Beginner's Guide To Disability And Health Data System

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National Center on Birth Defects and Developmental DisabilitiesBeginner’s Guide to Disability and Health Data SystemNaTasha Hollis, PhDAlissa Stevens, MPHJune 21, 2018

Before We Get Started Disability and Health Data System DHDS Beginner’s Guide to DHDS (today)– Background– Demonstration– Q&A DHDS: Beyond the Basics (Tuesday 6/26)

NCBDDD Organizational Chart

Disability and Health Branch (DHB) MissionPromote the health and full participation in society bypeople with disabilities across the lifespan.

DHB Core Principles

Disability 101 Disability is:– Impairment, activity limitation,participation restriction– Visible or hidden– Diverse group with wide range ofneeds Disability is not:– Ill health

Why is This Important? Disability impacts all of us Approximately 57 millionpeople in the U.S. have adisability Health disparities existDisability is often not considered as ademographicgroup

How can we monitor health amongpeople with disabilities to determinewhere to target efforts to improve health?DHDS can help!

What is DHDS? Online, interactive data system State, HHS region, nationallevel data Dedicated to disability andhealth

What Data are in DHDS? 2016 data analyzed from theBehavioral Risk FactorSurveillance System (BRFSS)– Disability status (any disability, nodisability)– Disability types (cognitive, hearing,mobility, vision, self-care,independent living)– Approximately 30 demographicand health measures

Measure of Disability Status and Types Hearing: Are you deaf or do you have serious difficulty hearing? Vision: Are you blind or do you have serious difficulty seeing, even whenwearing glasses? Cognitive: Because of a physical, mental, or emotional condition, do youhave serious difficulty concentrating, remembering, or making decisions? Mobility: Do you have serious difficulty walking or climbing stairs? Self-care: Do you have difficulty dressing or bathing? Independent living: Because of a physical, mental, or emotionalcondition, do you have difficulty doing errands alone such as visiting adoctor’s office or shopping?

How Can I View DHDS Data?1. Explore by Indicator

How Can I View DHDS Data?1. Explore by Indicator2. Explore by Location

How Can I View DHDS Data?1. Explore by Indicator2. Explore by Location3. DHDS Data Portal

Demo:https://dhds.cdc.gov

Why Use DHDS? Identify differences in health for adults with disabilities comparedwith adults without disabilities Identify opportunities to include the needs of adults withdisabilities in programs and policies Generate research questions to investigate factors that contributeto differences in health experienced by adults with disabilities

DHDS Data to Action Developing reports Gaining community Teaching others toaccess disabilitysupportand grantdataproposals Planning program Educating decision Individual researchprioritiesmakers

3 Things to Do Next with DHDS1. Explore DHDS to get familiar with its data and features!2. Complete the online survey to provide us feedback on yourexperience: https://www.surveymonkey.com/r/Q5RRXK33. Send us additional questions at disabilityandhealthbranch@cdc.gov.

DHDS: Beyond the Basics Tuesday, June 26 3:00 – 4:00 PM EST Register 4752253403485186

Thank you!disabilityandhealthbranch@cdc.govFor more information, contact CDC1-800-CDC-INFO (232-4636)TTY: 1-888-232-6348 www.cdc.govThe findings and conclusions in this report are those of the authors and do not necessarily represent theofficial position of the Centers for Disease Control and Prevention.

Hearing: Are you deaf or do you have serious difficulty hearing? Vision: Are you blind or do you have serious difficulty seeing, even when wearing glasses? Cognitive: Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? Mobility: Do you have serious difficulty walking or climbing stairs?

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