Provincial Palliative And End Of Life Care
Provincial Palliativeand End of Life CareJanuary 2016Happy New Year!The Palliative and End of Life Care (PEOLC) Innovations SteeringCommittee met on December 10, 2015 and endorsed the HealthCare Provider infographic (featured on the right). Also at theDecember meeting, committee members recommended that aninfographic targeted to patients and families should be developed.The provincial PEOLC team will be working with the patient andfamily representatives from the steering committee to draft thisversion in the coming months.Over the last few months, the steering committee and workinggroups have been working on the following initiatives: Alberta PEOLC Website (page 3)Community Support Initiative (page 3)EMS PEOLC Assess, Treat and Refer 2.0 (page 2)Provincial Bereavement Initiative (page 3)Volunteer Network Support Plan (page 4)Also the steering committee will be partnering with the ClinicalKnowledge Team to develop three Clinical Knowledge Topics forPEOLC. More information can be found on page 4.We are also pleased to announce that Aurora Leang has beenchosen as the successful applicant for the Project Coordinatorposition within the PEOLC team. In the last two years, Aurora hasworked with the Community, Seniors, Addictions and Mental Healthportfolio within AHS providing admin and project support. Pleasejoin me in congratulating and supporting Aurora in her new role.The provincial PEOLC team would like to express our thanks forthe many hours of time, effort and commitment to those individualswho have participated on the steering committee, working groupsand those who have contributed to the development andimplementation of the Palliative and End of Life Care AlbertaProvincial Framework Initiatives 74.aspx).Thank you for a fantastic 2015. Looking forwardto an incredible 2016.1https://myhealth.alberta.ca/palliative-care
EMS PEOLC Assess, Treat, and ReferPhase I ImplementationIn late November, the program wasactivated by a home care clinician onscene with a client in northwest CalgaryZone. Due to EMS’s borderless responsesystem, a crew out of Olds (Central Zone)was assigned to the event. Together homecare and EMS provided support to theclient to manage their pain crisis at s.caLeAnn.Esau@albertahealthservices.caInquiries from EMS related to the Assess, Treat and Refer program may bedirected to: Cheryl.L.Cameron@albertahealthservices.caPhase II DevelopmentThe working group continues torefine the protocol enhancements forPhase II including remote clinicianaccess and EMS activation of theprogram. The program team continues to workclosely with Pallium to evaluate theLearning Essential Approaches toPalliative and End of Life Care(LEAP) Paramedic pilot andinvestigate additional opportunities. -Clinician activatesby phoning 911 andrequesting PEOLCEMS support- Clinician & EMScollaboration onscene- Tailored treatmentplan in conjunctionwith online medicalcontrol- Implementedwithin the2014/2015 fiscalyear- Building from Phase I, EMScrews will now also identifyPEOLC patients and phonecommunity supports tomaintain the patient in thecommunity setting- Remote access by clinicianenroute to scene- Follow up process if cliniciancannot attend to scene- Medical Control Protocols- Physician specialist support- Alternate transportdestinations (hospice/ward)- Inclusion of CCP programs- Additional PEOLC education- Building from PhaseII, patients andfamilies will activatethrough 911requesting EMS forpalliative and end oflife support- Expand treatmentmodalities- Pediatric population- Inclusion of all PEOLCclients not definedon registryGot a Question? Contact us myhealth.alberta.ca/palliative-care
Palliative and End of LifeCare WebsitePEOLC BereavementInitiativeThe workinggroup is leadingthe developmentof greatimprovements toboth images andcontent on oursite. Excitingnew content forvolunteerservices andbereavementpages is in theplanning phase.We are full steam ahead on developing both theonline resource directory and our final reportoutlining recommendations. Our awesome large(22 member) working group has endorsed the useof a provincial bereavement package (What Do IDo Now?) to be given to families post death. EachZone has the ability to customize this package toinclude bereavement information, resources andprograms. We are also reviewing Zone specificgrief care materials to see if we can “standardizeprovincially but implement locally”. Why re-inventthe wheel?Both of thoserooms are getting a full makeover and will beamazing when done. A major new feature in2015/16 will be “just in time” symptommanagement clinical content for health careproviders.To help drive more people to the website a newmarketing post card for patients, families andhealth care providers is finalized and going to print.Please contact Sharon.iversen@ahs.ca if you would like more informationCommunity Support PlanA survey was distributed to hospice societies/PEOLC associations at the November 2015 Alberta HospicePalliative Care Association’s Imagine Conference. Feedback from the surveys has been collated andcommon themes have been identified as to what the needs are to enhance palliative and end of life carecapacities in Alberta communities. To address these needs, a draft “toolkit” or guidelines document is inthe process of being developed.The working group plans to involve the societies and associations in the development of the document byrequesting their feedback and input.3https://myhealth.alberta.ca/palliative-care
PEOLC Volunteer Network Support PlanBy March 31, 2016 the expected outcome of this initiative is to develop manual(s) with standardized bestpractice recommendations to help guide volunteers, volunteer managers and healthcare providers toenhance and improve the effectiveness of PEOLC volunteer programs and services in Alberta, includingrecommendations for education. In addition a cost-analysis will be completed outlining what the fundingrequirements would be to implement the proposed recommendations as needed for PEOLC Volunteerservices and education/training across Alberta.Update of current progress: A description of the roles and training of volunteers involved in palliative and end of life care servicesin each zone across Alberta has been collated. A literature review has been completed by the working group. The final draft of the Provincial Volunteer Resource Training Manual has been completed and iscurrently at a English editor for review. The Rotary Flames Volunteer Resource Manual will be posted on the AHS Volunteer Resourceswebpage and a link will be provide on the Health Care Provider and Volunteer “room” on theProvincial PEOLC website. The working group is currently revising, enhancing, and updating the multi-zone AHS VolunteerFacilitator’s Manual and incorporating best practice guidelines. The working group is also brainstorming the final deliverable around cost analysis to implementPEOLC volunteer programs and services where there are gaps in Alberta.For more information please contact michelle.petersonfraser@ahs.caClinical Knowledge Topic TeamThe clinical knowledge will be built into CISs to providefront line workers access to provincial guidelines, withthe goal of improving patient outcomes.CKTs will include order set components, documentationThe Provincial Palliative and End of Life Innovationtools, guidelines/protocols, patient teaching materialssteering committee has prioritized the following threeand moreCKTs to be developed by the Clinical Knowledge Team:CKTs will be built into CISs to provide front line workers Advance Care Planning and Goals of Careaccess to provincial guidelines, with the goal ofimproving patient outcomesDesignation; End of Life Care Guidelines; andThe goal of the Clinical Knowledge Team is to create,Provincial Palliative Sedation Policy.maintain and disseminate provincially adjudicated best practice/evidence-informed clinical standards for defined Email Katrina Simpson-Pineda at Katrina.Simpsondiseases/conditions or specific patient populations.Pineda@ahs.ca, the Clinical Informatics Lead if youClinical Knowledge Topics (CKTs) will include order set have any questions. We are also in the process of hiringcomponents, documentation tools, guidelines/protocols, a Palliative Clinical Knowledge Lead (F.T.E. 0.1).patient teaching materials, etc.Goal is to create, maintain and disseminate bestpractice/evidence-informed clinical standards for defineddiseases/conditions or specific patient -care
On any given day in hospice palliative care, we’re faced with the realitythat the end of life is a complex journey. Family dynamics,spirituality, pain and suffering, physician assisted death, andeven ethics are just some of the difficult issues we face.Learning to navigate these real life problems that come withliving, working, and volunteering in hospice palliative care isthe topic for the AHPCA 2016 Roadshow.“It’s About Life: Navigating the Reality of HospicePalliative Care” is an interactive full-day workshop which willhelp you develop practical strategies through inspiringdiscussions, self-reflection, and thought-provoking case studiesprovided by our Roadshow communities.REGISTER ONLINE at AHPCA.ca or call Theresa Bellows at 403-473-7845Banff & CanmoreGrande PrairieWednesday May 4, 2016Wednesday June 1, 2016The Fenlands Banff Recreation Centre100 Mt Norquay Road, Banff, ABGrande Prairie Regional College10726 106 Avenue, Grande Prairie, ABWorkshop 9:00-4:00 pm Registration and Coffee 8:30 amWorkshop 9:00-4:00 pm Registration and Coffee 8:30 amWorkshop Fees (Includes lunch)Workshop Fees (Includes lunch) 10.00 for current AHPCA members(register prior to March 31, 2016 for this rate) 65.00 for new members(includes AHPCA/CHPCA membership to March 2017) 10.00 for current AHPCA members(register prior to March 31, 2016 for this rate) 65.00 for new members(includes AHPCA/CHPCA membership to March 2017)Host: Town of Banff/Town of Canmore FCSSHost: Grande Prairie Hospice Palliative Care SocietyRed DeerEdsonWednesday June 14, 2016Monday October 3, 2016Westerner Park4847A 19 Street, Red Deer ABSeniors Pioneers Cabin4836 – 7 Ave, Edson ABWorkshop 9:00-4:00 pm Registration and Coffee 8:30 amWorkshop 9:00-4:00 pm Registration and Coffee 8:30 amWorkshop Fees (Includes lunch)Workshop Fees (Includes lunch) 10.00 for current AHPCA members(register prior to March 31, 2016 for this rate) 65.00 for new members(includes AHPCA/CHPCA membership to March 2017) 10.00 for current AHPCA members(register prior to March 31, 2016 for this rate) 35.00 for new members(includes AHPCA/CHPCA membership to March 2017)Host: Red Deer Hospice SocietyHost: Edson FCSS ProgramPlease register at www.ahpca.caThis workshop can be used for Continuing Education e
Edmonton ZoneCharting the Course: Legal Guidance in Preparing Advanced Care PlansAs our population ages, more and more people are giving serious thought towhat their healthcare might look like should they develop a serious illness orcondition. Personal beliefs, wishes and preferences have become criticallyimportant as patients take an active role in deciding what treatments they arewilling to receive, at what point they no longer wish to receive treatment, andexactly how much medical intervention they want done on their behalf if theyare no longer able to speak for themselves.There can be difficult choices to be made, some of which can evolve into complex legal matters. Thechallenge for patients – and potential patients – can be finding a legal representative who is familiarnot only with the laws around advanced care plans but who also has a clear understanding of thecourse of illnesses, institutional practice and documents, and the sorts of medical conversations thatmay be necessary to make important ‘in-the-moment’ decisions.People often seek help from lawyers to plan for their future in various ways including writing wills andappointing a representative to manage their finances – it only makes sense, then, that they would wishto consult on future healthcare as well. What is needed, though, are a set of resources which providesmembers of the legal profession with the background that they need to ensure that the wishes of theirclients are clearly understood when they are unable to speak for themselves.Covenant Health’s Palliative Institute, the University of Calgary and the University of Alberta jointlyreceived funding through Alberta Innovates – Health Solutions’ Collaborative Research and InnovationOpportunities (CRIO) to determine exactly what types of resources would be useful to the legalcommunity to assist their clients with essential and binding Advanced Care Planning services. Startingin February 2015, inclusive consultation meetings were held in both Calgary and Edmonton to discussthe topic with lawyers in private practice; those who represented Alberta Health Services; CovenantHealth; the Office of the Public Trustee and Guardian; Calgary Legal Assistance; Legal EducationSociety of Alberta; physicians with end-of-life care expertise; ethicists; members of the public; a socialworker, and the Advanced Care Planning – CRIO team members.The consensus from the first meeting and other consultations that followed is that a framework for acollaborative model needs to be created so that clients/patients receive optimal Advanced CarePlanning support. Both lawyers and medical practitioners need to be better informed, engaged andinvolved in the process. The resulting team approach, where all of the client’s best interests would befairly and clearly represented.Workshops, focus groups and conversations are ongoing through the efforts of the ACP team. Asurvey was developed around ACP best practices and sent to practicing lawyers, and it may also beused in other locations in both Canada and Australia. Ultimately, the goal of the project is to developan effective medical/legal framework for advanced care planning that will enhance the standards ofend of life care for patients by ensuring that their wishes are heard, understood and care
Calgary ZoneCall for Poster AbstractsAlberta Health Services Palliative/End of Life Care – Calgary Zone invites you to submit an abstractfor poster presentation at the 16th Annual Mary O’Connor Palliative and Hospice Care Conferencebeing held April 27, 2016 at MacEwan Hall, University of Calgary Campus in Calgary, Alberta. Thedeadline for abstract submission is 4:00 PM, January 29, 2016.The theme of the 2016 Conference is Through the Eyes of the Beholder: Multiple Perspectives inPalliative Care. The overall goals of the conference are to understand new trends in palliative andhospice care, gain new information regarding palliative care, network with colleagues, and tocelebrate, support and strengthen the future of palliative and hospice care. To achieve these goalswe believe that showcasing the work that is taking place within our healthcare system will do just that.Poster presentations associated with palliative and end of life care can be related to current or recentresearch studies, innovative practices, quality improvement projects, or program evaluations withrelated learning.All abstracts selected for poster presentation will be published in the conference program which alldelegates at the conference receive.Submission Deadline: January 29, 2016 – 4:00 p.m.For additional information, please contact: Pat Munro, Advisor, Conference Planning Services at(780) 644-8638 or ative-care
When a child has a life-limiting or medically-complex illness, the stress of providing round-the-clock carecan weigh heavily on parents and leave many feeling more like full-time nurses than moms and dads.Managing medications, therapies and appointments can be so physically and emotionally exhausting thatthere is little time left for other siblings, let alone parents themselves. Attending family gatherings, enjoyinga relaxing dinner, even getting a good night’s sleep are out of reach for many families whose children havemedical needs too challenging to entrust to anyone but the specially-trained.Thanks to community support,on respite care at Rotary Flamesthese families have accessHouse more than 250 times. Theto respite care at Rotary FlamesOkubos are one of those families.House, which allows them muchLittle Eliina was born with Trisomyneeded breaks for rest and18, a life-limiting genetic disorderrenewal. Specialists at Rotarythat can claims the lives ofFlames House are well-equippedchildren when they are just daysto care for children with veryor weeks old. “Eliina has ancomplex conditions so parentsincredible fighting spirit,” says herand siblings can have peace ofmom, Rhonda. “She’s two yearsmind knowing that their kids are inold now and we’re so grateful forverykindandthe time we’ve beencapable hands. In “Though our time with Eliina given to love andfact,community is limited, the team at Rotary enjoy her.” Rhondasupport has now Flames House is helping us attributes a large parthelpedexpand ensure it’s very meaningful of the family’s abilityservices,makingto give Eliina the bestand special.”them available tolife possible to the- Eliina’s mom, Rhondachildren who havecare provided throughhad tracheostomies –Rotary Flames Housesurgically implanted breathing– care for her daughter, herself,tubes. Patients and familiesher husband and their two otherbenefit from many resourceschildren.includingtherapeuticday“When Eliina goes in for respiteprogramming, a parent supportcare, she is embraced with suchgroup, a sibling support group andlove and compassion by her teamsocial events, activities andof caregivers,” says. Rhonda.entertainment that provide new“Respite is such a wonderful gift torecreational,socialandus too. It allows us a short breakdevelopmental opportunities forfrom our daughter’s round-thethis special group of children.clock care to spend time with ourIn the 2014-15 year, families reliedother kids and get a solid We can rest easy, knowing Eliinais being cared for by a team with acombination of specialized skillsand love. And though our timewith her is limited, the team atRotary Flames House is helpingus ensure it’s very meaningful andspecial.”Eliina Okubo and her mom,Rhonda benefit from donorfunded respite care at RotaryFlames House.
North ZoneOur North Zone Palliative Care Team is pleased toannounce the hiring of LJ Gregory!! LJ will be basedin the Peace River and will be the Palliative CareResource Nurse for the Peace River, High Level,LaCrete and surrounding areas. We will providemore information as to her contact numbers once shehas completed her orientation and is settled in heroffice. Please join us in welcoming LJ to the teamWe were also invited to present “Final days andHours” for the Lac La Biche nursing staff at theirnursing skills day. Thank you for the opportunity toshare our palliative care knowledge with your nursingstaff. We look forward to seeing you in February2016 for a new palliative care discussion.The EMS Palliative End of Life Assess Treat andRefer program has been introduced into a number ofcommunities in the North Zone, including FortMcMurray, Grande Prairie, St. Paul, Elk Point, ColdLake and Onoway. We have had several activations,with positive feedback from staff involved. We werepleased to have staff from Onoway take part in twoPatient Experience sessions at the Edmonton EMSSymposium, where one of the families shared howthis experience supported their preference to keep afamily member at home to the end of their life.In October, the LEAP program went north to Ft.McMurray. In November, LEAP was taught inBonnyville. Both sessions were very well attended.So to keep the ball rolling for 2016 (which is a Leapyear!), plans are underway to present the LEAPprogram again in Bonnyville on Februrary 5-6, 2016and Fort McMurray in March. Please feel welcometo sign up through Pallium and join us!A huge thanks to all those involved in arranging,planning and presenting the LEAP programs in theNorth Zone.ContactsBarbara O’Neill,Dr. James Silvius,james.silvius@ahs.caProvincial Medical Director, Community,Seniors, Addictions & Mental Healthbarbara.o’neill@ahs.caSenior Provincial Director, Cancer SCN &Critical Care SCNMichelle Peterson Fraser,Dr. Eric Wasylenko,michelle.petersonfraser@ahs.caLead, Palliative & End of Life Care, Community,Seniors, Addictions & Mental Healtheric.wasylenko@ahs.caProvincial Medical Advisor, Advance CarePlanning/ Goals of Care Designation InitiativeSharon Iversen,Claire Chapman,sharon.iversen@ahs.caEducator, Palliative & End of Life Care,Community, Seniors, Addictions & Mental Healthclaire.chapman@ahs.caLead, Advance Care Planning / Goals of CareDesignationRichard Wallington,Cheryl Cameron,richard.wallington@ahs.caDirector, Alberta Thoracic Oncology Programcheryl.L.cameron@ahs.caEMS Lead Palliative & End of Life Care,Community, Seniors, Addictions & Mental HealthGeneral questions or comments,Aurora ject Coordinator, Palliative & End of LifeCare, Community, Seniors, Addictions & Mental9https://myhealth.alberta.ca/palliative-care
Happy New Year! Provincial Palliative and End of Life Care January 2016 The Palliative and End of Life Care (PEOLC) Innovations Steering . both images and content on our site. Exciting new content for volunteer services and bereavement . wishes and preferences have become critically impor
organizational chart office of the provincial administrator for external affairs office of the provincial governor provincial treasury office provincial informati provincial accounting office provincial budget office general services offce provincial assessor's office resources office provincial legal office human resource mgt. offce on and
DEPARTMENT DIVISION NAME Family Medicine Palliative Medicine Algu,Kavita Palliative Medicine Arvanitis,Jennifer Palliative Medicine Berman,Hershl (Hal) Palliative Medicine Buchman,Stephen (Sandy) Palliative Medicine Cellarius,Victor Palliative Medicine Goldman,Russell Palliative Medicine Hashemi,Narges Palliative Medicine Howe,Marnie
palliative care plan 2012-2016 Inpatient palliative care There are 300 specialist palliative care beds located in NSW public hospitals, affiliated hospitals and other facilities in the NSW health system. Care is also routinely provided in non-designated palliative care beds. In 2008-09, there were 19,800 palliative care
1 Palliative Care Quality End of Life Care Resource Book Palliative Care Needs Round Checklist (Based on the ACU and Calvary Palliative Care Needs Rounds Checklist) Palliative Care Needs Round Checklist Triggers to discuss resident at needs rounds One or more of: 1. You would not be surprised if the resident died in the next six months 2.
national initiatives to advance palliative and end-of-life care. They include the lengthy national consultation process that led to the 2002 publication, A Model to Guide Hospice Palliative Care, by the Canadian Hospice Palliative Care Association. Many also contributed and responded to the province's 2002 Discussion Paper on a Provincial .
Alberta Health Services Palliative and End-of-life Care Provincial Framework 3 This Palliative and End-of-Life Care (PEOLC) Provincial Framework has been written by experts in PEOLC across Alberta. The primary audience for this document is PEOLC interdisciplinary team providers, policy makers and service administrators.
End of Life Nursing Education Consortium, Pediatric Palliative Care – ELNEC PPC ELNEC- Pediatric Palliative Care was designed and developed by 20 pediatric palliative care experts and piloted in 2003. Each year, at least three national train -the-trainer pediatric palliative care
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