Spirituality And Religion At The End Of Life - Be.Macmillan

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Spirituality and religion atthe end of lifePalliative Care, End of Life Care and Bereavement

This booklet uses easy wordsand pictures to help you getinformation about cancer.You might want someone tohelp you look at the bookletso you can talk about it.There is a Word Bank at theback of the booklet to helpwith hard words. Any wordsin bold you can find in theWord Bank. CHANGE 2016This booklet can help youlearn about cancer. But thisis not the same as talking toyour doctor. If you areworried about your health,you should talk to a doctoror nurse.

Spirituality and religion at theend of lifeWhen people come to theend of their lives theysometimes think aboutwhat will happen afterthey die. No one reallyknows what happens afterwe die.Religion and spiritualityare beliefs and ideas thatpeople have to help themunderstand life anddeath. Each person mayhave different ideas aboutspirituality or religion.Different faiths andreligions each have theirown ideas of whathappens when people die. CHANGE 20163

Spirituality and religion at theend of lifeIf you have a religion thenyou might find it helpful totalk to someone fromyour religion for support.People like priests orspiritual advisors cansupport people at difficulttimes in their lives.You may have your ownspiritual ideas that giveyou personal comfort. CHANGE 20164

Spirituality and religion at theend of lifeSome people find thatdoing things like walkingin nature makes themfeel more spiritual.Some people find thatlistening to music makesthem feel more spiritual. CHANGE 20165

Word B a nkDrawing by Tracey HarrisonVolunteer and Illustrator with learning disabilities

Word BankBereavementBereavement is the feelingof loss and grief thatsomeone may feel whensomeone they loved, orwere close to, has died.End of life careThis is care and supportto help a person duringthe last weeks and daysof their life until they die.Religion and spiritualitySpirituality and religionare beliefs and ideas thatpeople have to help themgive meaning to life andunderstand death. CHANGE 20167

Word BankPalliative careThis is the support andcare people have whentheir illness can’t becured. It means makingthe person as comfortableas possible withmedicines.It also means helpingthem with their feelingsand any spiritual needs. CHANGE 20168

Notes CHANGE 20169

Us eful conta ctsDrawing by Tracey HarrisonVolunteer and Illustrator with learning disabilities

Useful contactsHelpful organisationsCancer Research UKA charity that is researching treatments for cancer. Its websitehas lots of information about cancer.Phone: 0808 800 4040Web: www.cancerresearchuk.orgHospice UKGives information abouthospices in the UK.Phone: 020 7520 8200Web: www.hospiceuk.orgMacmillan Cancer SupportA charity that helps people who have cancer. They give practical, medicaland financial support. They try to make cancer care in the UK better.Phone: 0808 808 00 00Web: www.macmillan.org.ukMarie CurieA charity that helps people whoare dying.Phone: 0800 090 2309Web: www.mariecurie.org.uk CHANGE 201611

Useful contactsNHS ContactsThese contacts give you informationabout your health and healthservices:England and Scotland Phone: 111Wales Phone: 0845 46 47Northern Ireland Web: www.hscni.netPalliative Care for People with Learning Disabilities Network(PCPLD Network)A group of people sharing information to improve end of life care forpeople with learning disabilities.Email: info@pcpld.orgWeb: www.pcpld.orgPaul’s Cancer Support CentreGives help, information and complementary therapies to people withcancer.Phone: 0207 924 3924Web: www.paulscancersupportcentre.org.ukRESPONDGives therapy to people with learning disabilities after trauma or abuse.They also offer training and support to carers.Phone: 0808 808 07 00Web: www.respond.org.uk CHANGE 201612

Useful contactsSamaritansHelps anyone who is in distress orsuicidal. They are open all thetime - 24 hours a day.Phone: 116 123Web: www.samaritans.org.ukEmail: jo@samaritans.orgWritten and audio materialBooks Beyond WordsA series of picture books for people with learning disabilities. The bookstalk about cancer, health and bereavement.Web: www.booksbeyondwords.co.ukPhone: 020 8877 9799Email: admin@booksbeyondwords.co.ukFAIR MultimediaPublishes a range of health leaflets, audiodiscs and CDs for people with learningdisabilities. This includes a series on cancer.Email: fair@fairadvice.org.ukPhone: 0131 662 1962Web: www.fairadvice.org.uk/health-publications.php CHANGE 201613

Useful contactsOnline helpVideos and DVDswww.easyhealth.org.ukHas lots of online healthinformation that is easy tounderstand.www.macmillan.org.ukHas lots of information aboutcancer and where to get help.You can also talk to otherpeople with cancer in theonline community.Leeds Animation WorkshopHas animated films on social issues for people with learning disabilities. Thereis one called ‘Getting Better’ about going to the doctor and the health clinic.Phone: 0113 248 4997Web: www.leedsanimation.org.uk/index.htmlSpeak Up Self AdvocacyHas DVDs and booklets for peoplewith learning disabilities about healthand illness.Web: www.speakup.org.uk CHANGE 201614

CHANGE is a leading national Human Rights organisation led bydisabled people. We work for equal rights for all people withlearning disabilities. The cancer books and booklets thatCHANGE have produced are part of an ongoing campaign toraise awareness about the issues of cancer for people withlearning disabilities. You can call CHANGE on 0113 242 6619,email info@changepeople.org or find us atwww.changepeople.orgMacmillan Cancer Support has reviewed the information in thisbooklet and paid for it to be produced. They are a charity whohelp people with cancer. They have nurses and other healthworkers. They try to make cancer care in the UK better. Theyhave experts who can answer your questions about cancer andhow it affects your life. You can call Macmillan on 0808 808 00 00or textphone 0808 808 0121 (Mon–Fri, 9am–8pm). Or go tomacmillan.org.ukThis easy read booklet was produced by CHANGE CHANGE 2016

end of life When people come to the end of their lives they sometimes think about what will happen after they die. No one really knows what happens after we die. Religion and spirituality are beliefs and ideas that people have to help them understand life and death. Each person may have different ideas about spirituality or religion. Different .

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