Understanding Narcolepsy: Patient Counseling Guide More .
PATIENTGUIDEUNDERSTANDINGNARCOLEPSYThis brochure is designed to help you understandthe symptoms of narcolepsy, so you can discuss anysymptoms you may be having with your sleep specialist.
Table of ContentsOverview of Narcolepsy.2The 5 Major Symptoms of Narcolepsy.3The More Than Tired campaign was created to help improveawareness, recognition, screening, and diagnosis of narcolepsy.By providing education, information, and resources for peoplewho may be experiencing symptoms of narcolepsy, MoreThan Tired hopes to encourage and empower them to seek adiagnosis and get the help they need.Causes of Narcolepsy Symptoms.4Normal Sleep and Wake States.4Abnormal Sleep and Wake States.4Narcolepsy Symptoms.6Excessive Daytime Sleepiness.6Cataplexy.7To learn more about narcolepsy and find asleep specialist, visit MoreThanTired.comDisrupted Nighttime Sleep.8Sleep Paralysis.8Hypnagogic/Hypnopompic Hallucinations.9Getting a Diagnosis. 10What Else Will Your Sleep Specialist Want to Know?. 102 Tests Used to Diagnose Narcolepsy. 10Questions to Ask the Sleep Specialist. 121
The 5 Major Symptoms of NarcolepsyExcessive daytime sleepiness makes you feelan irresistible urge to sleep during the day,making it hard to stay awake and alert.Cataplexy is sudden muscle weaknesstriggered by strong emotions likeembarrassment, laughter, surprise, or anger.An estimated 50% of peoplewith narcolepsy have not beendiagnosed.Disrupted nighttime sleep is when youoften fall asleep quickly but wake upfrequently during the night.Sleep paralysis is a brief inability to move orspeak while falling asleep or waking up.Hypnagogic/hypnopompic hallucinations arevivid dreamlike experiences that seem real, areoften frightening, and occur while falling asleep(hypnagogic) or waking up (hypnopompic).Overview of NarcolepsyNarcolepsy is a chronic, life-disrupting neurologic disorder(involving nerve cells and chemicals in the brain) in which thebrain is not able to control sleep-wake cycles normally. Narcolepsy symptoms often start between ages 10 and 25 Getting the right diagnosis can take more than 10 years– Many disorders have some of the same symptoms–P eople can have an average of 6 doctor visitsbefore diagnosisThese symptoms are described in more detail in thisbrochure. You don’t need to have all of these symptoms tobe diagnosed with narcolepsy. Likewise, having any of thesesymptoms doesn’t necessarily mean that you have narcolepsy.It is important to tell your sleep specialist about all yoursymptoms and all the medications you are taking. It may behelpful that he or she speaks with someone who knows youwell. This person may notice subtle symptoms that you mightnot see yourself.A narcolepsy diagnosis should be made by a sleep specialist,who will review your symptoms and conduct appropriate sleeplaboratory testing.23
Causes of Narcolepsy SymptomsNormal Sleep and Wake StatesStable sleep and wakefulness require the proper boundariesbetween the brain’s wake- and sleep-promoting systems.Normal wake: Wake has characteristics that do not normallyoccur during sleep, such as alertness and muscle control.Normal sleep: Sleep has characteristics that do not normallyoccur during wake, such as dreaming and the inability to
THE SWISS NARCOLEPSY SCALE (SNS) can help find out if you have narcolepsy with cataplexy. Take the SNS screener at MoreThanTired.com. THE EPWORTH SLEEPINESS SCALE (ESS) can help rate your leve
narcolepsy and their families can help alleviate these secondary problems. Educating the public, especially school, health and human resource personnel, can help lessen or even prevent many of these problems. What is the Swiss Narcolepsy Scale? Swiss Narcoleps
Swiss Narcolepsy Scale Cataplexy may be di" cult to recognize, even by a sleep specialist, because it can present in many, often subtle ways, and patients are typically unable to give a cle
NARCOLEPSY Screening: Swiss Narcolepsy Scale; Ullanlinna Narcolepsy Scale, Epworth Sleepiness Scale Diagnosis: Clinical and laboratory Goals of therapy: Alleviation of EDS and producing the most robust improve
1 1 The Swiss Narcolepsy Scale (SNS) and its Short Form (sSNS) for the 2 discrimination of narcolepsy in patients with hypersomnolence: A 3 cohort study based on the Bern Sleep-Wake Database 4 Panagiotis Bargiotas 1*, Anelia Dietmann , Alan G. Haynes2, Ulf Kallweit1,3, Marta Garcia Calle1, 5 Markus Schmi
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Practicum and Internship Manual - 3 . CEPR Practicum and Internship Manual . Clinical Mental Health Counseling, Rehabilitation Counseling and School Counseling: Master’s and Doctoral Levels . This manual is intended to introduce students and supervisors to the Department of Counseling Educational Psychology and Research’s Counseling .
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