Common Technology In Children With Medical Complexity

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Usually a long tube is placed first, then can bechanged to button tube once stoma hasepithelialized Increased risk of bowel obstruction and stricture,peritonitis in immediate postoperative period Avoids gastric outlet obstruction with tube throughpylorus (as in GJT) Tend to leak more

Important Information about G/GJ/J Tubes Know type & size of tube, balloon volume Postoperatively: Feeds started quickly after surgery Usually start continuous feeds first, then smallboluses, then full boluses May place G portion of GJ tube to intermittentsuction for post-op gastroparesis Initial G tube change occurs in SurgeryClinic 6 weeks post-op Subsequent G tube changes are done athome Size changes are best done in SurgeryClinic (stock and supplies) Maintenance: Clean daily with soap and water, avoidhydrogen peroxide G tube should be able to move up anddown 1 cm and rotate 180 GJ tubes do not rotate much Check balloon volume and change tubemonthly (may depend on health plan and# tubes provided to patient per month) Flush tube with water after feeds andmedications Use liquid form of meds wheneverpossible

Troubleshooting G/GJ/J TubesDISLODGEMENT If within 6 weeks of initialplacement: Place Foley one size smaller, do notinflate balloon or feed Fluoroscopy to replace ASAP If after 6 weeks: Can replace at home or in office Place Foley of similar diameter,secure with tape on skin Check for gastric secretions then canrestart feedsOBSTRUCTION Allow 1-3 ml of warm H2O to dwellfor 20 minutes, then gently pushand pull carbonated soda, pancreatic enzyme,or papain have been shown to beineffective Use 60mL syringe for smallerFrench tubes (NG, JT) to avoidrupture with excess pressure (30mLsyringe is safe for GT) Do not use stylet - breaks valves Last resort is to replace tube

Farrell* Valve System lldecompression-valve-system/ For gastric decompressionduring feeding Farrell bag should be hung at thesame height as the feeding bag The Farrell Y-port should be at orbelow the level of the patient’sstomach

ENFit Enteral Feeding Connectors Ubiquitous connection system* cancause serious misconnections Enteral vascular Vascular or Enteral tracheal even a blood pressure cuff (air) toperipheral IV 2017 GEDSA (Global Enteral DeviceSupplier Association) summit Plans to change all enteral feedingtubing connections to the ENFit system World-wide, staggered ds/2016/09/ESPENPresentation.pdf

Resources https://www.feedingtubeawareness.org/ ENFit: 9/ESPENPresentation.pdf Singhal, et al. Tube Feeding in Children. Pediatrics in Review January2017, 38 (1) 23-34

CLOSING DISCUSSIONYes, we can but should we?

Illustrative Case 17 year old boy with Multiple admissions over thelast 2 years for respiratory HIE due to drowning event at 2yoinfections (twice to PICU) significant upper airwayobstructiondespite aggressive airwayclearance with bronchodilators, severe neuromuscular scoliosiswith significant contractureshypertonic saline, vest, and GERD and dysphagia s/p GT andnocturnal BiPAPNissen His GI provider has been severe malnutrition due tostruggling to find a feedingchronic feeding intoleranceregimen he will tolerate; pressure ulcers over multiple bonymeanwhile he has becomeprominencesseverely malnourished43

Illustrative Case Mom expresses concern becauseshe and the orthopedic surgeonhave been trying to coordinatespinal fusion surgery Mom has, in the past, refusedtracheostomy, and she does nothave an advance directive at themoment What are the risks of spinal fusionin the patient’s current state? Inability to extubate Prolonged recovery period requiringinpatient care Poor w

can cause mucous plugs) Optimize airway clearance measures: vest, cough assist, albuterol, hypertonic saline, ipratropium, acetylcysteine Accidental decannulation 1. Replace the same tube (if not obstructed) 2. Replace with the same-size back-up tube in the “To Go ag” 3. R

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