2019 Rare Cancer Day Social Media Toolkit
2019 Rare Cancer Day Social Media ToolkitAs a voice in the rare cancer community, you can be a huge support to drive the conversationleading up to Rare Cancer Day 2019! The following is a social media toolkit that will help you toshare content and generate excitement before the big day (October 1), NORD has officiallyannounced this new awareness day via a press release (Aug 29) – now it’s time to encourageyour colleagues and networks to follow the conversation online will help spread the word!The toolkit includes helpful tips for using social media, customizable template posts, links toofficial social media properties including profile handles, hashtags and digital assets. Uponreceipt of the toolkit, we ask you to review the material and personalize the content so that it ismost authentic to you and your followers. You can then begin sharing!Table of Contents1.2.3.4.IntroductionHelpful Tips for Social MediaOfficial Social Media PropertiesCustomizable Template PostsHelpful Tips for Social Media Attach an image to your post – feel free to use these images, this infographic, or getcreative! Engage with your followers – if you receive questions or comments about your posts,respond to them! Social media is all about the engagement between followers and havinga conversation.
Tag your followers – is there someone that you know would like to get involved withRare Cancer Day? Tag them in your posts to let them know that you want their help inspreading the word. 280 characters – is the character limit on Twitter. 2,200 characters – is the character limit on Instagram. Short and sweet – Facebook and LinkedIn do not have character limits, but shorter poststend to be more effective.Social Media PropertiesThe official awareness day hashtag is #RareCancerDay. Please use this hashtag in all of yourposts before and during the day in an effort to create one centralized conversation about theimportant topics we will be discussing.Feel free to tag NORD in your posts using the profiles below:Facebook: @NationalOrganizationforRareDisordersTwitter: @RareDiseasesLinkedIn: @NationalOrganizationforRareDisordersInstagram: @nord rareThe image was created to promote the event, please feel free to download and share it on yoursocial media platforms.Customizable Post TemplatesBelow you will find customizable post templates that you can fill in for easy sharing on socialmedia, beginning on August 29 and leading up to Rare Cancer Day on October 1. Share a RareCancer Day infographic or feel free to get creative and share content that you feel would resonatebest with your network.Twitter Did you know about 1 in 5 people living with cancer in the U.S. have a rare cancer?October 1 is #RareCancerDay! @RareDiseases & the #rarecancercoalition invite you tojoin the zebra herd and spread the word about rare cancers! Visit bit.ly/2ZmL3yY to learnmore. {upload image provided or your own} “I’ve never heard of that!” How many times have people living with rare cancers gotten thatresponse? You may be rare, but you’re not alone! Join the zebra herd and spread the word for#RareCancerDay on Oct. 1. {upload image provided or your own} Have you or a loved one been impacted by a rare cancer? Join the rare cancer zebra herd and BEheard! Oct 1 is #RareCancerDay - share this infographic and help spread the word. Visitbit.ly/2ZmL3yY for more information. {upload image provided or your own}.
Rare cancer research can potentially advance the science for cures for more common cancers, yetresearch remains vastly underfunded. Let’s change that! Oct. 1 is #RareCancerDay. Visitbit.ly/2ZmL3yY for more information. {upload image provided or your own}. Genetic testing is critical for diagnosing rare diseases, but rare cancers are different! Molecularprofiling testing can identify possible treatments in rare cancers, but often isn’t offered orcovered by insurance. Spread the word for #RareCancerDay, Oct. 1.{upload imageprovided or your own}Facebook/LinkedIn/Instagram Did you know approximately 1 in 5 people living with cancer in the United States arediagnosed with a rare cancer1? Or that all pediatric cancers are rare? October 1, 2019 is#RareCancerDay! {tag NORD on channel of your choice} and the Rare Cancer Coalitioninvite you to spread the word about rare cancers! Visit bit.ly/2ZmL3yY to learn more.{upload image provided or your own} “I’ve never heard of that!” How many times have people living with rare cancers gottenthat response when sharing their diagnosis? Living with an uncommon cancer may leave youfeeling isolated. Remember: you may be rare, but you’re not alone! Get on board with {tagNORD on channel of your choice} and the Rare Cancer Coalition - join the herd and spreadthe word for #RareCancerDay on October 1! {upload image provided or your own} There is often significant delay for rare cancer patients to get an accurate diagnosis, typicallylonger than patients with more common cancers. Timely diagnosis can save lives2. Join the zebraherd and spread the word about rare cancers! #RareCancerDay is October 1. Visitbit.ly/2ZmL3yY for more information. {upload image provided or your own}.1 Rare cancer research can potentially advance the science for cures for more widespread cancers,yet research remains vastly underfunded. It is time for that to change! Oct. 1 is #RareCancerDay.Visit bit.ly/2ZmL3yY for more information. {upload image provided or your own}. Genetic testing is critical for diagnosing rare diseases, but rare cancers are different! Molecularprofiling testing can identify possible treatments in rare cancers, but often isn’t offered orcovered by insurance. Spread the word for #RareCancerDay, Oct. 1.{upload imageprovided or your own}The Burden of Rare Cancers in the United StatesCarol E. DeSantis, MPH 1*; Joan L. Kramer, MD2; Ahmedin Jemal, DVM, PhD3, May 22/caac.214002Evans RE, Morris M, Sekhon M, et al. Increasing awareness of gynaecological cancer symptoms: a GP perspective. Br J GenPract. 2014; 64: e372‐ e380.Crossref PubMed Web of Science Google Scholar
ImagesImages provided below are for your information. Please use the links below to download highresolution graphics.Images: 8/NORD RareCancerAwareness Logos.zipInfographic: 8/NORD RareCancer Facts.zip
The toolkit includes helpful tips for using social media, customizable template posts, links to official social media properties including profile handles, hashtags and digital assets. Upon receipt of the toolkit, we ask yo
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