Valuing People Now - GOV.UK
Valuing People Now:Summary Report March 2009 - September 2010Including findings from Learning DisabilityPartnership Board Self Assessments 2009-2010
VPN Summary Annual Report September 2010ContentsForeword by the Minister for Care Service3Executive summary4Background21Chapter 1: Introduction22Chapter 2: Summary Partnership Board Annual Report responses25Chapter 3: Health29Chapter 4: Housing - where people live35Chapter 5: Employment41Chapter 6: Other priorities50Chapter 7: Regional and local progress: other priorities54Chapter 8: Conclusion632
Foreword by the Minister forCare ServicesI am pleased to see the good progress that has been made in improvingoutcomes for people with learning disabilities and their family carers over the 18months to September 2010. It is so positive to see the developments in allsectors – state, voluntary and private – putting people with learning disabilitiesand their families at the centre of developments. Our vision can only be deliveredthrough a partnership approach.All 152 Learning Disability Partnership Boards produced an annual report settingout the progress they had made. It is excellent to see the high level ofinvolvement of people with learning disabilities and family carers. PartnershipBoards are an inspiring example of involving people and can serve as a usefulmodel for the proposed Health and Welling Being Boards.This report shows how providing clear and transparent information can enablelocal people to look at progress and improve services at a local level. The reportincludes many examples of good practice which show how to drive forwardefficiencies whilst improving the lives of individuals.We know that there is still more to do to ensure that the Government’s vision ofequity and excellence and personalised services delivers for all people withlearning disabilities. There is still, for instance, a real challenge to improvetransition from children to adult services. Actively encouraging planning acrosschildren and adult services is critical to success. Learning disabilities led the wayin personalisation and will continue to drive forward the future.Achieving genuine equality and tackling disadvantage requires continuedengagement across the health and social care system and across the communityand voluntary sector in the three priority areas of health, housing andemployment to improve outcomes for people with learning disabilities and theirfamilies.Paul Burstow MPMinister of State for Care Services3
Executive summaryIntroductionThis is a report about making Valuing PeopleNow happen for everyone with learningdisabilities and for their family carers.It is a summary of what the Learning DisabilityPartnership Board said about what they did fromApril 2009 to April 2010.It also says what has happened since then up toSeptember 2010.Valuing People Now is the name of the bigplan the Government made. It talks about whatneeds to be done to make the lives of peoplewith learning disabilities better.Partnership Board - It is a group of peoplefrom your local area. They meet to decide whatneeds to happen to make the lives of peoplewith learning disabilities better by making thethings in the Valuing People Now plan happen.4
BackgroundIn October 2009, the Department of Health sentgood practice guidance to all Learning DisabilityPartnership Boards.This said that Partnership Boards have animportant role in making change.Valuing People Now said that from April 2010 allPartnership Boards could make a report everyyear on their progress in making this happen.The information from these reports showed thegood work being done locally and whereimprovements needed to be made.5
All Partnership Boards reported on progressmade from April 2009-March 2010 and sent thisto their Regional Programme Board by 31March 2010.Each Regional Board put all the local reportstogether and made a summary report aboutprogress in their region.The report gave Partnership Boards the chanceto put together information they have locallyabout people with learning disabilities and theircarers.The main points from the regional summarieswere discussed at the national LearningDisability Programme Board in June 2010.6
What the report is about: This report is based on the summaryreports from the regions. The information in this report is up toSeptember 2010. The report looks at the Valuing PeopleNow key areas and these are: Health7
Housing EmploymentThis report also includes examples of good casestories at a regional and local level.More about this reportAll Partnership Boards completed a report: 152 out of 152 boards have sent in anannual report 117 out of 152 reports were signed off bypeople with learning disabilities 117 out of 152 reports were signed off byfamily carers.8
People told us that they did not sign the report because there was not enough time, the report was too complicated tounderstand and Some family carers said they were onlyable to speak for themselves and not alllocal families.All areas followed up the reports that were notsigned.9
What were the big successes in 2009/10? All 9 regions were pleased with theirprogress on health but said there wasmore to do 7 out of 9 regions were pleased with thelocal progress on making change happenon jobs 5 out of 9 regions were very proud of theleadership from people with learningdisabilities and families.What were the problems faced in 2009/10: 7 of 9 regions said much more work isneeded to make sure outcomes areachieved on jobs and housing 5 out of 9 regions said closing NHSCampuses on time was difficult 4 out of 9 regions said a lot more workneeded to be done to improve transition foryoung people.10
Progress on Health:Regions reported on the progress made onresponding to the Ombudsman’s Six Lives reportbig questions.Health Self-Assessment Process: 8 Regions completed in 2009/10 North West region will complete in Autumn2010 Every Region plans to carry on with thehealth self-assessment every year.Better Health CareAll regions report improvements in healthcare,including more: acute liaison nurses annual health checks patient passports and communicationbooks.Health organisations told us they need to work onbetter systems to identify people with learningdisabilities.11
The number of people receiving an annual healthcheck increased from around 27 thousand in2008/09 to around 59 thousand in 2009/10.This is still not enough. Half of the people whocan have an annual health check are still notgetting one.12
Progress on Housing:Good progress was made in closing HealthCampus Homes: 947 people were living in NHS campusesat 30 September 2009 753 people were living in campuses at 26March 2010 543 people were living in NHS campusesat 24 September 2010.Council Money for Learning Disabilities used on care homesin 2008/09 54 out of 148 councils spent less than 409%36%out of 100 percent 82 out of 148 councils spent between 4055%out of 100 and 60 out of 100 percent onresidential care 12 out 148 councils spent more than 60 outof 100 percent on residential care.13
Housing – Regional programmesAll regions have regional teams working on ahousing plan to improve housing including: The Department of Health’s (Care ServiceEfficiency Directorate) support for somecouncils on value for money and anincrease in housing choices workshops on housing and employmentresources housing specialist support on a widerrange of cost effective housing options.14
Progress on Employment:Our most up to date information shows:6 out of 100 people with learning disabilitieswho use social services had a job in 2009/10. 87 out of 152 Partnership Boards reportedthey have Employment strategies. This isjust over half. 64 out of 152 have person centredreviews at transition, which focus on paidemployment as an outcome. improvements include: job coaching,helping people find jobs suited to theirskills and abilities and support to set uptheir own business.15
Employment and Transition 2010/11All regions have agreed to a programme to: Support Partnership Boards with the toolsin the Valuing People Now - EmploymentResource Hub, Share learning on transition, including theGetting a Life and Project SearchProgrammes and Spread of learning from other best practiceemployment sites.16
Making it happen for everyoneAll regions reported lots of good local work on: tackling hate crime including all communities involving family carers People with complex needs17
offenders with learning disabilities.Many regions reported progress and plans toincrease the changing places facilities.18
Other Regional PrioritiesRegions were proud of their work on theregional priorities, which included: Transport Friends and relationships Advocacy19
Family carers Activities in day, evening and weekends.FinallyThank you to everyone who has helped to makethis happen.We would like to see Partnership Boardscontinue to do annual reports to show theprogress they are making locally.20
Valuing People Now: Summary Report March 2009-September 2010Background1.The Coalition Government has committed to the priorities set out in ValuingPeople Now published by the previous administration in January 20091, toimprove outcomes for people with learning disabilities in employment,housing and health. This cross-government strategy laid out the vision thatall people with learning disabilities have the right to lead their lives like anyothers, with the same opportunities and responsibilities, with the rightsupport to make this possible and to be treated with the same dignity andrespect.2.In October 2009, the Department published good practice guidance forLearning Disability Partnership Boards.2 This recognised the important rolethat local Partnership Boards can play as effective agents for change inassessing and bench marking local progress and influencing local strategicplanning and commissioning. They also ensure that people with learningdisabilities and their family carers are at the heart of decision making.3.Valuing People Now recommended that, from April 2010, all 152 PartnershipBoards should produce an annual report detailing progress in implementingthe strategy. The annual report was not mandatory but gave an opportunityfor Partnership Boards to bring together all the information they have locallyabout people with learning disabilities and their carers, including their needs,current services and future plans to identify progress and help steer localcommissioning. A suggested national template was developed to allowPartnership Boards to develop a benchmark set and engage in this work,and guidance recommended that reports should be formally signed off bypeople with learning disabilities and family carers.4.All Partnership Boards were asked to prepare a report based on their localprogress from April 2009-March 2010 and to send this to their RegionalProgramme Board by 31 March. Each of the nine Regional Boards thenbrought the information together into a summary report for their region, andkey findings from the regional summaries were discussed at the nationalLearning Disability Programme Board in June 2010.12Valuing People Now: a new three year strategy for people with learning disabilities. Department of Health (2009)Good Learning Disability Partnership Boards: “Making it happen for everyone” Department of Health (2009)21
Valuing People Now: Summary Report March 2009-September 2010Chapter 1: IntroductionReport outline1.1 This summary annual report brings together the key findings from the nineregional reports together with additional national data to show what progresshas been achieved in delivering Valuing People Now in the first year up to31 March 2010 and provides an update on more recent progress up toSeptember 2010. In particular it: Provides summary information about the Local Partnership Boards reports: who completed an annual report the extent to which people with learning disabilities and familycarers were involved in signing off the reports the big successes and the key risks. Sets out the key findings on the priority areas on: Health Housing and Employment. Summarises progress on other areas including: Including everyone Personalisation Transition Hate crime and22
Valuing People Now: Summary Report March 2009-September 2010 Advocacy. Identifies further progress needed and Provides examples of good practice at a regional and local level.1.2Additional good practice examples have been published separately.1.3The data from the regional reports will be available on the Department ofHealth website.1.4Additional information about services for people with learning disabilities ata local level has been published by the NHS Information Centre.3Key findings1.5All 152 Partnership Boards completed an annual report. Whilst manyfound completion challenging, the feedback has been that doing sofocussed attention on local patterns of provision and spending,performance and gaps in services. The process then helped PartnershipBoards to establish clear local work plans, with priorities and goals. ManyBoards were able fully to involve people with learning disabilities andfamilies using accessible materials and holding planning days, othersfound this more difficult.1.6The results, taken together with other data sources and the Department ofHealth’s response to the Parliamentary and Local GovernmentOmbudsman’s Report “Six Lives”, show a greater leadership and focus onimproving choice of support services for people with learning disabilities,with many examples of excellent practice. However, there remains acontinuing wide variation across health and social care in the choice andquality of services and in how money is spent to achieve the bestoutcomes for individuals.1.7A continuing increase in people having an annual health check is good,but over half of people eligible did not have one. Through the campusclosure programme, 2,000 people are now settled in their own homes ion 3&referrer %2fRapC1.aspx&info http%3a%2f%2fnascis.ic.nhs.uk%3a80%2fSignIn.htm23
Valuing People Now: Summary Report March 2009-September 2010making excellent progress, but too many people still live in residential carein some areas.1.8The employment rate of people with learning disabilities who use socialservices remains low at 6.4%. However, there are some real successes inpeople finding jobs through Project Search, Getting a Life and Jobs First,the employment demonstration sites.1.9National and regional work to share best practice has been critical todriving change. The revised Valuing People Now webpages launched inSeptember 2010 have had over 56,000 hits and are well used todisseminate best practice.4 National and regional newsletters have provedpopular and well-used. Many regional events have helped to share bestpractice.1.10Partnerships Boards continue to have a key role in the planning,commissioning and reviewing of services. They also ensure that peoplewith learning disabilities and their families are able to influence decisionmakers and hold them to account. They are an excellent example of BigSociety in action.1.11There is also an opportunity for Partnership Boards to link to the newHealth and Wellbeing Boards to provide a continuing clear focus on theneeds of people with learning disabilities and their families.4http://www.valuingpeoplenow.dh.gov.uk/24
Valuing People Now: Summary Report March 2009-September 2010Chapter 2: Partnership Board AnnualReport responses2.1.Valuing People Now recommended that, from April 2010, all PartnershipBoards should produce an annual report detailing progress inimplementing the strategy.The key findings2.2.These were: 152 out of 152 Partnership Boards have sent in an annual report totheir regional Programme Board; 117 out of 152 reports were signed off by people with learningdisabilities; 117 out of 152 reports were signed off by family carers.Reasons people with learning disabilities and family carers gave for notsigning off the report included: Not enough time; Too complicated to understand; Some family carers said they were only able to speak for themselvesand not for all local families.2.3All areas said they would follow up those areas where reports had not beensigned off by people with learning disabilities and family carers and saidthat they expected the number of reports signed off to increase.What are the Big Successes in 2009/10?2.4Partnership Boards were asked to list their three big successes in2009/10:25
Valuing People Now: Summary Report March 2009-September 2010 All 9 regions reported that they were pleased with their progress onhealth though they still had much to achieve; 7 out of 9 regions were pleased with the local progress on makingchange happen on jobs; 5 out of 9 regions were very proud of the leadership from peoplewith learning disabilities and families.What risks were identified?2.5Partnership Boards were asked to list the main risks: 7 out of 9 regions: identified that much more work is needed tomake sure outcomes are achieved on jobs and housing; 5 out of 9 regions: said that closing NHS Campuses on time will bedifficult; 4 out of 9 regions: said that there was a lot more work to do toimprove transition for young people.26
RegionalLearningDisabilityProgrammeBoardTotal number ofPartnershipBoards in theregionHow manyPartnershipBoards havesubmitted theirAnnual Report totheir RegionalLearningDisabilityProgrammeBoards?How manyPartnership Boardreports weresigned off bypeople withlearningdisabilities?How manyPartnership Boardreports weresigned off byfamily carers?EastMidlands9999East ofEngland1111111123233232London12121212North estSummary of Learning Disability Partnership Board reports by region10101414WestMidlands13141515Yorkshire& Humber27TotalValuing People Now: Summary Report March 2009-September 2010117117152152
Number of LocalPartnership Boards (LPB)05101520253035North EastRegionsWest MidlandsSouth WestSouth EastNorth WestLondonEast MidlandsEast of EnglandReturns made by Local Partnership BoardsHow many LPB reports weresigned off by Family carers?How many LPB reports weresigned off by people with LDs?How many LPBs have submittedtheir Annual Report to theRegional LDPBs?Total number of LPBs in theregion28Valuing People Now: Summary Report March 2009-September 2010Yorkshire & Humber
Valuing People Now: Summary Report March 2009-September 2010Chapter 3: HealthNational progress on health to September 20103.1Progress has been made to improve healthcare for people with learningdisabilities.3.2Contracts were awarded on 23 March 2010 for a time-limited ConfidentialInquiry to investigate premature and avoidable deaths of people withlearning disabilities and the Public Health Observatory to provideessential information at national and local level to drive up the quality ofcare. These will run for an initial period of 12 months, with the intention toextend them for a further two years until March 2013 subject tosatisfactory evaluation of the work carried out in the first year andavailability of funds5.3.3The number of people receiving an annual health check is increasing,with the checks improving understanding of the needs of people withlearning disabilities in primary care. There were 58,919 annual healthchecks for people with learning disabilities undertaken in 09/10, comparedto 27,011 in 08/09, an increase from 23 percent of those people withlearning disabilities known to services to 41 percent. We know that thereis still more to do.Annual health check data63.4Number of people eligible for a health checkYear one2008/9118,230Year two2009/10145,130Number of People receiving a health checkPercentage of eligible people receiving a health check27,01123%58,91941%The Department of Health worked with Strategic Health Authoriti
Valuing People Now: Summary Report March 2009-September 2010 22 Chapter 1: Introduction Report outline 1.1 This summary annual report brings together the key findings from the nine regional reports together with additional national data to show what progress has been achieved in delivering Valuing People Now in the first year up to 31 March .
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