Core Service: End Of Life Care - Care Quality Commission

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Inspection framework: NHS acute hospitalsCore service: End of life careEnd of life care encompasses all care given to patients who are approaching the end of their life and following death, andmay be delivered on any ward or within any service of a trust. It includes aspects of basic nursing care, specialist palliativecare, bereavement support and mortuary services.End of life care that relates to terminations of pregnancy, miscarriages and stillbirths at any stage of a pregnancy areinspected under maternity services.End of life care services that relate to children and young people are inspected under services for children and youngpeople.*The definition of end of life includes patients who are ‘approaching the end of life’ when they are likely to die within the next12 months. This includes patients whose death is imminent (expected within a few hours or days) and those with:(a) advanced, progressive, incurable conditions(b) general frailty and co-existing conditions that mean they are expected to die within 12 months(c) existing conditions if they are at risk of dying from a sudden acute crisis in their condition20160905 acute core service inspection framework for EOLC V3

(d) life-threatening acute conditions caused by sudden catastrophic events.*GMC 2010, Treatment and care towards the end of life: good practice in decision-making.Areas to inspect*The inspection team should carry out an initial visual inspection of each area. Your observations should be consideredalongside data/surveillance to identify areas of risk or concern for further inspection. Palliative care unit / ward / service. Including Care of the Elderly serviceChaplain’s office, chapel, multi-faith rooms and ablution areasFamily rooms and / or other facilities associated with wards / services (these may or may not be in the immediate area, and mayinclude overnight accommodation)Mortuary viewing area and bereavement officeInterviews/focus groups/observationsYou should conduct interviews of the following people at every inspection: People who use services and those close to them (inspectors must consider whether it is appropriate to speak to people whouse services and families who are experiencing EOLC at the time of the inspection)People who use services who are on wards / attending services where other people are receiving EOLCClinical director/lead, including lead geriatricianNursing lead for each ward/unit/areaDirectorate/divisional managerBoard member with responsibility for oversight of EOLCService improvement lead for EOLC, if there is oneYou could gather information about the service from the following people, depending on the staffing structure: Privacy and dignity leadEnd of Life Facilitator or similar roleStaff involved in consent for organ and tissue donation20160905 acute core service inspection framework for EOLC V3 Doctors of varying seniority on wards where peopleexperiencing EOLC are nursedNon-specialist staff on the wards involved in caring for

(internal staff as well as NHSBT)Religious representatives (Chaplain, Rabbi, etc.)Porters who transport bodies to the mortuarySpecialist palliative care team people at the end of their life.EOLC volunteersExternal providers / services that may be involved in EOLC,e.g. coroners and hospicesMortuary staff (note that Bereavement Officers may or maynot be members of the mortuary)Service-specific things to considerWe have identified a number of specific prompts for this core service that are set out below. Inspection teams should use these together withthe standard key lines of enquiry and prompts. These are not intended to be a definitive list or to be used as a checklist by inspectors.*Indicates information included in the inspection data pack.20160905 acute core service inspection framework for EOLC V3

SafeBy safe, we mean people are protected from abuse* and avoidable harm.*Abuse can be physical, sexual, mental or psychological, financial, neglect, institutional or discriminatory abuse.Requires further investigation:Key lines of enquiry: S1Data to be considered when making judgements:& S2S1. What is the track record on safety?S2. Are lessons learned and improvements made when things go wrong?Report sub-heading: IncidentsGeneric prompts What is the safety performance overtime, based on internal and externalinformation? How does safety performance compareto other similar services? Do staff understand theirresponsibilities to raise concerns, torecord safety incidents, concerns andnear misses, and to report theminternally and externally? Have safety goals been set? How wellis performance against them monitoredusing information from a range ofsources?Professional StandardSerious Incidents are investigated usingthe Serious Incident Framework 2015NHS England serious incident frameworkDuty of Candour: As soon asreasonably practicable afterbecoming aware that a notifiablesafety incident has occurred, a healthservice body must notify the relevantperson that the incident hasoccurred, provide reasonable supportto the relevant person in relation tothe incident and offer an 0-duty-candour20160905 acute core service inspection framework for EOLC V3Additional promptsOnly include incidents reported directlyby or about EOLC:Never Events: “Never events are serious,largely preventable patient safety incidentsthat should not occur if the availablepreventative measures have beenimplemented.”Serious Incidents Requiring Investigation(SIRIs) or SI (serious incident)Only include incidents reported directly byor about the palliative care service

Are people who use services told whenthey are affected by something thatgoes wrong, given an apology andinformed of any actions taken as aresult? When things go wrong, are thoroughand robust reviews or investigationscarried out? Are all relevant staff andpeople who use services involved in thereview or investigation? How are lessons learned, and is actiontaken as a result of investigations whenthings go wrong? How well are lessons shared to makesure action is taken to improve safetybeyond the affected team or service?Report sub-heading: Safety ThermometerGeneric promptsProfessional StandardNICE QS3 Statement 1: All patients, onadmission, receive an assessment ofVTE and bleeding risk using the clinicalrisk assessment criteria described in thenational tool.NICE QS3 Statement 4:Patients are re-assessed within 24 hoursof admission for risk of VTE andbleeding.20160905 acute core service inspection framework for EOLC V3Additional prompts(Normally not applicable and only include ifthere is a palliative care ward) Safety Thermometer: Does the servicemonitor the incidence of any of thefollowing for inpatients? Does theservice take appropriate action as aresult of the findings?

NICE QS86 Falls in older peopleThe quality standard covers assessmentafter a fall and preventing further falls inolder people in the community and duringa hospital stay.NICE QS90 UTI Urinary tract infection inadultsThe quality standard covers themanagement of suspected communityacquired bacterial urinary tract infectionin adults aged 16 and over20160905 acute core service inspection framework for EOLC V3

Key line of enquiry:S3Are there reliable systems, processes and practices in place to keep people safe and safeguarded from abuse?Report sub-heading: Mandatory trainingGeneric prompts Professional StandardDo staff receive effective mandatorytraining in the safety systems,processes and practices?Report sub-heading: Safeguarding Are the systems, processes andpractices that are essential to keeppeople safe identified, put in place andcommunicated to staff? Is implementation of safety systems,processes and practices monitored andimproved when required? Are there arrangements in place tosafeguard adults and children fromabuse that reflect relevant legislationand local requirements? Do staffunderstand their responsibilities andadhere to safeguarding policies andprocedures?20160905 acute core service inspection framework for EOLC V3Additional prompts What mandatory training do all staffreceive in relation to EOLC?What specific training do the specialistpalliative care team receive in deliveringEOLC. For example, the five prioritiesfor end of life care

Report sub-heading: Cleanliness, infection control and hygiene How are standards of cleanliness andhygiene maintained? Are reliable systems in place to preventand protect people from a healthcareassociated infection? Is implementation of safety systems,processes and practices monitored andimproved when required?Nice QS561 Statement 4:People who need a urinary catheter havetheir risk of infection minimised by thecompletion of specified proceduresnecessary for the safe insertion andmaintenance of the catheter and itsremoval as soon as it is no longerneeded.Nice QS61 Statement 5People who need a vascular accessdevice have their risk of infectionminimised by the completion of specifiedprocedures necessary for the safeinsertion and maintenance of the deviceand its removal as soon as it is no longerneededNormally, not applicable and onlyinclude if there is a palliative careward: Does the service ensure that after deaththe health and safety of everyone thatcomes into contact with the deceasedperson’s body is protected?How are transfers to the mortuary dealtwith, are staff aware of cultural/religiousdifferences in end of life care? Does the service ensure that after deaththe health and safety of everyone thatcomes into contact with the deceasedperson’s body is protected?Report sub-heading: Environment and equipment Does the design, maintenance and useof facilities and premises keep peoplesafe?Only apply to equipment and environmentused specifically by the palliative care team Does the maintenance and use ofequipment keep people safe? Do the arrangements for managingwaste and clinical specimens keeppeople safe? (This includesclassification, segregation, storage,labelling, handling and, where20160905 acute core service inspection framework for EOLC V3Are syringe pumps maintained and usedin accordance with professionalrecommendation?

appropriate, treatment and disposal ofwaste.) Are the systems, processes andpractices that are essential to keeppeople safe identified, put in place andcommunicated to staff? Is implementation of safety systems,processes and practices monitored andimproved when required?Report sub-heading: Medicines Do arrangements for managingNursing and Midwifery Council NMC medicines, medical gases and contrastStandards for Medicine Managementmedia keep people safe? (This includesobtaining, prescribing, recording,NICE QS61 Statement1:handling, storage and security,People are prescribed antibiotics indispensing, safe administration andaccordance with local antibioticdisposal.)formularies.Are the systems, processes andpractices that are essential to keeppeople safe identified, put in place andcommunicated to staff?Is implementation of safety systems,processes and practices monitored andimproved when required?Report sub-heading: Records Are people’s individual care recordswritten and managed in a way thatkeeps people safe? (This includesensuring people’s records are accurate,complete, legible, up to date and storedcode of practice for health and socialcare records management20160905 acute core service inspection framework for EOLC V3Do not duplicate what is reported onin other core service frameworks e.g.medical, surgical. Focus instead on: How well are they prescribing,dispensing, delivering and monitoringmedicines used in EOLC When older people with complex needsare being discharged is medicationexplained to them and to peopleimportant to the patient and are they toldwhat to do about their previousmedication?

securely). Are the systems, processes andpractices that are essential to keeppeople safe identified, put in place andcommunicated to staff? Is implementation of safety systems,processes and practices monitored andimproved when required?Key line of enquiry: S4How are risks to people who use services assessed, and their safety monitored and maintained?Report sub-heading: Assessing and responding to patient riskGeneric prompts Are comprehensive risk assessmentscarried out for people who use servicesand risk management plans developedin line with national guidance? Are risksmanaged positively? How do staff identify and respondappropriately to changing risks topeople who use services, includingdeteriorating health and wellbeing,medical emergencies or behaviour thatchallenges?Professional StandardAdditional prompts How does the provider ensure that ifpeople have increased needs this isidentified? I.e. mouth care, need forchange to medication (especially if onsyringe driver or if they need one)? How often are people who are dyingreviewed and what is taken intoaccount? If there is no palliative care ward, whatReport sub-heading: Nurse staffing How are staffing levels and skill mixplanned and reviewed so that people20160905 acute core service inspection framework for EOLC V3

receive safe care and treatment at alltimes, in line with relevant tools andguidance, where available? How do actual staffing levels compareto the planned levels? Do arrangements for using bank,agency and locum staff keep peoplesafe at all times? How do arrangements for handoversand shift changes ensure people aresafe?specialist nurse provision is there? Is there a nominated lead or champion/link worker for end of life care on eachward?NB – if wards are very busy and thereforepeople identified as EOL are not seenregularly by either medical or nursing staff,this should be commented on in EffectiveReport sub-heading: Medical staffing How are staffing levels and skill mixplanned and reviewed so that peoplereceive safe care and treatment at alltimes, in line with relevant tools andguidance, where available? How do actual staffing levels compareto the planned levels? Do arrangements for using bank,agency and locum staff keep peoplesafe at all times? How do arrangements for handoversand shift changes ensure people aresafe?20160905 acute core service inspection framework for EOLC V3NB – if wards are very busy and thereforepeople identified as EOL are not seenregularly by either medical or nursing staff,this should be commented on in Effective

Key line of enquiry: S5How well are potential risks to the service anticipated and planned for in advance?Generic promptsProfessional StandardAdditional promptsReport sub-heading: Major incident awareness and training How are potential risks taken intoaccount when planning services, forexample, seasonal fluctuations indemand, the impact of adverseweather, or disruption to staffing? What arrangements are in place torespond to emergencies and majorincidents? How often are thesepractised and reviewed? How is the impact on safety assessedand monitored when carrying outchanges to the service or the staff?20160905 acute core service inspection framework for EOLC V3Does the mortuary service have a policyabout how to response in the event of amajor disaster?

EffectiveBy effective, we mean that people’s care, treatment and support achieves good outcomes, promotes a good quality of life and is basedon the best available evidence.Requires further investigation:Key line of enquiry:Data to be considered when making judgements:E1Are people’s needs assessed and care and treatment delivered in line with legislation, standards and evidence-based guidance?Generic promptsAdditional promptsProfessional StandardReport sub-heading: Evidence-based care and treatmentHow are relevant and current evidence-basedguidance, standards, best practice andlegislation identified and used to develop howservices, care and treatment are delivered?(This includes from NICE and other expert andprofessional bodies). Do people have their needs assessed andtheir care planned and delivered in line withevidence-based, guidance, standards andbest practice? How is this monitored toensure compliance?Is discrimination, including on grounds ofage, disability, , gender, genderreassignment, pregnancy and maternitystatus, race, religion or belief and sexualorientation avoided when making care andtreatment decisions?NICE QS13 Statement:Defines clinical best practice within Endof Life care for adults. Is EOLC managed in accordancewith NICE guidelines? Does EOLC achieve the Prioritiesfor Care of the Dying Person setout by the Leadership Alliance forthe Care of Dying People? What action has the service takenin response to the 2013 review ofthe Liverpool Care Pathway? What actions are they taking inrelation to the implementation ofthe ‘Ambitions for Palliative andEnd of Life Care: A nationalframework for local actionNICE NG31 Care of dying adults in lastdays of lifeThe guideline covers the clinical care ofadults (those over 18) who are dyingduring the last 2-3 days of life.National Framework for end of life care:http://endoflifecareambitions.org.uk/20160905 acute core service inspection framework for EOLC V3

How is technology and equipment used toenhance the delivery of effective care andtreatment?Are the rights of people subject to the MentalHealth Act (MHA) protected and do staffhave regard to the MHA Code of Practice?NICE QS66 Statement 2:Adults receiving intravenous (IV) fluidtherapy in hospital are cared for byhealthcare professionals competent inassessing patients’ fluid and electrolyteneeds, prescribing and administering IVfluids, and monitoring patient experienceNICE QS3 Statement 5:Patients assessed to be at risk of VTEare offered VTE prophylaxis inaccordance with NICE guidance2015/2020? Has an action plan been created inresponse to the service’sperformance in the National Careof the Dying audit? Have they audited any of the above– if so – what are the results? What percentage of people arereferred to specialist palliativecare? What percentage of people areseen by the Palliative care teamwithin 24 hours?Is this audited?How are the team made aware ofnewly admitted people with EOLCneeds? Are they automaticallyflagged?Report sub-heading: Nutrition and hydration How are people’s nutrition and hydrationneeds assessed and met?20160905 acute core service inspection framework for EOLC V3 Are they aware of GMC guidancefor doctors in supporting nutritionand hydration in EOLC? Are nutrition and hydration needsincluded in people’s individual careplans?

Report sub-heading: Pain relief How is the pain of an individual personassessed and managed?The Royal College of Anaesthetists corestandards for pain management:Core Standards for pain managementSpecifically:Core Standards for Pain ManagementServices in the UK (Faculty of PainMedicine, 2015) As these are newstandards, the Faculty of Pain Medicinehave identified the following standards asparticularly relevant and an indicator asgood practice in this core service:6.5 Standard 1 - Patients with cancerrelated pain must receive a painassessment when seen by a healthcareprofessional, which at a minimumestablishes aetiology, intensity and theimpact of any pain that they report.6.5 Standard 2 - Access to analgesiamust be available within 24 hoursfollowing a pain assessment whichdirects the need for analgesia. This mustinclude access to a prescriber as well asaccess to a dispensed prescription.6.5 Standard 3 - Patients and carersmust receive adequate information on theuse of analgesics, especially strongopioids (in accordance with NICEguidance on Opioids in Palliative Care).20160905 acute core service inspection framework for EOLC V3 How has the service implementedthe Faculty of pain medicines’ corestandards for pain management(2015)?

This must cover how to take analgesia,the likely effectiveness of this, how tomonitor side effects, plans for furtherfollow-up, and how to get help especially out of hours.NICE CG140 Palliative Care for adults:strong Opioids for pain relief Opioids for pain relief in palliative careAre anticipatory medicationsprescribed in people identified asrequiring EOLC? Is this prescribedappropriately? Have they audited this?Key line of enquiry: E2How are people’s care and treatment outcomes monitored and how do they compare with other services?Generic promptsProfessional StandardAdditional promptsReport sub heading: Patient outcomes Is information about the outcomes ofpeople’s care and treatment routinelycollected and monitored? Does this information show that the intendedoutcomes for people are being achieved? How do outcomes for people in this servicecompare to other similar services and howhave they changed over time?20160905 acute core service inspection framework for EOLC V3 Does the service use the End of LifeCare Quality Assessment Tool(ELCQuA) or similar tool? Does the service contribute dataabout end of life care to the NationalMinimum Data Set? What are the results from theNational Care of the Dying Audit?

Is there participation in relevant local and national audits, benchmarking, accreditation,peer review, research and trials? How is information about people’s outcomesused and what action is taken as a result tomake improvements? Are staff involved in activities to monitor andimprove people’s outcomes?Gold Standards FrameworkAccreditation for Acute Hospitals(GSF)20160905 acute core service inspection framework for EOLC V3 Is the service working towards anindependent accreditation standard,for example, have any of the wardsachieved routes to success forhospitals or GSF?

Key line of enquiry:E3Do staff have the skills, knowledge and experience to deliver effective care and treatment?Generic promptsProfessional StandardAdditional promptsReport sub heading: Competent staff Do staff have the right qualifications, skills,knowledge and experience to do their jobwhen they start their employment, take onnew responsibilities and on a continualbasis? What EOLC training have staff hadin identifying people in the last 12months of their life in the last year? What EOLC/ up-skilling is providedto ward staff, to ensure that peoplesreceive appropriate care 24/7. (i.e.specific training programme such asGSF Acute Hospitals Programme,Amber care bundle etc) How are the learning needs of staffidentified? Do staff have appropriate training to meettheir learning needs? Are staff encouraged and givenopportunities to develop? What are the arrangements for supportingand managing staff? (This includes one-toone meetings, appraisals, coaching andmentoring, clinical supervision andrevalidation.)Are staff trained in Advance CarePlanning? Are there regulardiscussions about care plans? Is there specialist palliative careservice staff providing support andtraining to generalist staff? If staff are found to be too busy tosee people in a timely manner? How is poor or variable staff performanceidentified and managed? How are staffsupported to improve?20160905 acute core service inspection framework for EOLC V3

Key line of enquiry:E4How well do staff, teams and services work together to deliver effective care and treatment?Generic promptsProfessional StandardAdditional promptsReport sub-heading: Multidisciplinary working Are all necessary staff, including those indifferent teams and services, involved inassessing, planning and delivering people’scare and treatment? How is care delivered in a coordinated waywhen different teams or services are Does the service use an ElectronicPalliative Care CoordinationSystem? If not, how is EOLCcoordinated across areas, and withexternal providers and services? Does the service have a PalliativeCare Multidisciplinary Teammeeting? Is there effective communicationbetween the EOLC team and otherservices within the hospital; forexample the medical servicescaring for older people? Is there a personalised end of lifecare plan in use which helps staffidentify and care for people at theend of their life? Is there a clear process for thetransfer of care from hospital tocommunity services including careplans and medication?involved? Do staff work together to assess and planongoing care and treatment in a timely waywhen people are due to move betweenteams or services, including referral,discharge and transition?When people are discharged from a serviceis this done at an appropriate time of day,are all relevant teams and services informedand is this only done when any ongoing careis in place?20160905 acute core service inspection framework for EOLC V3

Does the service avoid dischargingolder people late at night if theyhave complex needs and livealone? How does the service ensure thatthe objectives of The Academy ofRoyal Colleges Guidance for TakingResponsibility: AccountableClinicians and Informed Patientshas been implemented? Are all team members aware of whohas overall responsibility for eachindividual’s care? How is key information about olderpeople with complex needscommunicated to members of thecommunity health team ondischarge? For example, sharing ofassessments, including tissueviability (pressure risk) andnutritional assessment and risk? Is there, at minimum a 9-5pm 7/7week, with telephone support out ofhours service provided?Report sub-heading: Seven-day services20160905 acute core service inspection framework for EOLC V3

Key line of enquiry:E5Do staff have all the information they need to deliver effective care and treatment to people who use services?Generic promptsProfessional StandardAdditional promptsReport sub-heading: Access to information Is all the information needed to delivereffective care and treatment available torelevant staff in a timely and accessibleway? (This includes care and riskassessments, care plans, case notes andtest results.)When people move between teams andservices, including at referral, discharge,transfer and transition, is all the informationneeded for their ongoing care sharedappropriately, in a timely way and in line withrelevant protocols?How well do the systems that manageinformation about people who use servicessupport staff to deliver effective care andtreatment? (This includes coordinationbetween different electronic and paperbased systems and appropriate access forstaff to records).NICE QS15 Statement 12:Patients experience coordinated carewith clear and accurate informationexchange between relevant health andsocial care professionalsDischarge summaries should include: Reasons for admission Investigations done and results Changes to medication Destination on discharge Plan for follow up Plan for rehabilitation if appropriate DNACPR status if appropriate Important information that will aidcommunity management e.g.pressure risk, weightAre GP’s informed that a personhas been identified as requiringEOLC? If so, how is this done?Are medication changes, inparticular those of older people withcomplex needs communicatedpromptly to the GP, and care homestaff or domiciliary care staff ifappropriate?How is discharge communicated toGPs? How soon after dischargedoes this occur?Are care summaries sent to thepatient’s GP on discharge to ensurecontinuity of care within thecommunity?How does the service ensure thatdetails of the surgery, and anyimplant used, are sent to the patientand the patient’s GP?Do GPs have direct access? Canthey speak to a medicalconsultant/SpR for advice on the20160905 acute core service inspection framework for EOLC V3

phone?Key line of enquiry:E6Is people’s consent to care and treatment always sought in line with legislation and guidance?Generic promptsProfessional StandardAdditional promptsReport sub-heading: Consent, Mental Capacity Act and DOLs Do staff understand the relevant consentand decision making requirements oflegislation and guidance, including theMental Capacity Act 2005 and the ChildrenActs 1989 and 2004?How are people supported to makedecisions?Consent: patients and doctors makingdecisions together (GMC)Department of Health Reference guide toconsent for examination or treatment Are DNA CPR decisions madeappropriately and in line withnational guidance? Is this audited? Specifically looking at DNA CPRforms, have they been signed by anappropriately senior clinician? When was the last audit of theirDNA CPR forms and what was theresults?Do they audit what time forms aresigned? i.e. what proportion aresigned out of hours? (implicationthat decisions made by more juniormembers of staff)Consent - The basics (MedicalProtection) How and when is a person’s mental capacityto consent to care or treatment assessedBMA 2015 consent toolkitand, where appropriate, recorded? When people lack the mental capacity tomake a decision, do staff make ‘bestinterests’ decisions in accordance withlegislation? How is the process for seeking consentmonitored and improved to ensure it meetsresponsibilities within legislation and followsrelevant national guidance? Do staff understand the difference betweenlawful and unlawful restraint practices,including how to seek authorisation for adeprivation of liberty?Resuscitation Council DNACPR decisionmaking guidance20160905 acute core service inspection framework for EOLC V3

Is the use of restraint of people who lackmental capacity clearly monitored for itsnecessity and proportionality in line withlegislation and is action taken to minimise itsuse?20160905 acute core service inspection framework for EOLC V3

CaringBy caring, we mean that staff involve and treat people with compassion, kindness, dignity and respect.Requires further investigation:Data to be considered when making judgements: Complaints Only include Family and Friends Test results if specificPalliative CareKey line of enquiry: C1Are people treated with kindness, dignity, respect and compassion while they receive care and treatment?Generic promptsProfessional StandardAdditional promptsNICE QS15 Statement 1:Patients are treated with dignity, kindness,compassion, courtesy, respect,understanding and honesty What do porters say about how wardstaff handle bodies before they aretransferred to the mortuary? What do mortuary staff say abou

Core service: End of life care End of life care encompasses all care given to patients who are approaching the end of their life and following death, and may be delivered on any ward or within any service of a trust. It includes aspects of basic nursing care, specialist palliative care, bereavement support and mortuary services.

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