issue: https://www.tandfonline.com/toc/wrsa20/25/1?nav tocListGreen-Field Library does not own.Spirituality and dementia. Dementia: The International Journal of SocialResearch and Practice. Oct 2003; vol. 2(3), pp. 1-448.Special issue: ld Library owns.Spirituality and nursing. Journal of Clinical Nursing. Jul 2006; vol. 15(7), pp.801-930.Special issue: 15/7Green-Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 8
Web ResourcesReligions, spirituality and dementia.Sandra StimsonSparta, NJ: Alternative m/AlternativeSolutionsPage Archive200807.htmlSpiritual and religious needs of people with dementia.Catholic Medical Quarterly: Journal of the Catholic Medical Association, eeds-dementia.htmlSpiritual care of the person with dementia [presentation]Janice HicksSpirituality, Religion and Health Interest Group-Penn Medicine, itual Care of the Person withDementia Hicks no videos Jan2017.pdfCare, FamilyArticles, JournalBatz, J. How do we know what they know? – decision to withhold communionfrom Alzheimer's patients questioned. National Catholic Reporter (online). Jan31, 1997.Full-text: http://natcath.org/NCR ld Library does not own.Damianakis, T.; Wilson, K.; Marziali, E. Family caregiver support groups: spiritualreflections’ impact on stress management. Aging & Mental Health. Jan 2018; vol.22(1), pp. 70-76.Abstract: Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 9
Deist, M.; Greeff, A. Living with a parent with dementia: a family resilience study.Dementia (London). Jan 2017; vol. 16(1), pp. 126-141.Abstract: Field Library owns.Hoppe, S. A sorrow share is a sorrow halved: the search for empatheticunderstanding of family members of a person with early-onset dementia. Culture,Medicine and Psychiatry. Mar 2018; vol. 42(1), pp. 180-201.Full-text: Field Library does not own.Lopez, J.; Romero-Moreno, R.; Marquez-Gonzalez, M. et al. Spirituality and selfefficacy in dementia family caregiving: trust in God and in yourself. InternationalPsychogeriatrics. Dec 2012; vol. 24(12), pp. ction/displayAbstract?fromPage online&aid 8721933Green-Field Library owns.Mahdavi, B.; Fallahi-Khoshknab, M.; Mohammadi, F.; et al. Effects of spiritualgroup therapy on caregiver strain in home caregivers of the elderly withAlzheimer’s disease. Archives of Psychiatric Nursing. Jun 2017; vol. 31(3), pp.269-273.Abstract: Field Library does not own.Monteiro, A.; Santos, R.; Kimura, N.; et al. Coping strategies among caregiversof people with Alzheimer disease: a systematic review. Trends in Psychiatry andPsychotherapy. Jul-Sep 2018; vol. 40(3), pp. 258-268.Full-text: Field Library does not own.Padmaprabha, D.; Sperlinger, DJ; Boddington, S. The lived experience ofspirituality and dementia in older people living with mild to moderate. Dementia(London). Feb 2012; vol. 11(1), pp. 75-94Abstract: 1/1471301211416608Green-Field Library owns. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 10
Ødbehr, L.; Hauge, S.; Danbolt, L.; et al. Residents’ and caregivers’ views onspiritual care and their understanding of spiritual needs in person with dementia:a meta-synthesis. Dementia (London). Oct 2017; vol. 16(7), pp. 911-929.Abstract: Field Library owns.Slape, J. Dementia and palliative care: the spiritual needs of family members.Journal of Religion, Spirituality and Aging. Apr-Sep 2014; vol. 26(2/3) pp. 215230.Full-text: 0.2013.830237Green-Field Library does not own.Books and Book ChapterDunlop, J. Finding grace in the face of dementia.Wheaton, IL: Crossway, 2017On orderEwing, WA. Tears in God's bottle: reflections on Alzheimer's caregiving.Tucson, AZ: Whitestone Circle Press, 1999.Green-Field Library Call No.: BL 625.9 E95 1999Hall, ET. Caring for a loved one with Alzheimer's disease: Christian perspective.New York, NY: Haworth Pastoral Press, 2000.Green-Field Library Call No.: BL 625.9 H175 2000Hobilitzelle, OA. Ten thousand joys & ten thousand sorrows: a couple’s journeythrough Alzheimer’s.Los Angeles, CA: Tarcher, 2010.On orderHornbacjk, PM. God still remembers me: devotions for facing Alzheimer’sdisease with faith.Seattle WA: Createspace, 2015Green-Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 11
Jade CA. Seasons of caring: meditations for Alzheimer’s and dementiacaregivers.Chevy Chase, MD: Clergy against Alzheimer’s network, 2014.Green-Field Library does not own.Leder, S. More beautiful than before: how suffering transforms us.Carlsbad, CA: Hay House Inc., 2017Green-Field Library does not own.Maddux, C. A path revealed: how hope, love and joy found us deep in a mazecalled Alzheimer’sBrewster, MA: Paraclete Press, 2016Read for free with KindleUnlimitedGreen-Field Library does not own.McLeod, BW. And thou shalt honor: the caregiver’s companion.New York, NY: St. Martin’s Press, 2002.Green-Field Library Call No.: HV 1461 A535 2002Pearce, N. Inside Alzheimer's disease: how to hear and honor connections witha person who has dementia.Nashbille, TN: Forrason Press, 2007.Green-Field Library Call No.: WM 220 P359 2007Pray with me still: rosary meditations and spiritual support for persons withAlzheimer's, their caregivers, and loved ones.Notre Dame, IN: Ave Maria Press, 2006.Green-Field Library Call No.: BV 4910.6 P73 2006Roche, L. Coping with caring: daily reflections for Alzheimer caregivers.Forest Knolls, CA: Elder Books, 1996.Green-Field Library Call No.: BL 625.9 R673 1996Simpsom, R. Through the wilderness of Alzheimer's disease: a guide in twovoices.Minneapolis, MN: Augsburg Fortress Press, 1999.Green-Field Library Call No.: WM 220.5 S613 1999 Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 12
Strecker, TR. Alzheimer's: making sense of suffering.Lafayette, LA: Vital Issues Press, 1997.Green-Field Library Call No.: BL 625.9 S914 1997VideosCaring for a loved one with Alzheimer’s: an emotional journey.Brester, MA: Paraclete Video Productions, 2012Three experts, Mary Ellen Geist, Kenneth Doka, and Joanne Koenig Costediscus grieving and losses in their lives and yours, what it feels like when yourlove no longer helps, feelings of failure and guilt, handling frustration and anger,caring for yourself, and courage and sacrifice in Alzheimer caregiving.1 DVD (50 min.)Green-Field Library Call No.: WM 220 DVD no. 162 2012Care, PastoralArticles, JournalBarclay, A. Psalm 88: living with Alzheimer's. Journal of Religion, Disability &Health. Jan-Mar 2012; vol. 16(1), pp. 88-101.Abstract: 7.2012.645607Green-Field Library does not own.Farr, ED; Bute, J. Dementia: good living in our churches. Working with OlderPeople. 2015; vol. 19(3), pp. 134-139.Abstract: P-10-2014-0031Green-Field Library does not own.Finlay, MR. Righteousness in the land of forgetfulness. Journal of Religion andHealth. 2015; vol. 54, pp. 279-286.Full-text: Field Library does not own. Alzheimer’s Association Green-Field Library Spirituality and Alzheimer's Disease 2019 13
McGee, JS; Myers DR. Sacred relationships, strengthened by community, canhelp people with mild or early stage Alzheimer’s. Generations. Spring 2014; vol.38(1), pp. Field Library owns.McGee, JS; Zhao, HC; Myers DR; et al. Spiritual diversity and living with earlystage dementia. Clinical Gerontology. May-Jun 2018; vol. 41(13), pp. 261-267.Abstract: Field Library owns.Moore KJ; Goodison, H. Sampson, EL. The role of the memory service inhe
Persons Living with Dementia Care, Clinical Care, Family Care, Pastoral Diversity Persons Living with Dementia Articles, Journal Dalby, P. The lived experience of spirituality and dementia in older people living . Buddhist and Native American Spirituality and Aging. Journal of Relig
2. Talking about dementia 6 3. Talking about people with dementia 8 4. Talking about the effects of dementia 10 Symptoms 11 The impact of dementia 13 5. Talking about people caring for a person with dementia 14 6. Glossary of preferred terms 17 7. Cultural awareness and dementia 20
Kapic and Randall Gleason and Evangelical Spirituality by James Gordon. The former represents Puritan piety, whereas the latter, Evangelical spirituality.2 Before comparing 1 Joel Beeke, in his book Puritan Reformed Spirituality (Grand Rapids: Reformation Heritage Books, 2004), approaches Reformed and Puritan spiritualities as single entity.
2 FOCUS CE COURSE Spirituality and Social Work Originally printed December 2010 DEFINITIONS Spiritual / Spirituality Spirituality is an aspect of religious traditions, and also of existential value systems. Elkins (1988) gives this definition: “Spirituality, which comes from the Latin, spiritus, meaning breath of life,” is a
enabled participation in) service planning, delivery, feedback and evaluation. The . workforce. lacks an understanding of dementia and the knowledge and skills needed to deliver quality dementia care. There is a lack of meaningful . activities and . dementia-friendly environments for people living with dementia. Outcomes for people living
Vascular dementia is of particular concern to the Stroke Association, as up to 30% of stroke survivors will develop vascular dementia. Stroke doubles the risk of dementia and there is still a factors between stroke and dementia. The co-existence and co-development of these two conditions presents a very complex picture.
6 Dementia UK Isle of Wight Admiral Nurses service evaluation report Helping families face dementia Admiral Nurses provide the specialist dementia support that families need. When things get challenging or difficult, Admiral Nurses work alongside people with dementia, their families and carers: giving the one-to-one support, expert guidance and
dementia, moderate-severe dementia with behavioral symptoms, severe dementia behavioral problems N 719 (183 general practitioners, 176 cognitive disorder specialists, 281 other health care professionals, e.g. speech therapists, and 79 family care partners of people living with dementia. Garnier-CrussardA et al. JAD 2019. 6
take the lead in rebuilding the criminal legal system so that it is smaller, safer, less puni-tive, and more humane. The People’s Justice Guarantee has three main components: 1. To make America more free by dra-matically reducing jail and prison populations 2. To make America more equal by elim-inating wealth-based discrimination and corporate profiteering 3. To make America more secure by .
